Service development for intellectual disability mental health: a human rights approach

Evans, Elizabeth; Howlett, Sophie; Kremser, T.; Simpson, Jim; Kayess, Rosemary; Trollor, Julian N.

doi:10.1111/j.1365-2788.2012.01636.x

Cited by 37 publications

(41 citation statements)

References 47 publications

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“…, Evans et al . ), this study highlights the use of various health services designed for the general population by ID patients, such as hospitals and clinics. While this is highly justifiable and desirable, it remains that ID patients do not benefit as much from these services.…”

Section: Discussionmentioning

confidence: 92%

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Nurses’ representations of caring for intellectually disabled patients and perceived needs to ensure quality care

Ndengeyingoma

Ruel

2016

Journal of Clinical Nursing

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Nurses must be educated to adapt to findings emerging from current research showing that people with an intellectual disability want to be part of their local communities and encourage these persons to do so. This can be facilitated through the adoption of specific guidelines, protocols and care programmes. Further research is needed to develop a better understanding of the expectations of these patients and their caregivers, focusing on self-advocacy as well as health promotion techniques, with the goal of enhancing personalised practice standards and reducing health education inequalities for these patients.

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Section: Discussionmentioning

confidence: 92%

“…, Evans et al . ). Challenges remain in organising service continuity and in nurses having adequate knowledge of available resources.…”

Section: Discussionmentioning

confidence: 97%

Nurses’ representations of caring for intellectually disabled patients and perceived needs to ensure quality care

Ndengeyingoma

Ruel

2016

Journal of Clinical Nursing

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Section: Introductionmentioning

confidence: 99%

“…Compared with the general population, individuals with intellectual disabilities (IDs) have worse health, lower levels of physical activity (PA) and higher barriers for participation in activities and access to health care (Walsh 2008;Evans et al 2012;Hilgenkamp et al 2012;Balogh et al 2016;Temple et al 2017;Wouters et al 2019). PA is the term used to describe bodily movement produced by skeletal muscles that require energy expenditure (World Health Organization 2004 and can be further defined by types of activities and intensity categories.…”

Section: Introductionmentioning

confidence: 99%

Family members and health care workers' perspectives on motivational factors of participation in physical activity for people with intellectual disability: A qualitative study

Michalsen

Wangberg

Anke

et al. 2020

J intellect Disabil Res

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Background People with intellectual disabilities (ID) have lower levels of physical activity than the general population. The aim of this study was to understand the motivational factors of participation in physical activity for people with ID from the perspectives of the family members and staff. Method An abductive qualitative design was used. Social Cognitive Theory constituted the theoretical frame of reference of the study. Two focus group interviews with health care workers and family members and two individual interviews with health care workers were conducted at their workplace. A thematic analysis was performed. Results Three main themes were identified. According to support persons, motivation could be promoted at the individual level by fun, mastery, social setting, technology and knowledge about health behaviours. At a contextual level, physical activity was mediated by engagement with support individuals and available resources. At an interactional level, individuals were more motivated if the interaction was featured by joint activities, predictability and the use of rewards. Conclusions Motivation for participation in physical activity might be promoted at the individual, contextual and interactional levels. The interactions between individuals with ID and their support persons should work in a supportive way and strengthen mastery experiences. Support and engagement in the context could serve as a prerequisite for motivation and participation in physical activity and should be considered when developing interventions for physical activity for individuals with ID.

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“…Today, nursing education courses are increasingly including the knowledge and skills required by enrolled nurses to support persons with ID (Tuffrey-Wijne et al, 2014). Although the rate of occurrence of mental illnesses is greater in people with ID than in the general population, as has been demonstrated in several studies (Whitehead, 2007), there is a lack of mental health nurses and enrolled nurses in ID in the education system (Adshead, Collier, & Kennedy, 2015;Evans et al, 2012).…”

Section: Discussionmentioning

confidence: 97%

Employees' experiences of education and knowledge in intellectual disability practice

Olsson

Gustafsson

2020

Policy Practice Intel Disabi

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Background The value of support, service, and care in intellectual disability (ID) practice is linked to the competence of the professional caregivers. The quality of work is affected by the level of education of healthcare employees involved. Specific Aims This study aimed to collect data on how employees perceive their education and training in ID practice and how educational programs prepare them for their working environment. Methods We used a quantitative approach to investigate how employees reflect on their knowledge about ID and other disabilities and the sources of such knowledge. A total of 262 employees engaged in ID practice completed an online survey. Findings The results indicated that education significantly influenced the participants' knowledge level, and highly specific education (i.e., workplace training) can substitute for work experience in ID practice. The authors conclude that all workplaces should examine their employees' skills regularly from the viewpoint of fulfilling the needs of people with ID. Discussion Based on the results, it can be concluded that employees in ID practice need specific knowledge through workplace training (i.e., through hands‐on practice at the workplace). Competence development in the form of workplace training is needed to upskill the staff and possibly increases employees' participation at work.

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Service development for intellectual disability mental health: a human rights approach

Cited by 37 publications

References 47 publications

Nurses’ representations of caring for intellectually disabled patients and perceived needs to ensure quality care

Nurses’ representations of caring for intellectually disabled patients and perceived needs to ensure quality care

Family members and health care workers' perspectives on motivational factors of participation in physical activity for people with intellectual disability: A qualitative study

Employees' experiences of education and knowledge in intellectual disability practice

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