Social Networks of People With Mental Retardation in Residential Settings

Robertson, Janet; Emerson, Eric; Gregory, Nicola; Hatton, Chris; Kessissoglou, Sophia; Hallam, Angela; Linehan, Christine

doi:10.1352/0047-6765(2001)039<0201:snopwm>2.0.co;2

Cited by 173 publications

(173 citation statements)

References 22 publications

Supporting

Mentioning

159

Contrasting

Unclassified

Order By: Relevance

“…Second, practitioners and services should take measures to expand the social networks of adolescents with a disability and their families. This seems especially important since persons with a disability and their family members are known to have smaller social networks and are at risk for social isolation (Forrester-Jones et al, 2006;Hodapp, 2002;Robertson et al, 2001). …”

Section: Adolescentsmentioning

confidence: 99%

Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience

et al. 2012

View full text Add to dashboard Cite

The aim of this study was to test whether the effect of the pile-up of demands associated with a disability on quality of One of the core notions in the systemic approach is that families form an interactive and interdependent system where what happens to one family member will also affect all the other members of the system (Goldenberg & Goldenberg, 2003;Turnbull & Turnbull, 2001). The disability of a child is such an event that will affect the whole family. Compared to families with typically developing children, a child with a disability poses specific challenges. A multitude of adverse effects of a disability on the family have been found, including higher levels of stress, lower well-being, more negative feelings on parenting, less marital satisfaction, a financial and a caretaker burden (Baker, Blacher, & Olsson, 2005;Blacher & McIntyre, 2006;Hatton & Emerson, 2003;Hunfeld et al., 2001;Maes, Broekman, Dosen, & Nauts, 2003;McIntyre, Blacher, & Baker, 2002;Wilkinson et al., 2001).However, research in families with a child with a disability is inconclusive regarding the impact of the disability on the family. Other studies in families of children with a disability recognize the positive effects these children can have on their family members, including better parent-child interactions, more family cohesion and a stronger life purpose Quality of Life 4 (Flaherty & Glidden, 2000;Glidden, Bamberger, Turek, & Hill, 2010;Green, 2007; Hastings & Taunt, 2002;Kearney & Griffin, 2001;Taanila, Jarvelin, & Kokkonen, 1999). Thus some families seem to do well despite the extra stressor of the disability of their child, while others struggle and succumb.There is a large body of literature suggesting several individual and family characteristics that are positively related to the family's adaptation to a child with a disability. Social support, resilience, good family cohesion, effective coping skills and positive cognitive appraisals might all influence the potential negative impact of the disability on the family (Lavee, Hamilton, & Patterson, 1985;Saloviita, Itälinna, & Leinonen, 2003;Taanila et al., 1999;Tak & McCubbin, 2002).It has become apparent that individual and family outcomes due to the impact of a pile-up of demands associated with living with a disability are the result of multiple factors interacting with each other. Therefore a multivariate model incorporating both psychological and social variables that could intervene between the stressor and the outcome is needed. The double ABCX model of McCubbin and Patterson (1983) is one of the most influential theoretical frameworks in this field. The model provides a theoretical basis for examining the effect of a stressor and pile-up of demands (factor aA) on the family adaptation (factor XX) through the Quality of Life 5 mediation of the existing and expanding family recourses (factor bB), the meaning the family assigns to their situation (factor cC), and the coping strategies employed by the family (factor BC) (Jacques, 2006;McCubbin & Patterson, 1983), w...

show abstract

Section: Adolescentsmentioning

confidence: 99%

Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience

et al. 2012

View full text Add to dashboard Cite

show abstract

“…Furthermore, the social circles of PWID tend to be smaller than those of the general population [34], with these mainly made up of staff or family members [35]. Overall, this demonstrates that despite shifts in policy, the needs of PWID in developing intimate relationships are not being met.…”

Section: Introductionmentioning

confidence: 99%

Views and Experiences of People with Intellectual Disabilities Regarding Intimate Relationships: A Qualitative Metasynthesis

2017

View full text Add to dashboard Cite

The aims of this review were to systematically identify, critically appraise and synthesize the results of existing qualitative literature exploring the views and experiences of intimate relationships amongst people with intellectual disabilities. Fourteen peer-reviewed articles were identified through a systematic search of eight databases, reference lists, citations, and relevant journals. The identified articles were appraised for quality, then synthesized using a metaethnography approach. No study met all quality criteria and references to ethical approval were often lacking. Interpretation of the findings suggested three key themes: the meaning of intimate relationships, external constraints and facilitators, and managing external constraints. Though many people with intellectual disabilities desire and benefit from intimate relationships, they experience restrictions that others do not, which can lead to isolation and loneliness. Intimate relationships are not always necessarily linked with sexual behavior; therefore, intimate relationships warrant their own focus in future research, as well as in education and training for people with intellectual disabilities and their caregivers. Within this, a commitment to transparency over research processes is needed, in particular with reference to how ethical approval was obtained, since this has been a shortcoming of research with this focus to date.

show abstract

“…People with learning disabilities, however, continue to experience high rates of social isolation [18,[20][21][22][23][24], and their social networks are composed mainly of family members and professionals [25]. The pattern of service provision perceived by Ritchie [25] in 1999 was one of the segregation and could still be said to be the same.…”

Section: Social Inclusionmentioning

confidence: 99%

Exploring Community Attitudes to People with Learning Disabilities: Using a Micro-Neighbourhood Design

Denny¹,

Denieffe²,

Pajnkihar³

2017

Learning Disabilities - An International Perspective

View full text Add to dashboard Cite

People with learning disabilities living in the community strive for meaningful social inclusion and integration. The attitudes of society to such individuals living in communities continues to be the catalyst that will enable them to achieve genuine social inclusion and integration. Identified barriers to social inclusion are a lack of change in societal attitudes towards people with learning disabilities. People with learning disabilities should live in a socially, not just functionally, integrated manner in community settings. Hence, attitudes of the community are extremely influential in achieving social integration and inclusion. It is important therefore to plan how best to capture attitudes in fact. An exemplar of a completed comparative study in Ireland, which used a micro-neighbourhood design combined with a random survey, illustrates how attitudes can be researched effectively. Study findings show that while attitudes were generally positive towards people with learning disabilities, there was no evidence of social integration, only functional integration. These findings reflect the challenges of achieving authentic social inclusion and integration and warrant further exploration by government agencies and service providers for people with learning disabilities. The study design outlined can contribute to gaining a true insight of societal attitudes.

show abstract

Social Networks of People With Mental Retardation in Residential Settings

Cited by 173 publications

References 22 publications

Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience

Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience

Views and Experiences of People with Intellectual Disabilities Regarding Intimate Relationships: A Qualitative Metasynthesis

Exploring Community Attitudes to People with Learning Disabilities: Using a Micro-Neighbourhood Design

Contact Info

Product

Resources

About