Self-Management of Health Care Among Youth: Implications for Policies on Transitions of Care

Schuiteman, Sam; Chua, Kao-Ping; Plegue, Melissa; Ilyas, Omar; Chang, Tammy

doi:10.1016/j.jadohealth.2020.01.009

Cited by 10 publications

(10 citation statements)

References 29 publications

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“…Several studies have stated the importance of shared decision-making, education and a written action plan, [37][38][39][40] which could be useful tools to achieve independence. This is important in the process of developing autonomy in self-management and has been confirmed in a study among youths aged 14-24 years, 41 which showed that 41% wanted to be more involved in their care. For adolescents with asthma, it is known that support during the transition process results in better adherence to treatment, but the healthcare transition in AD is less studied.…”

Section: Factors Of Importance For Self-managementmentioning

confidence: 75%

Young adults’ perceptions of living with atopic dermatitis in relation to the concept of self-management: a qualitative study

et al. 2021

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ObjectivesLearning to take control of one’s health is an important part of the transition from adolescence to adulthood. This study aimed to explore young adults’ perceptions of living with atopic dermatitis (AD) in relation to the concept of self-management.DesignA qualitative study with an inductive approach was performed through semistructured interviews (n=15). The interviews were recorded, transcribed verbatim and analysed with systematic text condensation.ParticipantsYoung adults (mean age 23,4 years) with persistent AD in a longitudinal population-based birth cohort. To capture experience of living with persistent AD (preschool/school-age onset) of different severity (mild to severe/very severe), a purposive selection was performed. In total, 15 young adults were included. Persistent AD (preschool/school-age onset) was defined as dry skin in combination with itchy rash of typical localisation in the 12 months preceding the 16-year and the 24-year follow-ups. Severity was self-assessed using the Patient Oriented Eczema Measure.ResultsDespite having experience of AD since childhood, the respondents expressed uncertainty about treatment and how it affected their bodies. Their uncertainties and feelings affected how they used topical corticosteroids. The respondents emphasised that they perceived availability of healthcare and knowledge about treatment of AD among healthcare providers to be limited. The participants did not state any experiences of support to self-management from healthcare, which affect young adults’ possibilities to take full control of their AD care.ConclusionsYoung adults with preschool/school-age onset of AD are unsure how to treat and manage the disease. One explanation may be insufficient transition process.

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Section: Factors Of Importance For Self-managementmentioning

confidence: 75%

Young adults’ perceptions of living with atopic dermatitis in relation to the concept of self-management: a qualitative study

et al. 2021

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“…As a conclusion from our findings, we suggest that adolescents should be empowered in their health care autonomy [ 10 ] by providing youth-friendly materials that ensure adolescents feel informed and able to make important health decisions for themselves. More efforts are required to improve confidence and willingness to vaccinate adolescents with lower educational achievements, those with migrant backgrounds and females.…”

Section: Discussionmentioning

confidence: 85%

Education level and COVID-19 vaccination willingness in adolescents

Humer

Jesser

Plener

et al. 2021

Eur Child Adolesc Psychiatry

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Vaccination is essential to control the COVID-19 pandemic. High vaccination willingness is a key for successful vaccination programs. This study assessed attitudes toward vaccination in Austrian adolescents and determined whether there are differences in vaccination readiness regarding education status, gender and migration background. Two cross-sectional online surveys were conducted from March to July 2021 in apprentices and high school students. Willingness to receive COVID-19 vaccination was rated on a 5-point scale. In total, n = 2006 ( n = 1442 apprentices and n = 564 high school students) completed the survey. Willingness to receive COVID-19 vaccination was higher in students compared to apprentices ( p < 0.001). Furthermore, migration background ( p = 0.023) and female gender ( p = 0.001) were associated with lower vaccination willingness. In conclusion, more efforts are required to improve confidence and willingness to vaccinate adolescents with lower educational levels, those with migrant backgrounds and females.

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“…Similar challenges may exist for COVID-19 vaccination in light of relatively lower rates of serious infections among younger patients. Many young adults also feel ill-prepared to navigate the health care system and may avoid care as a result [12]. Coordinated efforts beyond education will be necessary to ensure youth feel knowledgable and empowered to make appropriate decisions regarding vaccination, especially because this may be the first important medical decision they will be involved in or make for themselves.…”

Section: Discussionmentioning

confidence: 99%

National Study of Youth Opinions on Vaccination for COVID-19 in the U.S.

Brandt

Rosenberg

Waselewski

et al. 2021

Journal of Adolescent Health

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Purpose This study aimed to understand the potential barriers and facilitators to COVID-19 vaccination among youth. Methods Open-ended questions regarding COVID-19 vaccination were posed to a national cohort of 14- to 24-year-olds (October 30, 2020). Responses were coded through qualitative thematic analysis. Multivariable logistic regression tested the association of demographic characteristics with vaccination unwillingness. Results Among 911 respondents (response rate = 79.4%), 75.9% reported willingness to receive a COVID-19 vaccine, 42.7% had unconditional willingness, and 33.3% were conditionally willing, of which the majority (80.7%) were willing if experts deemed vaccination safe and recommended. Preferred vaccine information sources were medical organizations (42.3%; CDC, WHO) and health care professionals (31.7%). Frequent concerns with vaccination included side effects (36.2%) and efficacy (20.1%). Race predicted vaccination unwillingness (Black: odds ratio = 3.31; and Asian: odds ratio = .46, compared with white, p < .001). Conclusion Most youth in our national sample were willing to receive a COVID-19 vaccine when they believe it is safe and recommended. Public health experts and organizations must generate youth-centered materials that directly address their vaccination concerns.

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Self-Management of Health Care Among Youth: Implications for Policies on Transitions of Care

Cited by 10 publications

References 29 publications

Young adults’ perceptions of living with atopic dermatitis in relation to the concept of self-management: a qualitative study

Young adults’ perceptions of living with atopic dermatitis in relation to the concept of self-management: a qualitative study

Education level and COVID-19 vaccination willingness in adolescents

National Study of Youth Opinions on Vaccination for COVID-19 in the U.S.

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