Impact of social media interventions and tools among informal caregivers of critically ill patients after patient admission to the intensive care unit: A scoping review

Cherak, Stephana J.; Rosgen, Brianna K; Amarbayan, Mungunzul; Plotnikoff, Kara M; Wollny, Krista; Stelfox, Henry T.; Fiest, Kirsten M.

doi:10.1371/journal.pone.0238803

Cited by 14 publications

(12 citation statements)

References 64 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Existing research points to positive conclusions (e.g. increased knowledge, satisfaction, and involvement) among informal caregivers of critically ill patients in 16 out of 31 studies on the impact of social media interventions and tools [47], demonstrating improvement of confidence in technology-enabled interventions, including social media. Some 66% of UK dementia caregivers utilize the internet for dementia information; 76% use social media [48].…”

Section: Context: Dementia Information On Twittermentioning

confidence: 99%

“She Seems More Human”: Understanding Twitter Users’ Credibility Assessments of Dementia-Related Information

Alhayan

Pennington

Ruthven

2022

Information for a Better World: Shaping the Global Future

View full text Add to dashboard Cite

The presence of incorrect, medically uncorroborated information on social media may be harmful if people believe it. The purpose of this qualitative study was to identify how Twitter users evaluate the credibility of dementia-related information sources. It used a think-aloud protocol via semi-structured interviews with 13 caregivers. It identified main credibility dimensions, including 13 factors. Participants deployed a combination of heuristics to assess information sources, and engaged in intensive systematic content review based on prior knowledge and relevance. The findings contribute to a nuanced understanding of how users evaluate Twitter sources in the health domain. Some of these are discussed in light of the MAIN Model, and prove significant in how practitioners and developers can better understand and help users evaluate information.

show abstract

Section: Context: Dementia Information On Twittermentioning

confidence: 99%

“She Seems More Human”: Understanding Twitter Users’ Credibility Assessments of Dementia-Related Information

Alhayan

Pennington

Ruthven

2022

Information for a Better World: Shaping the Global Future

View full text Add to dashboard Cite

show abstract

“…Additionally, we are well-equipped (i.e., large multidisciplinary team comprised of trainees, staff, and senior researchers) to undertake the vast literature this scoping review will capture. We have a track record of high-quality and pertinent systematic and scoping review publications that inform our research [ 30 – 33 ]. Given that data is publicly available (i.e., published articles and online material), we do not anticipate any data-sharing issues in this work.…”

Section: Discussionmentioning

confidence: 99%

Incorporating and evaluating citizen engagement in health research: a scoping review protocol

et al. 2021

Self Cite

View full text Add to dashboard Cite

Background Citizen engagement in research is an emerging practice that involves members of the general public in research processes such as priority setting, planning, decision-making, research conduct, implementation, evaluation, and dissemination. Engaging citizens in research, particularly health research, increases the relevance of study findings, minimizes waste by facilitating stewardship over resources, and builds public trust in the research. While several existing frameworks guide the application of citizen engagement principles to health research, it is unclear how citizen engagement can be utilized to maximize benefits and minimize risks and challenges in health research. To address the gaps in knowledge around citizen engagement in health research, we propose a scoping review to synthesize the state of knowledge on methods to incorporate and evaluate citizen engagement in research. A protocol is presented in this manuscript. Methods The methodology for our scoping review is guided by Arksey and O’ Malley’s framework for scoping reviews, and additional recommendations by Levac and colleagues. We will include peer-reviewed and gray literature that report on citizen engagement in health research (including biomedical, clinical, health systems and services, and social, cultural, environmental and population health) and report method(s) to conduct, measure, or evaluate citizen engagement. We will systematically search electronic databases (MEDLINE, EMBASE, CINAHL, JSTOR, PsycINFO, Scopus, and Science Direct) from inception onwards and search relevant organizations’ websites for additional studies, frameworks, and reports on citizen engagement. Title and abstract and full-text citations will be screened independently and in duplicate. Data will be extracted independently and in duplicate, including document characteristics, citizen engagement definitions and goals, and outcomes of citizen engagement (e.g., barriers, facilitators). Discussion This review will synthesize the definitions, goals, methods, outcomes, and significance of citizen engagement in health research, as well as any potential barriers, facilitators, and challenges outlined in existing literature. The findings will provide an evidence-based foundation for developing new or improved guidance for citizen engagement in health research. Overall, we anticipate that our scoping review will be a preliminary step to meaningful engagement of citizens in research and strengthen the relationship between the scientific community and the public through transparency and collaboration. Systematic review registration Open Science Framework https://osf.io/hzcbr.

show abstract

“…Additionally, we are wellequipped to undertake the methodologies outlined in this proposed research. We have a track-record of high-quality and pertinent systematic and scoping review publications that inform our research (27)(28)(29)(30).…”

Section: Team Preparedness and Dissemination Of Research Ndingsmentioning

confidence: 99%

Incorporating and Evaluating Citizen Engagement in Health Research: a Scoping Review Protocol

Shahid

Rosgen

Krewulak

et al. 2021

Preprint

Self Cite

View full text Add to dashboard Cite

Background: Citizen engagement in research is an emerging practice that involves members of the general public in research processes such as priority-setting, planning, decision-making, research conduct, implementation, evaluation, and dissemination. Engaging citizens in research, particularly health research, increases the relevance of study findings, minimizes waste by facilitating stewardship over resources, and builds public trust in the research. While several existing frameworks guide the application of citizen engagement principles to health research, it is unclear how citizen engagement can be utilized to maximize benefits and minimize risks and challenges in health research. To address the gaps in knowledge around citizen engagement in health research, we propose a scoping review to synthesize the state of knowledge on methods to incorporate and evaluate citizen engagement in research. A protocol is presented in this manuscript. Methods: The methodology for our scoping review is guided by Arksey and O’ Malley’s framework for scoping reviews, and additional recommendations by Levac and colleagues. We will include peer-reviewed and grey literature that report on citizen engagement in health research (including biomedical, clinical, health systems and services, and social, cultural, environmental and population health) and report method(s) to conduct, measure, or evaluate citizen engagement. We will systematically search electronic databases (MEDLINE, EMBASE, CINAHL, JSTOR, PsycINFO, Scopus, and Science Direct) and relevant organizations’ websites for additional studies, frameworks, and reports on citizen engagement. Title and abstract and full-text citations will be screened independently and in duplicate. Data will be extracted independently and in duplicate, including: document characteristics, citizen engagement definitions and goals, and outcomes of citizen engagement (e.g., impact, barriers, facilitators). Discussion: This review will synthesize the definitions, goals, methods, outcomes, and significance of citizen engagement in health research, as well as any potential barriers, facilitators, and challenges outlined in existing literature. The findings will provide an evidence-based foundation for developing new or improved guidance for citizen engagement in health research. Overall, we anticipate that our scoping review will be a preliminary step to meaningful engagement of citizens in research and strengthen the relationship between the scientific community and the public through transparency and collaboration.SYSTEMATIC REVIEW REGISTRATION: Not applicable.

show abstract

Impact of social media interventions and tools among informal caregivers of critically ill patients after patient admission to the intensive care unit: A scoping review

Cited by 14 publications

References 64 publications

“She Seems More Human”: Understanding Twitter Users’ Credibility Assessments of Dementia-Related Information

“She Seems More Human”: Understanding Twitter Users’ Credibility Assessments of Dementia-Related Information

Incorporating and evaluating citizen engagement in health research: a scoping review protocol

Incorporating and Evaluating Citizen Engagement in Health Research: a Scoping Review Protocol

Contact Info

Product

Resources

About