The aim of this study was to test whether the effect of the pile-up of demands associated with a disability on quality of One of the core notions in the systemic approach is that families form an interactive and interdependent system where what happens to one family member will also affect all the other members of the system (Goldenberg & Goldenberg, 2003;Turnbull & Turnbull, 2001). The disability of a child is such an event that will affect the whole family. Compared to families with typically developing children, a child with a disability poses specific challenges. A multitude of adverse effects of a disability on the family have been found, including higher levels of stress, lower well-being, more negative feelings on parenting, less marital satisfaction, a financial and a caretaker burden (Baker, Blacher, & Olsson, 2005;Blacher & McIntyre, 2006;Hatton & Emerson, 2003;Hunfeld et al., 2001;Maes, Broekman, Dosen, & Nauts, 2003;McIntyre, Blacher, & Baker, 2002;Wilkinson et al., 2001).However, research in families with a child with a disability is inconclusive regarding the impact of the disability on the family. Other studies in families of children with a disability recognize the positive effects these children can have on their family members, including better parent-child interactions, more family cohesion and a stronger life purpose Quality of Life 4 (Flaherty & Glidden, 2000;Glidden, Bamberger, Turek, & Hill, 2010;Green, 2007; Hastings & Taunt, 2002;Kearney & Griffin, 2001;Taanila, Jarvelin, & Kokkonen, 1999). Thus some families seem to do well despite the extra stressor of the disability of their child, while others struggle and succumb.There is a large body of literature suggesting several individual and family characteristics that are positively related to the family's adaptation to a child with a disability. Social support, resilience, good family cohesion, effective coping skills and positive cognitive appraisals might all influence the potential negative impact of the disability on the family (Lavee, Hamilton, & Patterson, 1985;Saloviita, Itälinna, & Leinonen, 2003;Taanila et al., 1999;Tak & McCubbin, 2002).It has become apparent that individual and family outcomes due to the impact of a pile-up of demands associated with living with a disability are the result of multiple factors interacting with each other. Therefore a multivariate model incorporating both psychological and social variables that could intervene between the stressor and the outcome is needed. The double ABCX model of McCubbin and Patterson (1983) is one of the most influential theoretical frameworks in this field. The model provides a theoretical basis for examining the effect of a stressor and pile-up of demands (factor aA) on the family adaptation (factor XX) through the Quality of Life 5 mediation of the existing and expanding family recourses (factor bB), the meaning the family assigns to their situation (factor cC), and the coping strategies employed by the family (factor BC) (Jacques, 2006;McCubbin & Patterson, 1983), w...
The objective of this article was to develop and psychometrically evaluate a self-report instrument that would assess interpersonal influence in families. The Influence in Families Questionnaire (IFQ) was developed as a 16-item scale which assesses both positive and negative influence. The IFQ and its subscales, when administered to a sample of 581 adolescents and young adults, showed high internal consistency and exhibited a promising pattern of convergent, divergent and criterion validity in relation to relevant criteria such as impact messages, family and attachment relationships and interpersonal sense of control. Overall, these results suggest that the IFQ is a useful instrument for measuring interpersonal influence within families.
The aim of the present study was to investigate (a) how intergenerational influence takes form within families with a child with a disability, and (b) the extent to which positive and negative influence -as perceived by family memberswithin and across generations, is predictive of family members' subjective quality of life. The study involved 60 two-parent two-child families where one of the children had a disability. Within a round-robin design, family members completed self-report measures of felt influence within their family and subjective quality of life. The main findings suggest that interpersonal influence as perceived by parents and children (a) varies as a function of valence (positive vs. negative) and target (from whom the influence is felt); and (b) is related to subjective quality of life. However, there seem to be differential effects of the distinct dimensions of influence (positive vs. negative; intergenerational vs. intragenerational) depending on whose quality of life is examined.
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