Smartphones and Text Messaging are Associated With Higher Parent Quality of Life Scores and Enrollment in Early Intervention After NICU Discharge

Flores-Fenlon, Nicole; Song, Ashley; Yeh, Amy; Gateau, Kameelah; Vanderbilt, Douglas; Kipke, Michele D.; Friedlich, Philippe; Lakshmanan, Ashwini

doi:10.1177/0009922819848080

Cited by 14 publications

(13 citation statements)

References 42 publications

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“…We included six qualitative studies and most (4/6) were conducted with neonatal or pediatric critical care populations. Caregivers were most commonly parents (n = 19, 61%) [ 30 , 31 , 33 , 35 – 38 , 41 – 44 , 47 – 49 , 51 , 52 ] and unspecified family caregivers more broadly—which could include parents, but the term was more broadly defined (n = 7, 23%) [ 23 , 24 , 26 , 27 , 32 , 39 , 50 ]. One study was specific to mothers [ 40 ] and one study was specific to fathers [ 45 ].…”

Section: Resultsmentioning

confidence: 99%

Impact of social media interventions and tools among informal caregivers of critically ill patients after patient admission to the intensive care unit: A scoping review

et al. 2020

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Background The use of social media in healthcare continues to evolve. The purpose of this scoping review was to summarize existing research on the impact of social media interventions and tools among informal caregivers of critically ill patients after patient admission to the intensive care unit (ICU). Methods This review followed established scoping review methods, including an extensive a prioridefined search strategy implemented in the MEDLINE, EMBASE, PsycINFO, CINAHL, and the Cochrane CENTRAL Register of Controlled Trials databases to July 10, 2020. Primary research studies reporting on the use of social media by informal caregivers for critically ill patients were included. Results We identified 400 unique citations and thirty-one studies met the inclusion criteria. Nine were interventional trials-four randomized controlled trials (RCTs)-and a majority (n = 14) were conducted (i.e., data collected) between 2013 to 2015. Communication platforms (e.g., Text Messaging, Web Camera) were the most commonly used social media tool (n = 17), followed by social networking sites (e.g., Facebook, Instagram) (n = 6), and content communities (e.g., YouTube, SlideShare) (n = 5). Nine studies' primary objective was caregiver satisfaction, followed by self-care (n = 6), and health literacy (n = 5). Nearly every study reported an outcome on usage feasibility (e.g., user attitudes, preferences, demographics) (n = 30), and twenty-three studies reported an outcome related to patient and

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Section: Resultsmentioning

confidence: 99%

Impact of social media interventions and tools among informal caregivers of critically ill patients after patient admission to the intensive care unit: A scoping review

et al. 2020

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“…A recent study by our group described the impact of preterm birth on parents and families and identified associated modifiable factors [ 41 ]. We also identified that access to email, text messaging, and smartphones was associated with higher parental quality of life [ 15 ]. In addition McAndrews et al also described an association between extremely preterm infants and worse HRQOL during the NICU hospitalized but with more improvement after discharge than others hospitalized in the NICU.…”

Section: Discussionmentioning

confidence: 99%

“…A 150-item questionnaire developed for this study was administered to participants about life after discharge from the NICU ( Supplemental Material ). Patient recruitment, survey administration and population characteristics are detailed in previous work [ 15 , 16 ]. The Institutional Review Board at the center approved the study protocol.…”

Section: Methodsmentioning

confidence: 99%

The association of care transitions measure-15 score and outcomes after discharge from the NICU

