An Evaluation of Health-Related Quality of Life (HRQoL) in a Group of 4–7 Year-old Children with Cleft Lip and Palate

Abstract

This study demonstrated that 4 to 7-year-old children with CLP do not appear to experience major psychosocial problems when compared with their non-CLP peers.

Health-Related Quality of Life in Children with Hemifacial Microsomia

“…These findings are congruent with results from previous studies examining the HRQOL of preschoolers with and without cleft lip and palate. 31 The only child case-control difference that approached significance in our study was related to poorer school attendance among cases. Such differences are expected, given that children with HFM typically receive multiple surgical and other interventions to improve cosmesis.…”

Children with orofacial clefts : dental caries and health-related quality of life

“…Our results confirmed findings in earlier studies that children with CL/P have as good and similar HRQoL as children without a cleft (Sagheri, Ravens-Sieberer et al 2009, Tannure, Soares et al 2013, Feragen and Stock 2014. Individuals with CL/P are well adjusted and able to cope with the special challenges they encounter living with a cleft (Marcusson, Paulin et al 2002, Locker, Jokovic et al 2005.…”

“…Lower, similar and higher HRQoL have been reported in children and adults with CL/P compared to non-cleft controls (Marcusson, Paulin et al 2002, Kramer, Gruber et al 2009, Sagheri, Ravens-Sieberer et al 2009, Mani, Carlsson et al 2010, Tannure, Soares et al 2013. Similar HRQoL have been reported in 8-12-year-old German children with CL/P measured with KINDL, a generic HRQoL instrument for children and adolescents, and in 5-12-year-old Brazilian children with CL/P versus non-cleft controls measuring QoL with Autoquestionnaire Qualitée de Vie Enfant Image (AUQEI), versus noncleft controls (Kramer, Gruber et al 2009).…”

“…Also comparable HRQoL have been presented in five of six subscales of the SF-36 (The Short Form 36 Health Survey), while lower score was presented in the subscale mental health, between Swedish adults (20-47-year-olds) with unilateral cleft lip and palate in relation to norm data (Mani, Carlsson et al 2010). Lower total HRQoL, except for higher score in the dimension "self-esteem", measured with KINDL have been shown in 4-7-year-old German children with CL/P compared to the normal population (Sagheri, Ravens-Sieberer et al 2009). Also lower HRQoL have been reported in Swedish adults with cleft lip and palate in comparison to controls (Marcusson, Paulin et al 2002).…”

An Analysis of the Agreement between Child Self Reports and Parental Proxy Reports of the Health Related Quality of Life of 4-7 Year-Old Children with Corrosive Esophagus Burn

“…Patients' own perceptions are of vital importance in the evaluation of (HRQOL). Therefore, it is deliberately suggested to use subjective scales in order to enable the patients to evaluate their own medical condition (9).…”