Nurses must be educated to adapt to findings emerging from current research showing that people with an intellectual disability want to be part of their local communities and encourage these persons to do so. This can be facilitated through the adoption of specific guidelines, protocols and care programmes. Further research is needed to develop a better understanding of the expectations of these patients and their caregivers, focusing on self-advocacy as well as health promotion techniques, with the goal of enhancing personalised practice standards and reducing health education inequalities for these patients.
Date Presented 03/26/20
A program was launched in 2016 to draw a portrait of the social participation of adults with ASD and identify barriers and facilitators to their social participation. We conducted an online survey with 16- to 40-year-old adults with ASD (n = 201) and with parents of adults with ASD (n = 107). Areas investigated included: education, work, leisure, housing, and responsibility from the Human Development Model conceptual framework—Disability Creation Process (HDM-DCP).
Primary Author and Speaker: Melanie Couture
Contributing Authors: Claude Normand, Claudine Jacques, Julie Ruel, France Beauregard, Stephanie Fecteau, Jade Berbari
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