“Share experiences, strategies and emotions”. Expectations of patients with regard to health education with empowerment in epilepsy

Salord, Francina; Aguilera, Carolina; Lombraña, María; Grau, A.; Poyato, Mireia López; Frías, Cindy E.; Cuzco, Cecilia; Zabalegui, Adelaida; Carreño, Mar; Conde‐Blanco, Estefanía; Donaire, Antonio; Guerra, Sonia Sevilla; Khawaja, Marian; Manzanares, Isabel

doi:10.1016/j.sedeng.2020.06.001

Cited by 2 publications

(3 citation statements)

References 17 publications

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“…As noted in the interviews, providers have a pivotal role in nurturing the ‘exceptional patient’ ( Collins & Rochfort, 2016 ). Working with patients to develop their role expectations ( Yeh et al, 2018 ) may help them achieve empowerment ( Salord et al, 2021 ), which research has linked with improved satisfaction ( Yeh et al, 2018 ), healthcare utilisation, and clinical outcomes ( Wong et al, 2014 ). As engaging different stakeholders provided more complete and contextualised information, future research exploring perceptions of care needs to engage the whole team, including the often overlooked patient ( Baxter, 2016 ).…”

Section: Discussionmentioning

confidence: 99%

Identifying Factors that Support the Delivery of Exceptional Care in General Practice and Development of the IDEAL Framework: A Qualitative Study

O’Malley,

Lydon,

Faherty

et al. 2023

Qual Health Res

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The positive deviance approach seeks to identify and learn from those that perform exceptionally well. Positive deviance as an approach to quality improvement is gaining traction in general practice. This study aimed to explore and compare stakeholders’ perceptions of the factors that support the delivery of exceptional care in general practice and to refine a previously developed theoretical framework of factors associated with positively deviant care in general practice: the Identifying and Disseminating the Exceptional to Achieve Learning (IDEAL) framework. Semi-structured interviews were conducted with 33 purposively sampled patients, general practitioners, practice nurses, and practice managers in Irish general practice. Subsequently, a directed content analysis approach was employed to deductively analyse interview data using the IDEAL framework, and newly emerging factors were inductively analysed and abstracted into the framework. Several distinct strategies (e.g. patient activation and team collaboration), structures (e.g. facilities and staffing), and contextual factors (e.g. communication and rapport, and culture) were found to support the delivery of exceptional care, and differences in perceptions, values, and expectations emerged between patients and practice staff. Interview data largely supported the pre-determined factors posited by the IDEAL framework, and new factors were abstracted into the framework (e.g. facilities and infrastructure). Stakeholder engagement regarding the factors supporting exceptional care in general practice supported and extended the IDEAL framework, contributing to a more comprehensive understanding of how exceptional care is delivered in general practice. The refined framework will support researchers, policymakers, and teams looking to support, measure, and achieve exceptionally good patient care in general practice.

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Section: Discussionmentioning

confidence: 99%

Identifying Factors that Support the Delivery of Exceptional Care in General Practice and Development of the IDEAL Framework: A Qualitative Study

O’Malley,

Lydon,

Faherty

et al. 2023

Qual Health Res

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“…The group consisted of organizations and individuals to improve patient empowerment and extend their networks [6], based on the strategic lines of empowerment proposed by the World Health Organization (WHO) [7] as a measure for social promotion, self-help, and self-management of the illness. Thus, the concept of empowerment as a care tool is widely used in nursing with the aim of strengthening the professional-patient relationship and promoting preventive nursing and health education [8,9]. In chronic illnesses such as dementia, the ultimate goal is to help informal caregivers to acquire coping strategies and reduce levels of burden to improve emotional wellbeing [8,9].…”

Section: Introductionmentioning

confidence: 99%

“…Thus, the concept of empowerment as a care tool is widely used in nursing with the aim of strengthening the professional-patient relationship and promoting preventive nursing and health education [8,9]. In chronic illnesses such as dementia, the ultimate goal is to help informal caregivers to acquire coping strategies and reduce levels of burden to improve emotional wellbeing [8,9].…”

Section: Introductionmentioning

confidence: 99%

Validation of the Spanish Version of the Double Knowledge Expectations and Received Knowledge Significant Other Scale for Informal Caregivers of People with Dementia (KESO-DEM/RKSO-DEM)

Frías

Casafont

Cabrera

et al. 2022

IJERPH

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Dementia is associated with cognitive decline. Becoming an informal caregiver raises questions, requiring information and support from health professionals to guide home care. A multicenter, longitudinal study was carried out to validate the Spanish version of the double scale of expected and received knowledge for informal caregivers of people with dementia (KESO-DEM/RKSO-DEM), the analysis of the dimensional structure of the instrument, its validity and reliability, and temporary stability was carried out. An analysis of criterion and construct validity, internal consistency, and test–retest stability was performed. The evaluation of the interrelation between dimensions was statistically significant. Regarding internal consistency, the scale values were good both for the scale totals and for each dimension of knowledge, with Cronbach’s alpha coefficients of 0.97. For criterion validity, all items showed temporal stability for both questionnaires (p < 0.05). The availability of a valid, reliable tool for the measurement of expected and received knowledge in caregivers of people with dementia allows an approach based on the real needs of the family and the patient. It is important to design care protocols for people with dementia that are adapted to their needs and expectations and to their non-curative treatment, to improve the emotional well-being of patients and informal caregivers.

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“Share experiences, strategies and emotions”. Expectations of patients with regard to health education with empowerment in epilepsy

Cited by 2 publications

References 17 publications

Identifying Factors that Support the Delivery of Exceptional Care in General Practice and Development of the IDEAL Framework: A Qualitative Study

Identifying Factors that Support the Delivery of Exceptional Care in General Practice and Development of the IDEAL Framework: A Qualitative Study

Validation of the Spanish Version of the Double Knowledge Expectations and Received Knowledge Significant Other Scale for Informal Caregivers of People with Dementia (KESO-DEM/RKSO-DEM)

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