et al. 2021

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Background Our objectives were (1) to describe Care Transitions Measure (CTM) scores among caregivers of preterm infants after discharge from the neonatal intensive care unit (NICU) and (2) to describe the association of CTM scores with readmissions, enrollment in public assistance programs, and caregiver quality of life scores. Methods The study design was a cross-sectional study. We estimated adjusted associations between CTM scores (validated measure of transition) with outcomes using unconditional logistic and linear regression models and completed an E-value analysis on readmissions to quantify the minimum amount of unmeasured confounding. Results One hundred sixty-nine parents answered the questionnaire (85% response rate). The majority of our sample was Hispanic (72.5%), non-English speaking (67.1%) and reported an annual income of <$20,000 (58%). Nearly 28% of the infants discharged from the NICU were readmitted within a year from discharge. After adjusting for confounders, we identified that a positive 10-point change of CTM score was associated with an odds ratio (95% CI) of 0.74 (0.58, 0.98) for readmission (p = 0.01), 1.02 (1, 1.05) for enrollment in early intervention, 1.03 (1, 1.05) for enrollment in food assistance programs, and a unit change (95% CI) 0.41 (0.27, 0.56) in the Multicultural Quality of Life Index score (p < 0.0001). The associated E-value for readmissions was 1.6 (CI 1.1) suggesting moderate confounding. Conclusion The CTM may be a useful screening tool to predict certain outcomes for infants and their families after NICU discharge. However, further work must be done to identify unobserved confounding factors such as parenting confidence, problem-solving and patient activation.

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“…A 150-item questionnaire with components validated in English and Spanish was administered to participants about life after discharge from the NICU.. Patient recruitment, survey administration and population characteristics are detailed in previous work [ 19 , 20 ]. The Institutional Review Board at Children’s Hospital Los Angeles approved the study protocol.…”

Section: Methodsmentioning

confidence: 99%

Maternal post-traumatic stress and depression symptoms and outcomes after NICU discharge in a low-income sample: a cross-sectional study

Gateau

Song

Vanderbilt

et al. 2021

BMC Pregnancy Childbirth

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Background Having a preterm newborn and the experience of staying in the neonatal intensive care unit (NICU) has the potential to impact a mother’s mental health and overall quality of life. However, currently there are few studies that have examined the association of acute post-traumatic stress (PTS) and depression symptoms and infant and maternal outcomes in low-income populations. Design/ methods In a cross-sectional study, we examined adjusted associations between positive screens for PTS and depression using the Perinatal Post-traumatic stress Questionnaire (PPQ) and the Patient Health-Questionnaire 2 (PHQ-2) with outcomes using unconditional logistic and linear regression models. Results One hundred sixty-nine parents answered the questionnaire with 150 complete responses. The majority of our sample was Hispanic (68%), non-English speaking (67%) and reported an annual income of <$20,000 (58%). 33% of the participants had a positive PPQ screen and 34% a positive PHQ-2 screen. After adjusting for confounders, we identified that a positive PHQ-2 depression score was associated with a negative unit (95% CI) change on the infant’s Vineland Adaptive Behavior Scales, second edition of − 9.08 (− 15.6, − 2.6) (p < 0.01). There were no significant associations between maternal stress and depression scores and infant Bayley Scales of Infant Development III scores or re-hospitalizations or emergency room visits. However, positive PPQ and screening score were associated with a negative unit (95% CI) unit change on the maternal Multicultural Quality of Life Index score of − 8.1 (− 12, − 3.9)(p < 0.01) and − 7.7 (− 12, − 3) (p = 0.01) respectively. Conclusions More than one-third of the mothers in this sample screened positively for PTS and depression symptoms. Screening scores positive for stress and depression symptoms were associated with a negative change in some infant development scores and maternal quality of life scores. Thoughtful screening programs for maternal stress and depression symptoms should be instituted.

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Smartphones and Text Messaging are Associated With Higher Parent Quality of Life Scores and Enrollment in Early Intervention After NICU Discharge

Cited by 14 publications

References 42 publications

Impact of social media interventions and tools among informal caregivers of critically ill patients after patient admission to the intensive care unit: A scoping review

Impact of social media interventions and tools among informal caregivers of critically ill patients after patient admission to the intensive care unit: A scoping review

The association of care transitions measure-15 score and outcomes after discharge from the NICU

Maternal post-traumatic stress and depression symptoms and outcomes after NICU discharge in a low-income sample: a cross-sectional study

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