Secondary health conditions experienced by people with spinal cord injury within community living: Implications for a <scp>N</scp>ational <scp>D</scp>isability <scp>I</scp>nsurance <scp>S</scp>cheme

Callaway, Libby; Barclay, Linda; McDonald, Rachael; Farnworth, Louise; Casey, Jackie

doi:10.1111/1440-1630.12206

Cited by 35 publications

(53 citation statements)

References 37 publications

(72 reference statements)

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“…Such considerations are important for NDIS planners and health professionals, including occupational therapists, within Scheme implementation (Callaway et al . ).…”

Section: Discussionmentioning

confidence: 97%

Community integration outcomes of people with spinal cord injury and multiple matched controls: A pilot study

et al. 2016

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“…Such considerations are important for NDIS planners and health professionals, including occupational therapists, within Scheme implementation (Callaway et al . ).…”

Section: Discussionmentioning

confidence: 97%

Community integration outcomes of people with spinal cord injury and multiple matched controls: A pilot study

et al. 2016

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“…This was a conducive finding in a study by Callaway et al (2015) demonstrating that individuals living with a spinal cord injury (SCI) generates a significant effect on the individual's self-image and has a negative effect on self-esteem. This suggests that the presence of a pressure ulcer in a patient with a SCI does not directly negatively affect self-esteem.…”

Section: Pressure Ulcers and Quality Of Lifementioning

confidence: 93%

The impact of an educational intervention on home support workers' ability to detect early pressure ulcer damage

Clarke¹,

Moore

Patton

et al. 2017

Br J Community Nurs

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Objective: To investigate the impact of an educational intervention on home support workers' ability to detect early pressure ulcer damage. Method: A repeated measure design was employed to quantify the effectiveness of an educational intervention, consisting of one pre-test and two post-tests. Results: Education was provided to home support workers and this was followed by an assessment of their ability to correctly classify 20 photographs detailing varying stages of skin damage severity. At the baseline (pre-education), 58% of the photographs were classified correctly. At post-test 1, 55% of the photographs were classified correctly. In post-test 2 this increased to 58%, achieving the original baseline scores. There was a moderate negative relationship between pre-training and post-test 2 scores (r=-0.44; n=27; p=0.02). Conclusions: The educational intervention has been shown not to have a statistically significantly positive effect on home support workers' ability to detect early pressure ulcer damage. The moderate negative relationship between pre-training and post-test 2 scores concur with the aforementioned qualitative findings, and similarly indicate behaviour associated with individuals experiencing difficulty comprehending new health terms.

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“…The official NDIS AT strategy was released in October 2015 (NDIS Launch Transition Agency (National Disability Insurance Agency), 2015). The full impact of NDIS policies on AT funding and service delivery, and long-term management of SCI, are still largely unknown (Callaway, Barclay, McDonald, Farnworth, & Casey, 2015). NDIS policies and funding arrangements, as they relate to adults with SCI and AT service delivery, are therefore not directly addressed as part of this thesis.…”

Section: Delimitationsmentioning

confidence: 99%

“…Differences in service delivery processes across government, non-government, and private AT providers should also be explored. Mapping service delivery is particularly timely given the rollout of the National Disability Insurance Scheme (NDIS), and its potential to impact on funding of services for adults with SCI (Callaway et al, 2015). Three approaches that may prove useful for exploring service delivery are process mapping (for example of patient journeys) (Santos et al, 2013;Trebble, Hansi, Hydes, Smith, & Baker, 2010), time and motion studies of activities undertaken by different stakeholders (Sprigle & De l'aune, 2013;Sprigle, Lenker, & Searcy, 2012), and qualitative studies with MSC users and caregivers Mortenson et al, 2012;Mortenson & Miller, 2008).…”

Section: Limitations and Future Directionsmentioning

confidence: 99%

“…Three approaches that may prove useful for exploring service delivery are process mapping (for example of patient journeys) (Santos et al, 2013;Trebble, Hansi, Hydes, Smith, & Baker, 2010), time and motion studies of activities undertaken by different stakeholders (Sprigle & De l'aune, 2013;Sprigle, Lenker, & Searcy, 2012), and qualitative studies with MSC users and caregivers Mortenson et al, 2012;Mortenson & Miller, 2008). Such studies have potential to inform policy development during crucial initial phases of the NDIS rollout (Callaway et al, 2015;Layton et al, 2015).…”

Section: Limitations and Future Directionsmentioning

confidence: 99%

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"It's more than just a wheelchair that gets wet …": Usability of mobile shower commodes for adults with spinal cord injury

Friesen¹

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Adults with spinal cord injury (SCI) use mobile shower commodes (MSCs) to facilitate intimate hygiene, mobility, and neurogenic bowel management. This thesis explored the design, use, and usability of MSCs for this population. The primary original contribution of the thesis was the development and preliminary psychometric assessment of a questionnaire assessing MSC usability.A standardised development methodology, drawn from literature on health measurement scales, was used. Indicators of MSC usability were derived from a comprehensive review of the literature, and interviews with seven Australian adults with SCI and eight occupational therapists experienced in SCI rehabilitation. The questionnaire was drafted using consensus approaches. It subsequently interval] (n = 27); and strong, positive correlations with two established instruments. Usability of MSCs was then described through a retrospective analysis of these data. Overall, the majority of participants rated MSC usability as high to very high across the eMAST 1.0's two subscales.However, over 20% of participants rated usability as very low to low for portability, stability, seat cushioning, and lower leg supports. Analysis of item-level indicators and qualitative comments highlighted specific areas of reduced usability, and identified MSC stability, maintenance and durability, and seating as areas requiring urgent research attention. Findings suggested that by capturing user-identified criteria, the eMAST 1.0 could facilitate comparison and discrimination between MSC designs during refinement and selection. Indicators could also be tracked, allowing item-level usability changes to be detected over time. These findings require validation with larger samples of adults with SCI. Studies involving attendant caregivers, and stakeholders involved in MSC development and service delivery, are also needed. Such approaches could inform further development of the eMAST 1.0, and in turn impact the design, performance, and usability of MSCs in this important area of SCI management.iii Declaration by authorThis thesis is composed of my original work, and contains no material previously published or written by another person except where due reference has been made in the text. I have clearly stated the contribution by others to jointly-authored works that I have included in my thesis. Analysis and interpretation of the data (5%)Reviewed drafts of writing (50%) xii Friesen, E. L., . Assistive technology devices for toileting and showering used in SCI rehabilitation-a comment on terminology.

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Secondary health conditions experienced by people with spinal cord injury within community living: Implications for a National Disability Insurance Scheme

Cited by 35 publications

References 37 publications

Community integration outcomes of people with spinal cord injury and multiple matched controls: A pilot study

Community integration outcomes of people with spinal cord injury and multiple matched controls: A pilot study

The impact of an educational intervention on home support workers' ability to detect early pressure ulcer damage

"It's more than just a wheelchair that gets wet …": Usability of mobile shower commodes for adults with spinal cord injury

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