Sharing Personal Health Information on Social Media

Liao, Yuting

doi:10.1145/3328529.3328560

Cited by 16 publications

(13 citation statements)

References 42 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Sharing personal health information on SM can be highly rewarding, but it also contains a potential risk [33]. Our interns believed that sharing cases with no identifying information was not an issue, especially if they had that patient’s consent.…”

Section: Discussion/conclusionmentioning

confidence: 99%

Social Media and Medical Applications in the Healthcare Context: Adoption by Medical Interns

Kheir

AlShammari

Alamri

et al. 2022

Saudi J Health Syst Res

View full text Add to dashboard Cite

Introduction: The widespread use of social media (SM) and medical applications (Apps) have improved the healthcare delivery and continued medical education in many forms, especially during COVID-19 pandemic. This study aimed to explore the perspective and practice of medical interns on the role of SM and medical Apps in delivering healthcare. Methods: A mixed-methods approach was used to collect data via both semi-structured interviews and an online self-administered questionnaire. A total of 24 medical interns were interviewed (6 focus group discussions and 5 key informants’ interviews), while 889 interns completed the online questionnaire. Interviews and their transcripts were analyzed and presented as themes and subthemes and frequencies were obtained from the self-administered questionnaire using SPSS v. 28. Results: Our studied interns believed that SM and medical Apps in healthcare delivery should be activated and deployed more since they will be using it increasingly in the future. They considered medical Apps such as UpToDate and Medscape as reliable and valid sources of medical information. Participants agreed that official Saudi Ministry of Health medical Apps, Mawid and Seha (Sehhaty), made radical change in healthcare delivery during COVID-19 pandemic. Interns’ attitude toward using SM platforms in healthcare context changed during the pandemic as SM facilitated health promotion, sharing knowledge, and public health education. Nevertheless, interns discussed difficulties when health educating the public, and uncertainty regarding ethical and privacy aspects of communication with patients and colleagues via SM and medical Apps. Discussion/Conclusion: Medical interns’ use of SM and medical Apps for medical education and patient care is increasing. Overall, interns have a positive attitude toward the role SM and medical Apps can play in healthcare delivery; nevertheless, they were uncertain about related ethical and privacy issues.

show abstract

Section: Discussion/conclusionmentioning

confidence: 99%

Social Media and Medical Applications in the Healthcare Context: Adoption by Medical Interns

Kheir

AlShammari

Alamri

et al. 2022

Saudi J Health Syst Res

View full text Add to dashboard Cite

show abstract

“…Embora os estudos incluídos desvelem as múltiplas barreiras (Quadro III) percebidas nos diferentes contextos, constata-se que a abordagem baseada em práticas de informação não é central nesses estudos. Além disso, a investigação das barreiras vinculadas explicitamente às mídias sociais é central em apenas três estudos (LIAO, 2019;NISAR, SHAFIQ, 2019;ALZAHRANI, ALANZI, 2019). Tal constatação indica que a investigação sobre as barreiras à informação em saúde nas mídias sociais tende a ser secundária -como desdobramento dos estudos acerca dos comportamentos de uso da informação sobre saúde na internet -ou restrita às análises das dificuldades relacionadas a alguns dos aspectos materiais das mídias sociais.…”

Section: Discussionunclassified

“…As barreiras de interação correspondem aos dilemas e desafios intersubjetivos e situacionais que envolvem a articulação entre as práticas de autogestão de informações (BRASHERS et al, 2002) e as dinâmicas do trabalho de face (GOFFMAN, 1967). Nesta revisão, as barreiras de interação apontadas pelos estudos foram agrupadas em duas temáticas: (a) a preocupação com a perda da privacidade e da reputação durante as práticas on-line de busca e compartilhamento de informações (PATTERSON et al, 2019;LIAO, 2019;NISAR;SHAFIQ, 2019;ALZAHRANI;ALANZI, 2019;BERNARD et al, 2019;ESMAEILZADEH et al, 2018;GLIK et al, 2016;WITZEL et al, 2016); (b) o desconforto com os atos online de ameaça à face durante as práticas de evite (NISAR; SHAFIQ, 2019;BERNARD et al, 2019;RUPPEL et al, 2017). Ambas temáticas se configuram como barreiras à autogestão das informações sobre saúde nas mídias sociais.…”

Section: Barreiras De Interaçãounclassified

Barreiras à informação em saúde nas mídias sociais

Brasileiro

Almeida

2021

RDBCI rev. dig. Bibliotecon. e Ci. Info.

