Sleep and Pain in Pediatric Illness: A Conceptual Review

Allen, Jennifer M.; Graef, Danielle M.; Ehrentraut, Jennifer Harman; Tynes, Brooklee L.; Crabtree, Valerie McLaughlin

doi:10.1111/cns.12583

Cited by 53 publications

(43 citation statements)

References 156 publications

(271 reference statements)

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“…An association between lack of sleep and increased pain sensitivity is well established in adults 24. Experimental studies are lacking in children, but it is reasonable to assume the same is true 25 26. Better sleep might, in theory, improve children’s ability to cope with pain and reduce the need for analgesia.…”

Section: Discussionmentioning

confidence: 99%

Sleep quality and noise: comparisons between hospital and home settings

et al. 2018

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Children and their mothers have poor quality sleep in paediatric wards. This may affect the child's behaviour, recovery and pain tolerance. Sleep deprivation adds to parental burden and stress. Sound levels are significantly raised in hospital and may contribute to poor sleep. Reduction in the level of noise might lead to an improvement in sleep, affecting the quality of stay of both parent and child.

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Section: Discussionmentioning

confidence: 99%

Sleep quality and noise: comparisons between hospital and home settings

et al. 2018

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“…Even though this kind of support might actually be available, these answers implied that patients were not aware of their existence. Given that pain and fatigue burden the patients’ daily lives considerably [ 16 , 23 ] and that many JIA patients experience difficulties at school or work, [ 24 – 28 ] these forms of supportive care are of utmost importance and should be made available widely.…”

Section: Discussionmentioning

confidence: 99%

Patient’s experiences with the care for juvenile idiopathic arthritis across Europe

Dijkhuizen

Egert²,

Egert³

et al. 2018

Pediatr Rheumatol

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BackgroundTo assess the views of juvenile idiopathic arthritis (JIA) patients and their parents on the care and treatment they receive in referral pediatric rheumatology centers throughout Europe.MethodsIn a collaboration between physicians and patient associations, a questionnaire was developed, covering various domains of JIA care, including demographics, diagnosis, referrals to various health care professionals, access to pain and fatigue management and support groups, information they received about the disease and awareness of and participation in research. The questionnaire was translated and distributed by parent associations and pediatric rheumatologists in 25 countries, 22 of which were European. After completion the replies were entered on the PRINTO website. Replies could either be entered directly by parents on the website or on paper. In these cases, the replies were scanned and emailed by local hospital staff to Utrecht where they were entered by I.R. in the database.ResultsThe survey was completed by 622 parents in 23 countries. The majority (66.7%) of patients were female, with median age 10–11 years at the completion of the questionnaire. Frequencies of self-reported JIA categories corresponded to literature. Some patients had never been referred to the ophthalmologist (22.8%) or physiotherapist (31.7%). Low rates of referral or access to fatigue (3.5%) or pain management teams (10.0%), age appropriate disease education (11.3%), special rehabilitation (13.7%) and support groups (20.1%) were observed. Many patients indicated they did not have contact details for urgent advice (35.9%) and did not receive information about immunizations (43.2%), research (55.6%) existence of transition of care clinics (89,2%) or financial support (89.7%). While on immunosuppressive drugs, about one half of patients did not receive information about immunizations, travelling, possible infections or how to deal with chickenpox or shingles.ConclusionsLow rates of referral to health care professionals may be due to children whose illness is well managed and who do not need additional support or information. Improvements are needed, especially in the areas of supportive care and information patients receive. It is also important to improve doctor patient communication between visits. Physicians can be instrumental in the setting up of support groups and increasing patients’ awareness of existing support. Suggestions are given to convey crucial pieces of information structurally and repeatedly to ensure, among other things, compliance.Electronic supplementary materialThe online version of this article (10.1186/s12969-018-0226-0) contains supplementary material, which is available to authorized users.

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“…Cancer has been considered the leading cause of non‐accidental death in China since 2010 (Chen et al., ). This disease induces pain, which has emerged as its concerning and common symptom (Allen et al., ). For instance breakthrough pain (BTP) in cancer is defined as a transient exacerbation of pain, which is greater than moderate intensity, and it occurs either spontaneously or in relation to a specific and predictable or unpredictable trigger despite the occurrence of well‐controlled background pain (Davies et al., ).…”

Section: Introductionmentioning

confidence: 99%