“She Would Be Flailing Around Distressed”: The Critical Role of Home-Based Palliative Care for Patients with Advanced Cancer

Calton, Brook; Thompson, Nancy E.; Shepard, Nancy; Keyssar, Redwing; Patel, Kanan; Dzul-Church, Virginia; Kao, Helen; Ritchie, Christine; Rabow, Michael W.

doi:10.1089/jpm.2016.0354

Cited by 6 publications

(2 citation statements)

References 13 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Often GPs have to act as mediators between patients and oncologists (26) and to become advocates of the patients and their families against the healthcare system and the community and to facilitate the relations with hospital specialists to ensure continuity of care. Having that in mind, the home-based palliative care could bridge the gap especially "for patients who require intensive home management, but are not enrolled in hospice" (27).…”

Section: Discussionmentioning

confidence: 99%

Narrative review of home care for palliative patients in general practice

Despotova-Toleva

Toleva-Nowak

2021

Ann Palliat Med

View full text Add to dashboard Cite

The need of palliative care is constantly growing worldwide and the spectrum of patients and diseases, leading to the need of palliative care is very broad (1). According to recently published data in the "Letter for National Palliative Care Advocates to send to government lead on Universal Health coverage, and UN negotiations" (2) by 2060, an estimated 48 million people (47% of all deaths globally) will die each year with serious health-related suffering, and 83% of these deaths will occur in low-income and middleincome countries.Due to the phenomenon of the so-called "silver tsunami" (the increasing number of elderly, and those of them with severe, incurable, life-limiting and life-threatening diseases) the problem escalates dramatically. Thus, significant and urgent changes should be made in some basic documents, including "Suggested language changes to zero draft 'Political Declaration of the High-level Meeting on

show abstract

Section: Discussionmentioning

confidence: 99%

Narrative review of home care for palliative patients in general practice

Despotova-Toleva

Toleva-Nowak

2021

Ann Palliat Med

View full text Add to dashboard Cite

show abstract

“…More than a decade ago, the first U.S. randomized trial of home-based palliative care (HBPC) demonstrated clear evidence of this program's effectiveness in increasing patient satisfaction while reducing costs of care. 1 Despite these findings and findings from similar, subsequent studies, [2][3][4][5][6][7][8][9] widespread access to HBPC in the U.S. has been hindered by lack of funding mechanisms for this care model. 10,11 In January 2018, California's Senate Bill 1004 (SB 1004) took effect.…”

Section: Introductionmentioning

confidence: 98%

Identifying Paths Forward: Expanding Palliative Care to Low-Income Patients in California

Hoe

Wang

Rahman

et al. 2022

Am J Hosp Palliat Care

View full text Add to dashboard Cite

Multiple studies demonstrate most consumers do not know about palliative care. And, since January 2018, California’s Medi-Cal Managed Care patients have been eligible for palliative care services under Senate Bill 1004 (SB 1004). Yet, the uptake of palliative care services was underwhelming. The purpose of this study was to explore patient-centered barriers to palliative care. We recruited 27 adult Medicaid managed care patients from community-based sites in Los Angeles and conducted semi-structured qualitative interviews. Each participant was asked questions to elicit their knowledge about, and perspectives on, palliative care as well as their preferred communication approaches for receiving a referral to palliative care. The interviews were audio-recorded and transcribed verbatim. We used a grounded theory approach to guide our analysis of primary themes. Our findings indicated that the barriers to palliative care referrals among this population included lack of knowledge about palliative care and available services; the reliance on, and trust in, primary care physicians for information; language and cultural barriers; housing instability; and patient believing they are neither old enough nor sick enough to need palliative care. These findings emphasize the critical role primary care physicians play in advocating for low-income patients and the necessity for culturally sensitive education about palliative care. Promoting knowledge and understanding of palliative care among both primary care physicians and consumers is critical to ensuring access to care.

show abstract

Comparing the Palliative Care Needs of Patients Seen by Specialty Palliative Care Teams at Home Versus in Clinic

Smith

Calton

Rabow

et al. 2021

Journal of Pain and Symptom Management

View full text Add to dashboard Cite

“She Would Be Flailing Around Distressed”: The Critical Role of Home-Based Palliative Care for Patients with Advanced Cancer

Abstract: CBs filled an unmet need for patients with advanced, metastatic cancer who desired ongoing cancer treatment, but were also in need of intensive end-of-life home services.

Cited by 6 publications

References 13 publications

Narrative review of home care for palliative patients in general practice

Narrative review of home care for palliative patients in general practice

Identifying Paths Forward: Expanding Palliative Care to Low-Income Patients in California

Comparing the Palliative Care Needs of Patients Seen by Specialty Palliative Care Teams at Home Versus in Clinic

Contact Info

Product

Resources

About