Self-Concept of Children and Adolescents with Cleft Lip and/or Palate

Abstract

The self-concept of 105 children (8 to 11 years) and adolescents (12 to 18 years) with cleft lip and/or palate (CLP) was studied using the Piers-Harris Children's Self-Concept Scale and selected demographic and medical variables. Results indicated that most (98%) of children had average or above average self-concept scores. Further analysis, however, demonstrated an interaction between age and gender: adolescent girls experienced a more negative self-concept in comparison to younger girls and adolescent boys experienced a more positive self-concept in comparison to younger boys. In addition, popularity cluster scores for all children were below the mean for the normed population. Because children with CLP have additional difficulties (i.e., facial disfigurement, speech and language deficits, multiple surgeries), professionals should intercede to prevent or interrupt negative psychosocial outcomes, particularly for adolescent girls.

An Evaluation of Health-Related Quality of Life (HRQoL) in a Group of 4–7 Year-old Children with Cleft Lip and Palate

“…Verschiedene Studien haben die HRQoL von Erwachsenen mit LKGS-Spalten [21,34,35] sowie von Jugendlichen [39,43] und Kindern [4,22] untersucht. Nur in wenigen Studien wurde versucht, die HRQoL von Vorschulkindern oder deren Familien zu untersuchen [18,44].…”

“…Das deutet an, dass die sozialen Beeinträchtigungen, die durch die LKGS-Spalten verursacht werden, anderen Erkrankungen, die die faziale Attraktivität beeinflussen, ähn-lich sind. Alter und Geschlecht können die Selbsteinschät-zung von Kindern und Jugendlichen mit LKGS-Spalten ebenfalls beeinflussen [22]. Turner et al [40] untersuchten die psychologischen Auswirkungen und die Einstellung gegenüber der Behandlung von 15-und 20-jährigen Patienten mit LKGS-Spalten und deren Eltern.…”

“…Research has shown that patients with CLP elicit a negative response from people in their surroundings [38], indicating that the social disadvantages resulting from CLP resemble those associated with other health conditions affecting facial attractiveness. Age and gender can also affect the selfimage of children and adolescents with cleft lip and/or palate [22]. Turner et al [40] examined psychological outcomes and attitudes to treatment in a group of fifteen-and twenty-yearolds with CLP and their parents.…”

Fentes labio-palatines : qualité de vie (VSP-A) patients et parents. À propos de 51 familles

“…Ils peuvent avoir une appréciation négative de leur apparence faciale (nez, lèvre, bouche, profil) [8,9,12,17,19,32], sans pour autant avoir une moins bonne image d'eux-mêmes [12]. Les patientes opérées sont souvent plus sensibles à leur apparence que les garçons [32,33]. L'âge a aussi un rôle dans le vécu de l'apparence.…”

“…Alors que chez les garçons, ce sont les petits garçons qui ont l'image d'eux-mêmes plus négative que les adolescents. [33] Les questions concernant la vie sentimentale n'ont pas été retenues pour l'analyse par manque de réponses. Ceci souligne le côté tabou que peut avoir la vie sentimentale.…”