Self-report and parent-report of physical and psychosocial well-being in Dutch adolescents with type 1 diabetes in relation to glycemic control

Wit, Maartje de; Waal, Henriëtte A. Delemarre-van de; Bokma, Jan Alle; Haasnoot, K.; Houdijk, Mieke; Gemke, Reinoud J. B. J.; Snoek, Frank J.

doi:10.1186/1477-7525-5-10

Cited by 69 publications

(60 citation statements)

References 35 publications

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“…The impact of this neurodevelopmental disorder on adolescents' everyday life is also significantly more severe than the impact of a somatic disorder on those with diabetes. These latter subjects display no impairment on their level of quality of life related to their chronic illness, compared to healthy teenagers, findings in agreement with the studies from Laffel et al [21] and de Wit et al [9].…”

Section: Discussionsupporting

confidence: 92%

Quality of life of adolescents with autism spectrum disorders: comparison to adolescents with diabetes

Cottenceau

Roux

Blanc

et al. 2012

Eur Child Adolesc Psychiatry

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Relationships are of great importance during adolescence. Because of their social, communication and behavioral impairments, adolescents with Asperger's syndrome (AS) or high functioning autism (HFA) probably suffer from considerable impairment of their quality of life when facing their peers in school. Nevertheless, only one recent study has been published on this subject, indicating a lower health-related quality of life in children and adolescents with autism spectrum disorders (ASD) than in healthy controls. The goals of our study were to clarify the consequences of autistic disorder without mental retardation on such adolescents' daily lives, and to consider them in comparison with the impact of a chronic somatic disease (diabetes) and with the period of adolescence itself, using the VSP-A questionnaire. Adolescents with diabetes were chosen as a comparison group because of the encumbrance of having a constant need for insulin supplementation, to be assimilated to the constant need for communicative adjustments in teenagers with ASD, and the consequences in daily life. The effects of social skill training and social support on quality of life and the appropriateness of using the VSP-A in this population were also studied. Twenty-six adolescents with AS and HFA, 44 diabetic adolescents, and 250 controls completed a self-administered and validated questionnaire on quality of life, the VSP-A. Scores for adolescents with ASD were significantly lower than those of the control and the diabetic adolescents, especially for friendships, leisure time, and affective and sexual relationships. On the other hand, better scores were obtained for the relationships with parents and teachers and for self-image. Social parameters affected the quality of life of subjects with ASD, such as having friends, regularly participating in a sport, and having the support of a school carer. For subjects with autistic spectrum disorders and without mental retardation, impairment of quality of life is significant in adolescence and young adulthood. Such adolescents are dissatisfied with their relationships, although they often have real motivation to succeed with them. Relevance of VSP-A questionnaire in these special individuals is discussed.

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Section: Discussionsupporting

confidence: 92%

Quality of life of adolescents with autism spectrum disorders: comparison to adolescents with diabetes

Cottenceau

Roux

Blanc

et al. 2012

Eur Child Adolesc Psychiatry

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“…Others have found that parents might also be better at evaluating primarily observable behavior, while the inner lives of chronically ill children are better evaluated by the children themselves [42]. De Witt et al (2007) [43] did however find parent and child reports on comparable questionnaires measuring psychosocial well-being to be largely concordant, but also found parents to rate their children less favorable with respect to behavioral problems, than children did themselves.…”

Section: Discussionmentioning

confidence: 99%

Symptoms of Emotional, Behavioral, and Social Difficulties in the Danish Population of Children and Adolescents with Type 1 Diabetes – Results of a National Survey

et al. 2014

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ObjectiveTo assess the prevalence of psychological difficulties in Danish children and adolescents with type 1 diabetes using both child/adolescent and caregiver reports, and to investigate associations between these symptoms and metabolic control, adherence, and quality of life.Research Design and Method:A total of 786 children and adolescents (8–17 years) recruited through the Danish Registry of Childhood Diabetes completed subscales of the Beck's Youth Inventories (BYI-Y), while 910 caregivers completed the Strength and Difficulties Questionnaire (SDQ). The participants also completed questionnaires assessing adherence and quality of life. BYI-Y and SDQ responses were compared with results from normative samples.ResultsChildren with diabetes generally reported a lower level of symptoms of depression and anxiety, while older adolescents in most cases were comparable to the normative samples. However, the numbers of patients with elevated scores were similar to normative groups, especially regarding the proportion of participants with ‘Extremely elevated’ scores. Caregivers of children and adolescents with diabetes generally reported the prevalence of elevated scores on the SDQ to exceed the prevalence observed in the norm sample – particularly with regard to older boys. Both BYI-Y and SDQ responses were significantly correlated with HbA1c, adherence, and quality of life.ConclusionsThis study finds Danish children and adolescents with diabetes to report lower or comparable levels of emotional difficulties compared to norms, while caregiver reports are less positive. The results therefore support the value of a multi-informant approach to the assessment of symptoms of psychological difficulty in girls and boys with diabetes.

