Self-Management of Older Adolescents with Inflammatory Bowel Disease: A Pilot Study of Behavior and Knowledge as Prelude to Transition

Abstract

Older adolescents with IBD have good recall of medications but not of side effects. Parents remain responsible for the majority of tasks related to clinic visits and the acquisition of medications.

Health Literacy in Adolescents With Sickle Cell Disease

“…In these studies, gender was not significantly associated with confidence in medications and side effects in adolescents with inflammatory bowel disease in patients 16-18 years old, nor was it statistically significantly associated with self-reported medication adherence in HIV infected youth (Fishman et al, 2010;Navarra et al, 2013). There was also no gender difference between males and females with Cystic Fibrosis in knowledge of most areas of reproductive health (Tuchman et al, 2010).…”

“…On the contrary, other studies show no significant difference in age groups with health literacy scores and adherence in adolescent patients with HIV, congenital heart disease, inflammatory bowel syndrome (IBS), diabetes and asthma Fishman, Barendse, Hait, Burdick, & Arnold, 2010;Lok & Menahem, 2012;Navarra, Neu, Toussi, Nelson, & Larson, 2013). It should be noted that Fishman et al (2010) did show a trend in the association of increasing age leading to increasing knowledge and confidence about medication side effects of IBS, but the relationship was not statistically significant. On another interesting note, the literature also shows that older adolescents (mean age= 20.3 years; SD= 3.9) with various diagnoses of psychiatric disorders scored statistically higher from adults with various diagnoses of psychiatric disorders in comprehensive knowledge of psychiatric treatment and showed no significant differences in medication and hospital knowledge; thus, questioning if increasing age truly does lead to increased health knowledge and health literacy (Lurie et al, 2009).…”

“…On the contrary, confidence with medications and side effects of inflammatory bowel disease (IBS) medications is not significantly associated with gender, nor is self-reported medication adherence in HIV infected youth (Fishman et al, 2010;Navarra et al, 2013). In addition, a study looking at sexual reproduction knowledge amongst Cystic Fibrosis patients…”

“…The literature shows that increasing age is associated with increased health literacy in adolescents with asthma and diabetes (Chisolm, Hardin, et al, 2011;Yang et al, 2012). However, other studies show no significant difference in age groups with health literacy scores and treatment adherence in adolescent patients with HIV, congenital heart disease, inflammatory bowel syndrome (IBS), diabetes, and asthma Fishman et al, 2010;Lok & Menahem, 2012;Navarra et al, 2013). In the Fishman et al (2010) article, the relationship between age and increased knowledge and confidence showed a trend similar to what was found in this study; but it was not statistically significant.…”

Connaissances des adolescents atteints de maladie inflammatoire chronique intestinale : résultats d’une enquête transversale multicentrique

“….). Selon les experts, les connaissances sur la maladie s'acquièrent à partir de l'âge de 10-12 ans [4]. C'est une période à risque, et un programme de transition structuré à partir d'une évalua-tion des besoins peut avoir des effets positifs sur le plan médical et psychosocial [5].…”