Seeing the Invisible Children and Young People Affected by Disability

Banks, Pauline; Cogan, Nicola; Deeley, Susan J.; Hill, Malcolm; Riddell, Sheila; Tisdall, E. Kay M.

doi:10.1080/09687590120083967

Cited by 52 publications

(56 citation statements)

References 17 publications

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“…Estimates in 1996 were that 50 000 young carers existed in the United Kingdom (UK) (Aldridge & Becker, 1999 It is difficult to estimate exactly how many young caregivers exist because they are unidentified in systems that might traditionally identify social problems, such as health, welfare, and educational agencies (Banks et al, 2001;Pakenham, Chiu, Bursnall, & Cannon, 2007;Thomas et al, 2003). As well, some children may be embarrassed or insecure about their home situation and may want to keep it hidden.…”

Section: Definition Of a Young Caregivermentioning

confidence: 99%

“…As Banks et al (2001) suggest children's needs may be better addressed through services which empower their parents. In this paradigm, the "problem" of young caregivers and children affected by disability is a result of the inequality experienced by people with disabilities in our current society (Banks et al, 2001). Thus, the needs of the parent with a disability must be met, whilst ensuring support is also given to other family members.…”

Section: Daughters Of Mothers With Ms Should Try Their Best To Educatmentioning

confidence: 99%

“…Numerous researchers have examined the experiences of young caregivers (e.g., Aldridge & Becker, 1999;Antoun & Frank, 2003;Arnaud, 1959;Banks et al, 2001;De Judicibus & McCabe, 2004;Frank, 2002;Lackey & Gates, 2001;Olsen, 1996;Packenham & Bursnall, 2006;Power, 1977;Thomas et al, 2003;Warren, 2007), but few have specifically examined the intersection of their experiences as caregivers of mothers with MS and play. Given the importance of play, the purpose of this study was to describe how daughters who are caregivers to their mothers with multiple sclerosis experienced play.…”

Section: Purpose Of Studymentioning

confidence: 99%

“…While the FST stresses the importance of a whole-family approach, it is also important to keep in mind that children are individuals and should be treated as such. They should be seen as independent and competent people, not merely engulfed within their family as passive recipients of adult influences (Banks et al, 2001). Future research on children, according to Banks et al (2001) should consider the following:…”

Section: Daughters Of Mothers With Ms Should Try Their Best To Educatmentioning

confidence: 99%

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Daughters of Mothers With Multiple Sclerosis: Their Experiences of Play

Jonzon¹,

Goodwin²

2012

Adapted Physical Activity Quarterly

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A woman who is my unending inspiration of strength and courage. ABSTRACTThis study described the play experiences of daughters who were caregivers to their mothers with multiple sclerosis (MS). The experiences of four CanadianCaucasian women aged 19-26 were captured using phenomenological methods of individual and focus group interviews, field notes, and artefacts. Three themes with supporting sub-themes emerged: (a) being a good daughter, (b) blurred relationship boundaries, and (c) encumbered play. Caregiving for their mothers was part of being a good daughter. Excessive caring duties changed their roles from being daughters to caregivers and contributed to feelings of maturity over peers. Their mother-daughter relationship boundaries were blurred and the participants wished to spend more time as daughters. Play, although sometimes limited, was highly valued and provided an escape from caregiving. Using family systems theory to interpret the findings, it was concluded that support for families living with MS would release children from caregiving duties so rounded childhood play could be experienced. ACKNOWLEDGEMENTS

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Section: Definition Of a Young Caregivermentioning

confidence: 99%

Section: Daughters Of Mothers With Ms Should Try Their Best To Educatmentioning

confidence: 99%

Section: Purpose Of Studymentioning

confidence: 99%

Section: Daughters Of Mothers With Ms Should Try Their Best To Educatmentioning

confidence: 99%

See 2 more Smart Citations

Daughters of Mothers With Multiple Sclerosis: Their Experiences of Play

Jonzon¹,

Goodwin²

2012

Adapted Physical Activity Quarterly

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“…Findings from the first conversation and the talking circle challenge stereotypes of parenting inadequacy (Banks et al, 2001) that currently exist regarding parents of young carers. Too often in the existing literature, young caring is seen as unidirectional, with the young person giving but often not getting support (Charles, Stainton & Marshall, & 2012).…”

Section: Discussionmentioning

confidence: 98%

How Care Is Negotiated Between a Young Carer and a Parent Experiencing Mental Illness and Addiction

Aeyelts

Marshall

Charles

et al. 2016

ijcyfs

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This study explores the negotiation of care between a young carer and her parent experiencing mental illness and addiction. The bulk of research on young carers explores children's caring work and the associated risks for carrying out caring work. Usually overlooked are the highly complex relationships between disabled or ill parents and their children who care for them. Using contextual action theory to frame this case study, we examine how a young carer and her mother negotiated care across a period of several months.

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The caring child: an evaluative case study of the Cornwall Young Carers project

Butler

Astbury

2005

Children & Society

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This paper reports on an evaluation of the Cornwall Young Carers project (jointly funded by social services and the Cornwall and Isles of Scilly Health Action Zone), conducted during the period 2000–2002. A diverse range of methodological approaches were adopted (comparative national statistics, local pilot study, monthly and quarterly data capturing instruments, and a service user focus group) in monitoring and evaluating the project's high level statements/outcomes. Four evaluative themes are discussed, namely: identification of young carers; assessment of young carers' needs; direct service provision; and partnership working. Recommendations and action steps are proposed with a view of informing future planning and service delivery, as well as developing an ethos of integrating evaluation into everyday practice for the Cornwall Young Carers Project. Overall, the project has made significant progress in meeting and exceeding its original targets. The fact that the project has been able to identify 202 new young carers over this period is a key milestone in demonstrating the critical need for the project's services. It is suggested that existing referrals are only the ‘tip of the iceberg’ for work with young carers in Cornwall.

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Seeing the Invisible Children and Young People Affected by Disability

Cited by 52 publications

References 17 publications

Daughters of Mothers With Multiple Sclerosis: Their Experiences of Play

Daughters of Mothers With Multiple Sclerosis: Their Experiences of Play

How Care Is Negotiated Between a Young Carer and a Parent Experiencing Mental Illness and Addiction

The caring child: an evaluative case study of the Cornwall Young Carers project

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