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“…Similarly, with respect to diabetes management, adolescents perceive that they are more self-reliant and competent (Mansfield et al, 2004; Ott, Greening, Palardy, Holdreby, & DeBell, 2000) and experience fewer problems with diabetes (de Wit et al, 2007) compared with their parents. Little information is available to indicate whether mothers and fathers would be discrepant in similar ways to their adolescents, as few studies include fathers.…”

Section: Consistency Across Constructs In Parent-adolescent Discrepanmentioning

confidence: 99%

Parent–adolescent discrepancies in adolescents’ competence and the balance of adolescent autonomy and adolescent and parent well-being in the context of Type 1 diabetes.

Butner¹,

Berg²,

Osborn³

et al. 2009

Developmental Psychology

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We examined whether intra-family discrepancies in perceptions of the adolescent's competence and independence were associated with autonomy and also well-being for adolescents and parents. The latent discrepancy model was used to examine the ways that mothers and fathers consistently differed from their adolescent across measures of independence and competence regarding type 1 diabetes, a stressful context for families. One-hundred and eighty-five mothers, fathers, and adolescents (M age= 12.5 SD= 1.3) completed measures of the adolescent's independence in completing diabetes tasks, problems with diabetes management, adherence to the medical regimen, measures of wellbeing, and metabolic control. The latent discrepancy model was conducted via structural equation modeling that generated latent discrepancies from the adolescent for mothers and fathers. Both mothers and fathers viewed the adolescent's competence more negatively than did the adolescent. These discrepancies related to more parental encouragement of independence and adolescent autonomy, but also poorer metabolic control, and poorer parental psychosocial well-being. ThePublisher's Disclaimer: The following manuscript is the final accepted manuscript. It has not been subjected to the final copyediting, fact-checking, and proofreading required for formal publication. It is not the definitive, publisher-authenticated version. The American Psychological Association and its Council of Editors disclaim any responsibility or liabilities for errors or omissions of this manuscript version, any version derived from this manuscript by NIH, or other third parties. The published version is available at www.apa.org/journals/dev. results are interpreted within a developmental perspective that views discrepancies as reflecting normative developmental processes of autonomy, but associated with disruptions in well-being in the short term. NIH Public AccessKeywords parent-child relationship; autonomy; adolescence; parent adjustment; type 1 diabetes Adolescence is a time when children and their parents work toward a new type of relationship as adolescents experience socio-emotional and cognitive developments (Steinberg & Silk, 2002). As a consequence, adolescents and their parents frequently view the family (Carlson, Cooper, & Spradling, 1991) and their relationship in discrepant ways (Tein, Roosa, & Michaels, 1994). A key parent-child discrepancy involves views of adolescents' competence and independence (Holmbeck & O'Donnell, 1991), with adolescents perceiving themselves as more competent and independent than do parents. In this paper, we examine discrepancies between the adolescent's and the parent's views of the adolescent's competence and independence with respect to diabetes management. We utilize a developmental and transactional perspective that views the parent-child relationship as a dynamic one where both parent and adolescent develop Kim, Conger, Lorenz, & Elder, 2001). We examine how discrepancies across multiple metrics of independence and competence ...

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Self-report and parent-report of physical and psychosocial well-being in Dutch adolescents with type 1 diabetes in relation to glycemic control

Abstract: Background: To determine physical and psychosocial well-being of adolescents with type 1 diabetes by self-report and parent report and to explore associations with glycemic control and other clinical and socio-demographic characteristics.

Cited by 69 publications

References 35 publications

Quality of life of adolescents with autism spectrum disorders: comparison to adolescents with diabetes

Quality of life of adolescents with autism spectrum disorders: comparison to adolescents with diabetes

Symptoms of Emotional, Behavioral, and Social Difficulties in the Danish Population of Children and Adolescents with Type 1 Diabetes – Results of a National Survey

Parent–adolescent discrepancies in adolescents’ competence and the balance of adolescent autonomy and adolescent and parent well-being in the context of Type 1 diabetes.

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