Self-management interventions for people living with human immunodeficiency virus: A scoping review

Bernardin, Kaitlyn N.; Toews, Dorothea N.; Restall, Gayle; Vuongphan, Lynn

doi:10.1177/0008417413512792

Cited by 32 publications

(34 citation statements)

References 58 publications

(107 reference statements)

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“…Positive self-management can result in better physical and emotional health, and health knowledge and behaviour among people living with HIV (92). Members of the CIHRRC collaborative have made considerable strides examining the role of self-management interventions specific to people living with HIV (92). Given the barriers to accessing formalized rehabilitation services, strategies promoting resilience and selfmanagement have an increasing role for empowering individuals to maximize their own health and well-being while aging with HIV (85,93).…”

Section: Discussionmentioning

confidence: 99%

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

O’Brien

Ibáñez-Carrasco²,

Solomon³

et al. 2020

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Background: People living with HIV are living longer, and can experience physical, mental and social health challenges associated with aging and multimorbidity. Rehabilitation is well positioned to address disability and maximize healthy aging. An international collaborative network, called the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC), works to guide this emerging field. In this article, we report findings from CIHRRC’s aim to identify emerging research priorities in HIV, aging and rehabilitation from the perspectives of people living with HIV, clinicians, researchers, representatives from community organizations and policy stakeholders. Methods: We conducted a multi-stakeholder multi-method international consultation with people living with HIV, researchers, clinicians and representatives of community-based organizations to identify research priorities in HIV, aging and rehabilitation. Stakeholders identified research priorities during a one-day International Forum comprised of presentations and facilitated discussion. We collated and analyzed data using content analytical techniques, resulting in a framework of research priorities. Results: Sixty-nine stakeholders from countries including Canada (n=62;90%), the United Kingdom (n=5;7%), United States (n=1;1%) and Australia (n=1;1%) attended the International Forum on HIV, Aging and Rehabilitation. Stakeholders represented community-based organizations (n=20;29%), academic institutions (n=18;26%), community or institutional healthcare organizations (n=11;16%), research or knowledge production organizations (n=10;14%), and organizations representing government or industry (n=10;14%). The Framework of Research Priorities in HIV, Aging and Rehabilitation includes seven research priorities: 1) nature, extent and impact of disability, concurrent health conditions and chronic inflammation with HIV; 2) prevalence, severity and impact of frailty; 3) community and social participation aging with HIV; 4) strategies for chronic disease management and healthy aging with HIV; 5) facilitators and barriers to access to and engagement in, rehabilitation; 6) effectiveness of rehabilitation interventions for healthy aging with HIV; and 7) advancing development and use of patient reported outcome measures in HIV and aging. The Framework highlights methodological considerations to approach the priorities and the importance of knowledge translation and exchange to apply research knowledge into practice, programs and policy. Conclusions: These priorities offer a foundation for collaboration among international and multidisciplinary teams to advance the field of HIV, aging and rehabilitation in order to promote healthy aging with HIV.

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Section: Discussionmentioning

confidence: 99%

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

O’Brien

Ibáñez-Carrasco²,

Solomon³

et al. 2020

Preprint

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“…Quality of life and emotional well-being significantly improved in patients who completed post-intervention measurements. The improvement compares positively with improved quality of life following pulmonary and cardiac rehabilitation (Davies et al, 2010;Lacasse et al, 2006) and favorable outcomes observed in HIV self-management programmes (Bernardin, Toews, Restall, & Vuongphan, 2013;Millard, Elliott, & Girdler, 2013). The improvement in emotional well-being could relate to the combined exercise and selfmanagement approach, or benefits attributed to participating in group-based activities e.g.…”

Section: Adherence and Attendancementioning

confidence: 98%

Evaluation of a physiotherapy-led group rehabilitation intervention for adults living with HIV: referrals, adherence and outcomes

