Sexual function and qualify of life in women with spina bifida: Are the women with spina bifida satisfied with their sexual activity?

Choi, Eun Kyoung; Kim, Sang Woon; Ji, Yoonhye; Lim, Seoung Wha

doi:10.1002/nau.23525

Cited by 27 publications

(11 citation statements)

References 29 publications

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“…A sexual activity rate of 50% among the SB patients in the present study is concordant with previous research [6][7][8]14 that reported rates of sexual activity among women with the same condition ranging from 32% to 68%. This demonstrates important differences compared with the general female population from the countries involved in the study -Brazil and Spain -,which presented sexual intercourse rates ranging from 83.6% to 85.3%.…”

Section: Discussionsupporting

confidence: 92%

“…17 The weak median scores found in the overall and specific-domains of the FSFI-6 among our patients are similar to the scores found in previous studies that quantitatively assessed sexuality in a quantitative matter. 8,18 Lee et al 18 found lower overall and specific-domain scores in the FSFI of SB patients when compared with non-SB women who also suffered from sexual dysfunction, showing that these neurologic patients demand more attention to their sexual life than regular patients. 18 To comprehend the sexuality of female patients, it is important to assess their GO aspects.…”

Section: Discussionmentioning

confidence: 99%

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Sexuality of Female Spina Bifida Patients: Predictors of a Satisfactory Sexual Function

Motta

Bujons

Madarriaga

et al. 2021

Rev Bras Ginecol Obstet

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Objective To assess the sexual function of women with spina bifida (SB), and to verify the factors that influence their sexual function. Methods A cross-sectional study in which a validated female-specific questionnaire was applied to 140 SB female patients from four different cities (Porto Alegre, Brazil; and Barcelona, Madrid, and Málaga, Spain) between 2019 and 2020. The questionnaires collected data on the clinical characteristics of SB, and female sexual function was assessed using the 6-item version of the Female Sexual Function Index (FSFI-6) validated to Portuguese and Spanish. Results Half of the patients had had sexual activity at least once in the life, but most (57.1%) did not use any contraception method. Sexual dysfunction was present in most (84.3%) patients, and all sexual function domains were impaired compared those of non-neurogenic women. The presence of urinary and fecal incontinence significantly affected the quality of their sexual activity based on the FSFI-6. Conclusion The specific clinical aspects of the SB patients, such as urinary and fecal incontinence, should be properly addressed by their doctors, since they are associated with reduced sexual activity and lower FSFI-6 scores in the overall or specific domains. There is also a need to improve gynecological care among sexually-active SB patients, since most do not use any contraceptive methods and are at risk of inadvertent pregnancy.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionmentioning

confidence: 99%

Sexuality of Female Spina Bifida Patients: Predictors of a Satisfactory Sexual Function

Motta

Bujons

Madarriaga

et al. 2021

Rev Bras Ginecol Obstet

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“…However, also from the experts’ point of view most of the evidence is anecdotal. In the study performed by Choi et al women who did not suffer urinary incontinence had a better sexual function [ 26 ] regarding pain and lubrication.…”

Section: Diversion Urinary Incontinence and Sexual Lifementioning

confidence: 99%

Sexual function in adult patients who have undergone augmentation surgery in childhood: what is really important?

et al. 2020

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Problems relating to the development of a healthy approach to sex and intimacy during puberty, after augmentation cystoplasty, are scarcely discussed in literature. Therefore, this may suggest that such issues are insufficiently addressed by pediatric urologists. We gathered four experts in the field as well as an experienced leader of a patient group and mother of a girl with spina bifida and asked questions relevant to the following areas of care: (a) diversion, urinary incontinence, and sexual life; (b) impact of a stoma on body image perception and self-esteem; (c) specific female concerns with regard to fertility and recurrent urinary infections; (d) specific male concerns on anejaculation and erectile dysfunction. Their answers are discussed in view of the available literature. All experts and the patient group representative agreed that most of these patients will experience: lack of self-confidence as the most frequent obstacle to starting a relationship and incontinence as a barrier to sexual activity. The cosmesis of the stoma and abdominal scars might influence self-esteem and therefore the sexual activity, however it appears to be a less common concern in males than females. Our results outline the importance and influence that the body image, self-esteem, and confidence present for the individual expectations of the patients related to sex life and sexual activity. Physicians should be encouraged to ask all postpubertal patients about their sexual concerns at every visit. Further studies and exchange of information between clinicians are needed to provide meaningful and analyzable patient-related outcome measures (PROMs).

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“…67 Sexual dysfunction is reported in both males and females in approximately 60-80% of cases. 68,69 The incidence of dysfunction does not seem to differ by lesion level for females, but appears to be increased in males with a lower level lesion. 70 Infant Development will be seen in 67% of cases, and significant deficits (<50) in 12%.…”

Section: Ambulation Motor and Sensory Functionmentioning

confidence: 95%

“…Often however, with a dietary and medical bowel regimen along with training, individuals can achieve social continence 67 . Sexual dysfunction is reported in both males and females in approximately 60‐80% of cases 68,69 . The incidence of dysfunction does not seem to differ by lesion level for females, but appears to be increased in males with a lower level lesion 70 .…”

Section: Natural History Of Fetal Spina Bifidamentioning

confidence: 99%

Fetal spina bifida: What we tell the parents

et al. 2020

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Worldwide, about 150 000 infants are born with spina bifida yearly, making this condition one of the most common fetal central nervous system anomalies compatible with life. Over the last decade, major changes have been introduced in the prenatal diagnosis and management of spina bifida. In this review, we provide a brief summary of the current management of fetal spina bifida and present essential information that should be provided to expecting parents when their fetus has been diagnosed with spina bifida. This information is focused around common parental questions, as encountered in our typical clinical practice, to facilitate knowledge translation.

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Sexual function and qualify of life in women with spina bifida: Are the women with spina bifida satisfied with their sexual activity?

Abstract: More than half of sexually active women with spina bifida experience sexual dysfunction. Therefore, health-care providers should pay attention to the symptoms and their management.

Cited by 27 publications

References 29 publications

Sexuality of Female Spina Bifida Patients: Predictors of a Satisfactory Sexual Function

Sexuality of Female Spina Bifida Patients: Predictors of a Satisfactory Sexual Function

Sexual function in adult patients who have undergone augmentation surgery in childhood: what is really important?

Fetal spina bifida: What we tell the parents

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