Self-care deficits in women with leg ulcers and sickle cell disease

Lacerda, Flávia Karine Leal; Ferreira, Sílvia; Nascimento, Enilda Rosendo do; Costa, Deise Oliveira; Cordeiro, Rosa Cândida

doi:10.1590/0034-7167-2018-0005

Cited by 11 publications

(3 citation statements)

References 7 publications

(10 reference statements)

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“…These changes may justify the fact that the majority (70.6%) of the study participants did not have partners. This characteristic was also found in a Brazilian study carried out with 14 women aged between 23 and 61 years old who had leg ulcers, and 85% also had no partners 17 .…”

Section: Discussionsupporting

confidence: 69%

Profile of Women With Leg Ulcers Due to Sickle Cell Disease

Andrade

Spira

Borges

et al. 2021

ESTIMA, Braz. J. Enterostomal Ther.

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Objective: to characterize the profile of women with leg ulcers resulting from sickle cell disease treated at a public health institution in Brazil. Method: historical cohort study conducted in the outpatient sector with a sample of women with sickle cell disease and leg ulcer, followed from 1998 to 2014. The data were extracted from the medical record and included sociodemographic, clinical and ulcer-related variables, and underwent descriptive statistical analysis. Results: of the 17 women, 64.7% were cured, 58.8% were aged between 30 and 39 years, 64.7% declared themselves brown, 70.6% were without partners, 41.2% had incomplete elementary education, 52, 9% had an income of 2 to 3 minimum wages, 70.6% were eutrophic and 82.4% used vitamin supplements. Women had a total of 29 ulcers, 52.9% had a single ulcer, 41.4% were located in the malleolar region, 55.17% were between 2 and 36 months, all classified as stage 3. The treatment was with coverings and Unna’s boot. Conclusion: the women received care from specialist nurses and most were cured with up to eight months of follow-up, which required a nursing consultation, including clinical evaluation, topical treatment and application of compression therapy.

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Section: Discussionsupporting

confidence: 69%

Profile of Women With Leg Ulcers Due to Sickle Cell Disease

Andrade

Spira

Borges

et al. 2021

ESTIMA, Braz. J. Enterostomal Ther.

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“…Essas alterações podem justificar o fato da maioria (70,6%) das participantes do estudo não ter parceiros. Essa característica também foi encontrada em estudo brasileiro realizado com 14 mulheres com idade entre 23 e 61 anos que apresentavam úlcera da perna, sendo que 85% também não tinham parceiros 17 .…”

Section: Discussionunclassified

Perfil De Mulheres Com Úlceras Da Perna Decorrentes De Doença Falciforme

Andrade

Spira

Gomes

et al. 2021

ESTIMA, Braz. J. Enterostomal Ther.

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Objetivo:caracterizar o perfil de mulheres com úlceras da perna decorrentes da doença falciforme atendidas em uma instituição pública de saúde do Brasil. Método: estudo de coorte histórica realizado no setor ambulatorial com amostra de mulheres com doença falciforme e úlcera da perna, acompanhadas de 1998 a 2014. Os dados foram extraídos do prontuário e contemplaram variáveis sociodemográficas, clínicas e relacionadas à úlcera, e passaram por análise estatística descritiva. Resultados: das 17 mulheres, 64,7% obtiveram cura, 58,8% tinham idade entre 30 e 39 anos, 64,7% se autodeclaram pardas, 70,6% estavam sem parceiros, 41,2% possuíam ensino fundamental incompleto, 52,9% tinham renda de 2 a 3 salários mínimos, 70,6% eram eutróficas e 82,4% faziam uso de suplementos vitamínicos. As mulheres apresentaram o total de 29 úlceras, 52,9% tinham úlcera única, 41,4% localizadas na região maleolar, 55,17% com existência entre 2 e 36 meses, todas classificadas em estágio 3. O tratamento foi com coberturas e bota de Unna. Conclusão: as mulheres receberam cuidados de enfermeiros especialistas e a maioria obteve a cura com até oito meses de acompanhamento que demandou a consulta de enfermagem, contemplando a avaliação clínica, o tratamento tópico e aplicação da terapia de compressão.

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“…19,39 Experiencing pain and restricted mobility can cause impairments in everyday life activities, which is why patients with chronic wounds require increased tangible support. Additionally, feeling shame due to wound odour and exudate can lead to rejection or inability to socially participate, [40][41][42] which increases the demand for emotional support. Resulting from this increased need for social support, being around a person with a chronic wound could stimulate to increase in the amount of support family and friends are willing to provide.…”

Section: Mspssmentioning

confidence: 99%

How does a chronic wound change a patient's social life? A European survey on social support and social participation

Klein

Kozon²,

Barysch

et al. 2023

International Wound Journal

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Chronic wounds can severely limit patient's social life. This cross‐sectional study investigated quantitatively social support of patients with chronic wounds, its association with health‐related quality of life as well as qualitatively changes in social participation of these patients. Overall, 263 patients from seven countries participated. The most frequent wound class was leg ulcer (49.2%). Results revealed generally high levels of social support (mean global score: 5.5) as measured with the Multidimensional Scale of Perceived Social Support. However, individuals differed considerably (range 1.0–7.0). All dimensions of social support differed by patients' family and living situations (p < 0.001 to p = 0.040) and were positively correlated with generic health‐related quality of life (r = 0.136–0.172). Having children, living with others and being in a relationship were significant predictors of having higher global social support. Patients reported great support from family members. Many participants reported no changes in relationships with friends. Wound care managers took an important role and provided additional emotional support. Patients reported a range of discontinued activities. Despite the high overall level of social support, inter‐individual differences should be acknowledged. The importance of family carers should be acknowledged to be able to reduce caregiver burden and to ensure high‐qualitative wound care.

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Self-care deficits in women with leg ulcers and sickle cell disease

Cited by 11 publications

References 7 publications

Profile of Women With Leg Ulcers Due to Sickle Cell Disease

Profile of Women With Leg Ulcers Due to Sickle Cell Disease

Perfil De Mulheres Com Úlceras Da Perna Decorrentes De Doença Falciforme

How does a chronic wound change a patient's social life? A European survey on social support and social participation

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