2016

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HIV is characterised by episodes of disability. We report a novel, hospital outpatient rehabilitation intervention, combining physiotherapy-led group exercise and education for people living with HIV (PLWH). This observational study evaluated routine delivery of the 10-week intervention in terms of referral patterns, rehabilitation goals, intervention adherence and change in patient outcomes. Measurements at baseline & 10 weeks included locomotor performance (6 minute walk test; 6MWT), flexibility, upper and lower limb strength and health related quality of life (HRQOL). Adherence was defined as attending ≥8/20 sessions, with reasons for non-adherence identified in retrospective telephone interviews. Goal Attainment Scale measured progression to individual goals. Total 92 referrals were mostly for musculoskeletal (25.0%), oncological (19.6%) or cardio-metabolic (18.5%) reasons, and mostly male (81.5%), Caucasian (70.7%) and older (mean 51.5 years). Common themed rehabilitation goals included improving body image, participation, mobility, health/fitness and function. Adherence was achieved by 42 (46%) patients, with open access utilised by 34 patients, returning (n = 19) or restarting when non-adherent (n = 15). Post-intervention measurements collected for 37 (40%) patients demonstrated improvements in 6MWT distance (p < .001), flexibility (p < .001), strength in triceps (p < .001), biceps (p < .001), Lattisimus Dorsi (p < .001), shoulder-press (p < .001), chest-press (p < 0.001), and leg-press (p < 0.001). HRQOL improved in total score (p < .001), physical (p < .001), emotional (p < .001) and functional (p = .065) subscales. Extent of goal achievement demonstrated 83% of goals was "expected" (n = 57), "somewhat more" (n = 31) or "much more" (n = 14). Reasons for non-adherence from 21 telephone interviews identified physical health challenges, individual factors and time or location issues. This novel rehabilitation approach for PLWH improved function, HRQOL and goal attainment among those completing the intervention. Sub-optimal adherence likely relates to episodic disability.

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“…The current state of research with PLWH has shown an increase in self-management interventions that help when coping with daily life (Bernardin, Toews, Restall, & Vuongphan, 2013). In their review of HIV self-management interventions, Bernardin et al (2013) concluded that the collaborations between health providers and clients promoted self-care, interpersonal and cognitive skills, knowledge, positive attitudes, future planning, and role management; outcomes included well being, health and illness management, and use of health services.…”

mentioning

confidence: 99%

“…In their review of HIV self-management interventions, Bernardin et al (2013) concluded that the collaborations between health providers and clients promoted self-care, interpersonal and cognitive skills, knowledge, positive attitudes, future planning, and role management; outcomes included well being, health and illness management, and use of health services. Group-based interventions also encouraged social support from program leaders and other participants.…”

mentioning

confidence: 99%

“…Group-based interventions also encouraged social support from program leaders and other participants. In addition, self-management interventions have been shown to improve perceptions of sleep quality, decrease stress, and ameliorate problems with physical functioning and psychological coping (Bernardin et al, 2013). HIV-related fatigue has been the most frequent complaint by PLWH and was predominately an outcome of stressful life events (Barroso, Leserman, Harmon, Hammill, & Pence, 2015); furthermore, fatigue in HIV has impaired both basic and instrumental daily activities, especially activities related to work, family, and social life (Barroso, Harmon, Madison, & Pence (2014).…”

mentioning

confidence: 99%

See 1 more Smart Citation

The Daily Lives of People With HIV Infection: A Qualitative Study of the Control Group in an Expressive Writing Intervention

Metaweh¹,

Ironson²,

Barroso³

2016

Journal of the Association of Nurses in AIDS Care

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Emotional disclosure is an expressive writing technique used in psychotherapy to process traumatic and stressful life experiences. While emotional disclosure interventions frequently use control groups, there are few qualitative analyses of these control groups. Our study's purpose was to analyze the control essays written by HIV-infected informants about their daily activities in an augmented written emotional disclosure intervention. Latent and manifest qualitative content analyses revealed prevalent contextual themes within the data. The emergent themes were socioeconomic status (SES), self-care, religiosity/spirituality, and social support. Emotional disclosure control subjects contributed substantial findings in terms of SES, self-care, resiliency, religiosity/spirituality, and social support and altruism.

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Self-management interventions for people living with human immunodeficiency virus: A scoping review

Abstract: Self-management interventions are a promising approach for occupational therapists to enable PHAs' occupational performance goals.

Cited by 32 publications

References 58 publications

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

Evaluation of a physiotherapy-led group rehabilitation intervention for adults living with HIV: referrals, adherence and outcomes

The Daily Lives of People With HIV Infection: A Qualitative Study of the Control Group in an Expressive Writing Intervention

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