Comparing the Palliative Care Needs of Patients Seen by Specialty Palliative Care Teams at Home Versus in Clinic

Smith, G. B.; Calton, Brook; Rabow, Michael W.; Marks, Angela; Bischoff, Kara; Pantilat, Steven Z.

doi:10.1016/j.jpainsymman.2020.11.020

Cited by 4 publications

(1 citation statement)

References 53 publications

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“…In contrast, the setting did not in uence problem scores at follow-up during SPC; however, prevalence of two single problems ("transportation", " nding others not receptive to talking about the disease") was signi cantly higher in the I-SPC group. In a retrospective study comparing O-SPC and I-SPC, O-SPC patients had worse function and higher need for care planning and family support [29].…”

Section: Discussionmentioning

confidence: 99%

Need for additional professional psychosocial and spiritual support in patients with advanced diseases in the course of specialist palliative care – a longitudinal observational study

Ullrich

Schulz

Goldbach³

et al. 2021

Preprint

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Background: We investigated the need for additional professional support and influencing factors in patients (pts) at initiation and in the course of in- and outpatient specialist palliative care (I-SPC/O-SPC). Methods: Pts entering an urban SPC network consecutively completed questionnaires on psychosocial/spiritual problems and support needs within 72 hours (T0) and within the first 6 weeks (T1) of SPC. Hierarchical linear regression analysis investigated the impact of sociodemographic / clinical variables, psychological / physical burden, social support, and SPC setting on support need. Results: 425 pts (70 years, 48% female, 91% cancer, 67% O-SPC) answered T0, and 167 T1. At T0, main problems were related to transportation, usual activities, and dependency (83-89%). At T1, most prevalent problems were again related to transportation, usual activities, and additionally light housework (82-86%). At T0, support need was highest for transportation, light housework, and usual activities (35-41%). Cross-sectional comparisons of SPC settings revealed higher problem scores in O-SPC at T0 (p=.039), but not at T1. Support need was higher in O-SPC at T0 (p<.001), but lower at T1 (p=.039). Longitudinal analyses showed a decrease of support need scores over time, independent from the SPC setting. At T0, higher distress (p=.047), anxiety/depression (p<.001), physical burden (p<.001) and I-SPC (p<.001), were associated with higher support need scores (at T1 only higher distress; p=.037).Conclusion: Need for additional professional psychosocial/spiritual support was identified in up to 40% of pts with higher need at the beginning of OSPC than of ISPC. During SPC, this need decreased in both settings, but got lower in OSPC than in ISPC over time. Psychosocial/spiritual support need was associated with not only with psychological, but also physical burden.

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Section: Discussionmentioning

confidence: 99%

Need for additional professional psychosocial and spiritual support in patients with advanced diseases in the course of specialist palliative care – a longitudinal observational study

Ullrich

Schulz

Goldbach³

et al. 2021

Preprint

View full text Add to dashboard Cite

show abstract

Symptom Burden and Survival in Patients Receiving Outpatient and Home-Based Palliative Care

Haupt

Sharma²,

Nguyen

2023

Journal of Palliative Medicine

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Need for additional professional psychosocial and spiritual support in patients with advanced diseases in the course of specialist palliative care – a longitudinal observational study

Ullrich

Schulz

Goldbach³

et al. 2021

BMC Palliat Care

View full text Add to dashboard Cite

Background We investigated the need for additional professional support and associated factors in patients (pts) at initiation and in the course of in- and outpatient specialist palliative care (I-SPC/O-SPC). Methods Pts entering an urban SPC network consecutively completed questionnaires on psychosocial/spiritual problems and support needs within 72 h (T0) as well as within the first 6 weeks (T1) of SPC. Hierarchical linear regression analysis was used to investigate the impact of sociodemographic / disease-related variables, psychological / physical burden, social support, and SPC setting on the extent of support needs. Results Four hundred twenty-five pts (70 years, 48% female, 91% cancer, 67% O-SPC) answered at T0, and 167 at T1. At T0, main problems related to transportation, usual activities, and dependency (83–89%). At T1, most prevalent problems also related to transportation and usual activities and additionally to light housework (82–86%). At T0, support needs were highest for transportation, light housework, and usual activities (35–41%). Cross-sectional comparisons of SPC settings revealed higher problem scores in O-SPC compared to I-SPC at T0 (p = .039), but not at T1. Support need scores were higher in O-SPC at T0 (p < .001), but lower at T1 (p = .039). Longitudinal analyses showed a decrease of support need scores over time, independent from the SPC setting. At T0, higher distress (p = .047), anxiety/depression (p < .001), physical symptom burden (p < .001) and I-SPC (p < .001) were associated with higher support need scores (at T1: only higher distress, p = .037). Conclusion Need for additional professional psychosocial/spiritual support was identified in up to 40% of pts. with higher need at the beginning of O-SPC than of I-SPC. During SPC, this need decreased in both settings, but got lower in O-SPC than in I-SPC over time. Support need scores were not only associated with psychological, but also physical burden.

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Comparing the Palliative Care Needs of Patients Seen by Specialty Palliative Care Teams at Home Versus in Clinic

Cited by 4 publications

References 53 publications

Need for additional professional psychosocial and spiritual support in patients with advanced diseases in the course of specialist palliative care – a longitudinal observational study

Need for additional professional psychosocial and spiritual support in patients with advanced diseases in the course of specialist palliative care – a longitudinal observational study

Symptom Burden and Survival in Patients Receiving Outpatient and Home-Based Palliative Care

Need for additional professional psychosocial and spiritual support in patients with advanced diseases in the course of specialist palliative care – a longitudinal observational study

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