Sexual behaviours and education in adolescents and young adults with Down syndrome: A grounded theory study of experiences and opinions of their mothers in Turkey

Gokgoz, Cagla; Demirci, Ayse Deliktas; Kabukçuoğlu, Kamile

doi:10.1016/j.ridd.2021.103907

Cited by 14 publications

(14 citation statements)

References 66 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The parents especially expressed their children's masturbation and undressing behaviours in public spaces. Studies in the literature present that adolescents with intellectual disabilities and autism exhibit similar unsuitable socio-sexual behaviours (Byers & Nichols, 2014;Gokgoz, Deliktas-Demirci & Kabukcuoglu, 2021;Hellemans et al, 2007;Hill, 2018;Puglise et al, 2020). They report the lack of sexuality education for children as this negative situation's reason (Guven, 2021;Kalyva, 2010;Koller, 2000;Sullivan & Caterino, 2008;Sweeny, 2007).…”

Section: Discussionmentioning

confidence: 99%

“…Parents take many precautions to protect their children against personal safety threats. These can be to warn children to stay away from safety threats and teach them how to act when facing with these threats (Guven, 2021;Gokgoz et al, 2021;Holmes et al, 2019;Miltenberger, 2008). These become even more critical for children with disabilities, for example, because children with intellectual disabilities do not have the skills and knowledge to protect themselves in dangerous and harassing situations (especially sexual harassment), and they struggle in distinguishing acceptable and unacceptable interactions (Wurtele, 2009;Holmes et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

“…These become even more critical for children with disabilities, for example, because children with intellectual disabilities do not have the skills and knowledge to protect themselves in dangerous and harassing situations (especially sexual harassment), and they struggle in distinguishing acceptable and unacceptable interactions (Wurtele, 2009;Holmes et al, 2019). Researchers highlight that combating victimisation should include developing overcoming (coping) strategies, involving families in the education and training process (Frisen & Holmqvist, 2010;Gokgoz et al, 2021), strengthening self-sufficiency skills, teaching the necessity of reporting events to adults, making sure students have someone to talk safely in their lives and creating classes without bullying (Crothers et al, 2006). Briefly, teaching IWNDDs safety skills is predicted to serve them to live in safe environments and reduce parents' anxiety.…”

Section: Discussionmentioning

confidence: 99%

“…While providing them CSE, family participation is also important, which experts support (Ballan, 2012). As the literature emphasises this importance, studies in Turkey and different parts of the world report that parents (Altundag & Cakirer-Bayram, 2019;Ariyantia & Royanto, 2017;Ballan, 2012;Dupras & Dionne, 2014;Gurol et al, 2014;Guven, 2021;Gokgoz et al, 2021;Holmes et al, 2016):…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Rural families’ thoughts about sexual development of their adolescents with neurodevelopmental disorders

Güven

2021

CJES

View full text Add to dashboard Cite

The study aims to determine rural families’ experiences regarding sexual development of their adolescents with neurodevelopmental disorders. Thus, semi-structured interviews were conducted with 14 parents. Since the interviews included privacy issues, they were conducted one-to-one with the parents. The phenomenological method was used, depending on the research purpose. Inductive analysis was utilised in the analysis of the data obtained from the semi-structured interviews. Validity and reliability were included in all stages of data collection, breakdown and analysis. As a result, the families stated that their children exhibited inappropriate socio-sexual behaviours during adolescence; they strive to teach their children sexuality issues, although they do not know how and they generally prefer carrying their children along to prevent sexual abuse. Also, due to not knowing much about sexuality, they generally received their relatives’ support and requested comprehensive sexuality education (CSE) from special education teachers and other experts, especially about distinguishing good and bad people, menstruation and hiding sanitary pads. Although the literature reports that sexuality and its education are generally taboo, families in this study explained their thoughts on sexuality in full detail without tabooing. This makes the study different and meaningful, when compared to similar ones. The study was conducted in an eastern Turkey city with difficult access to special education. Thus, experts in rural areas are recommended to prepare and give necessary CSE programmes to families and individuals with special needs by conducting similar studies. These studies can be conducted not only with special education perspective but also in different disciplines. It is a basic human right for all individuals to receive CSE, thus as another recommendation, experts should give all children these courses in schools. Keywords: Comprehensive sexuality education, individuals with neurodevelopmental disorders, parenting education, phenomenological design.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Rural families’ thoughts about sexual development of their adolescents with neurodevelopmental disorders

Güven

2021

CJES

View full text Add to dashboard Cite

show abstract

“…Parents' attempts to create ‘security cordons’ are indicative of their fears (Gokgoz et al . 2021). The management of sexual transitions can be difficult for parents who already struggle to discuss sexuality (Kammes et al .…”

Section: Discussionmentioning

confidence: 99%

Experiences of parents of adolescents with intellectual disabilities regarding the transition to sexual development: A transitions theory‐based qualitative study

Karataş

Dalgıç

2021

J intellect Disabil Res

View full text Add to dashboard Cite

Background To describe of the experiences of parents regarding the transition to sexual development of their adolescents with intellectual disabilities who are 15–19 years old. Methods This study employs a descriptive interpretative approach and uses Meleis's transitions theory as its theoretical frame of reference. This study uses purposive sampling methods for recruitment. We collected data through individual semi‐structured interviews (n = 11) and researcher observations between February 2021 and April 2021 and employed an inductive content analysis approach. Results Three main themes emerged from the data: parental factors driving the transition process, parents' needs regarding the transition process, and outcomes of the transition process. In addition, most parents struggled to remodel their identities following the transition due to concerns over their adolescent's ability to cope with the challenges of adulthood. Conclusion Considered in the context of middle‐range transitions theory, we suggest that parental experiences regarding adolescents' transition to sexual development stem from varying levels of uncertainty and depend on the situation, preferences, and family needs of each individual parent. It is useful to utilise Meleis's transitions theory to understand deeply and explore the impact of the sexual development of adolescents with intellectual disabilities on parents.

show abstract

Down Syndrome

Premoli,

Fatti,

Persani

et al. 2023

Managing Psychosexual Consequences in Chronic Diseases

View full text Add to dashboard Cite

Sexual behaviours and education in adolescents and young adults with Down syndrome: A grounded theory study of experiences and opinions of their mothers in Turkey

Cited by 14 publications

References 66 publications

Rural families’ thoughts about sexual development of their adolescents with neurodevelopmental disorders

Rural families’ thoughts about sexual development of their adolescents with neurodevelopmental disorders

Experiences of parents of adolescents with intellectual disabilities regarding the transition to sexual development: A transitions theory‐based qualitative study

Down Syndrome

Contact Info

Product

Resources

About