View full text Add to dashboard Cite

Introdução: A utilização das mídias sociais para a autogestão de informações sobre saúde constitui uma prática recorrente dos usuários leigos que vivenciam diferentes contextos de saúde. Embora facilitem o acesso e o compartilhamento de informações, as mídias sociais podem contribuir para a criação de possíveis riscos à saúde e ao bem-estar, uma vez que ampliam as experiências de vulnerabilidade emocional e desinformação. Objetivo: Para descobrir as evidências atuais que impactam o uso benéfico das mídias sociais para fins de informação sobre saúde, buscou-se examinar como as barreiras à informação em saúde nas mídias sociais, percebidas pelos usuários leigos, são apresentadas em pesquisas empíricas recentes. Metodologia: Realizou-se uma pesquisa qualitativa de caráter exploratório por meio de uma revisão da literatura na base de dados SCOPUS. Resultados: Observou-se que, embora sejam múltiplas e variem conforme os contextos de saúde e as motivações situacionais, as barreiras podem ser articuladas em uma malha composta pelas seguintes meta-barreiras: diaspóricas, desinformação, letramento, interação e emocionais. Conclusão: Conclui-se que a malha de barreiras apresentada, associada a outras barreiras estruturais, pode contribuir para a construção de instrumentos de pesquisa e intervenções digitais envolvendo o uso das mídias sociais para fins de informação sobre saúde.

show abstract

“…According to Gimpel et al [ 46 ], motives for sharing self-tracked data, such as diet- and exercise-related or vital and biological parameters, can be referred to as self-association. Cost-benefit trade-offs regarding sharing tracked data are strongly linked to situationally perceived experience [ 71 ]. On the basis of the social exchange theory by Homan, users unconsciously or consciously weigh the costs or disadvantages of disclosure against personally perceived advantages [ 72 ].…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of Digital Forced-Choice Nudges for Voluntary Data Donation by Health Self-trackers in Germany: Web-Based Experiment

Pilgrim¹,

Bohnet-Joschko²

2022

J Med Internet Res

View full text Add to dashboard Cite

Background Health self-tracking is an evidence-based approach to optimize health and well-being for personal self-improvement through lifestyle changes. At the same time, user-generated health-related data can be of particular value for (health care) research. As longitudinal data, these data can provide evidence for developing better and new medications, diagnosing rare diseases faster, or treating chronic diseases. Objective This quantitative study aims to investigate the impact of digital forced-choice nudges on the willingness of German health self-trackers to donate self-tracked health-related data for research. This study contributes to the body of knowledge on the effectiveness of nonmonetary incentives. Our study enables a gender-specific statement on influencing factors on the voluntary donation of personal health data and, at the same time, on the effectiveness of digital forced-choice nudges within tracking apps. Methods We implemented a digital experiment using a web-based questionnaire by graphical manipulation of the Runtastic tracking app interface. We asked 5 groups independently to indicate their willingness to donate tracked data for research. We used a digital forced-choice nudge via a pop-up window, which framed the data donation request with 4 different counter values. We generated the counter values according to the specific target group needs identified from the research literature. Results A sample of 919 was generated, of which, 625 (68%) were women and 294 (32%) were men. By dividing the sample into male and female participants, we take into account research on gender differences in privacy tendencies on the web and offline, showing that female participants display higher privacy concerns than male participants. A statistical group comparison shows that with a small effect size (r=0.21), men are significantly more likely (P=.04) to donate their self-tracked data for research if the need to take on social responsibility is addressed (the prosocial counter value in this case—contributing to society) compared with the control group without counter value. Selfish or pseudoprosocial counter values had no significant effect on willingness to donate health data among male or female health self-trackers in Germany when presented as a forced-choice nudge within a tracking app. Conclusions Although surveys regularly reveal an 80% to 95% willingness to donate data on average in the population, our results show that only 41% (377/919) of the health self-trackers would donate their self-collected health data to research. Although selfish motives do not significantly influence willingness to donate, linking data donation to added societal value could significantly increase the likelihood of donating among male self-trackers by 15.5%. Thus, addressing the need to contribute to society promotes the willingness to donate data among male health self-trackers. The implementation of forced-choice framing nudges within tracking apps presented in a pop-up window can add to the accessibility of user-generated health-related data for research.

show abstract

Sharing Personal Health Information on Social Media

Cited by 16 publications

References 42 publications

Social Media and Medical Applications in the Healthcare Context: Adoption by Medical Interns

Social Media and Medical Applications in the Healthcare Context: Adoption by Medical Interns

Barreiras à informação em saúde nas mídias sociais

Effectiveness of Digital Forced-Choice Nudges for Voluntary Data Donation by Health Self-trackers in Germany: Web-Based Experiment

Contact Info

Product

Resources

About