Community integration outcomes of people with spinal cord injury and multiple matched controls: A pilot study

Callaway, Libby; Enticott, Joanne; Farnworth, Louise; McDonald, Rachael; Migliorini, Christine; Willer, Barry

doi:10.1111/1440-1630.12350

Cited by 17 publications

(11 citation statements)

References 34 publications

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“…The current study found that community integration was a positive factor associated with physical (30) and WHOQOL-DIS module QoL. However, literature review found that the CIQ score of Chinese adults with cSCI was lower than that of community-dwelling adults with SCI in Australia (41) and Bangladesh (42). More active interventions are needed to improve community integration among individuals with cSCI (43).…”

Section: Discussionmentioning

confidence: 61%

Quality of life of adults with chronic spinal cord injury in mainland china: A cross-sectional study

Chang

Xie²,

Zhang³

et al. 2020

J Rehabil Med

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Quality of life is an important outcome in spinal cord injury rehabilitation practice and research. This study described the quality of life profile of 247 adults with c hronic spinal cord injury in mainland China. The quality of life of the participants was lower than that of the global reference population, as was disability-related quality of life compared with the Korean data. Duration of spinal cord injury was a positive factor in the physical health of adults with spinal cord injury, while anxiety and depression were negative factors associated with quality of life in the same population. Community integration improvement was correlated with better physical and disability-related quality of life. To improve quality of life, rehabilitation schemes may include interventions to promote mental health and community integration among patients with chronic spinal cord injury. Objective: To evaluate the quality of life of patients with chronic spinal cord injury in mainland China. Design: Cross-sectional study. Subjects: A total of 247 adults ≥ 1 year post-SCI in mainland China. Methods: The World Health Organization (WHO) Quality of Life Scale Brief Version (WHOQOL-BREF) and the add-on modules on disability-related QoL (WHOQOL-DIS) were used to assess quality of life. Anxiety/depression was measured using the Zung Self-Rating Anxiety/Depression Scale. Quality of life was compared with that of reference populations from China, Korea, the international field trial (23 countries). Multivariate linear regression was conducted to determine the factors that might be associated with quality of life. Results: The means of the 4 domains of the WHOQOL-BREF varied from 11.5 to 13.0. The mean of the 12item WHOQOL-DIS module was 38.7. The quality of life of the participants as measured by the WHOQOL-BREF was 1.1-4.7 points lower than that of the global reference population, while quality of life as measured by the WHOQOL-DIS module was 1.2 points lower than that of the Korean data. Anxiety and depression were negative factors associated with quality of life (p < 0.05). Better community integration was a positive factor for physical quality of life and quality of life as measured by the WHOQOL-DIS module (p <0.01). Conclusion: The quality of life of adults with chronic spinal cord injury in mainland China was lower compared with reference populations. Duration of spinal cord injury, sex, community integration, anxiety, and depression were related to quality of life.

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Section: Discussionmentioning

confidence: 61%

Quality of life of adults with chronic spinal cord injury in mainland china: A cross-sectional study

Chang

Xie²,

Zhang³

et al. 2020

J Rehabil Med

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“…One third participants were not satisfied about their acceptance in community. It was found that greater levels of social support and peer mentoring can improve long term outcome of SCI [24]. Greater life satisfaction has been documented when people with SCI were involved in productive activities, such as work, leisure, and education 8 is associated with community reintegration [19].…”

Section: Discussionmentioning

confidence: 99%

Impact of Divorce and Separation for the Women with Spinal Cord Injury in Community Reintegration

Taoheed

Haque²,

Nipa

et al. 2021

EJMED

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Introduction: Marriage is a lawful agreement between a man and woman. They can share their rights and responsibilities under the provision of Law, whereas divorce or separation is dissolving these bonds between married couples. Among Spinal Cord Injury patients this divorce or separation rate is high in Bangladesh. Objectives: The main aim of this study was to identify the impacts of divorce and separation for the women with spinal cord injury during community reintegration. Methodology: This was a mixed-method-type of study where the participant’s demographics data were analyzed by quantitative analysis by using a standard developed questionnaire (CIQ-R) and semi-structured open ended questionnaire to explore the best possible feedback from the participants for maximum 25-minutes duration. The present study conducted with 39 women participants since July 2011 to June 2016 at the CRP. Data were analyzed by SPSS 20 version. Result: Total community integration score was 12.03 and SD was ± 3.87. This score was significantly lower to compare other study for person with SCI. The mean and SD of home integration (2.89, ±1.53), social integration (3.74, ±1.16), productivity (3.12, ±1.81) and electronic social networking (2.54, ±1.86) scores were also lower than the other study. Age, education, occupation, religion, living area, monthly income, marriage before or after injury, duration of marriage, number of children, duration of divorce or separation, ASIA, neurological level was found to be significant predictors of divorce or separation. Four major themes were found in this study (1) Causes of divorce and separation (2) Impact on relationship with family member (3) Impact on social participation (4) Impact on productive activities. Regardless of all participants reported loss of autonomy and functional ability, loss of sex life, loss of self-identity, loss of intimacy within laws, loss of autonomy were the main causes of divorce and separation. Conclusion: Participants scored low in total community integration was lower than compare to other. Suggesting there is a great need to develop interventions by governmental and non-governmental organizations to better integrate individuals of women with divorce and separation with spinal cord injury in the community.

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“…The CIQ-R is an 18-item questionnaire designed to be a brief, reliable measure of home, social, productivity integration, and electronic social networking, designed at first to be administered to people with TBI [ 12 – 14 , 45 – 47 ]. In recent times, it has also been used to assess people with SCI [ 3 , 15 , 24 , 48 ] and other physical disability [ 16 ], aphasia [ 8 , 49 ], brain tumours [ 17 ], and burn injuries [ 50 ], as well as young people with a range of acquired and congenital disabilities who are living in nursing homes for the elderly [ 51 ].…”

Section: Methodsmentioning

confidence: 99%

Crosscultural Validation of the Community Integration Questionnaire–Revised in an Italian Population

Ioncoli

Berardi

Tofani

et al. 2020

Occupational Therapy International

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Objective. The aims of this study are the translation, cultural adaptation, and validation of the Community Integration Questionnaire–Revised (CIQ-R) in Italian in a group of individuals with no clinical evidence of disability. Methods. The test’s internal consistency and validity were assessed by following international guidelines. The test’s internal consistency was examined using Cronbach’s alpha (α) coefficient. Pearson’s correlation coefficient was calculated to assess the test’s concurrent validity compared with the Short Form-12 (SF-12) health survey. Results. The CIQ-R was administrated to 400 people with no clinical evidence of disease, impairment, or disability, aged between 18 and 64. Cronbach’s α reported a value of 0.82 in the home integration subscale. The test also showed a good test-retest reliability, with an Intraclass Correlation Coefficient of 0.78, and a significant correlation between the total score of the CIQ-R and the Physical Component Summary (PCS) of the SF-12 (r=0.118), between the “social integration” subscale’s score and PCS12 (r=0.121) and between the “Electronic Social Networking integration” subscale’s score and PCS12 (r=0.184), with p<0.05. Conclusion. This is the first study to report the results of the translation and validation of the CIQ-R in Italian. The CIQ-R is an important tool for Italian professionals and can be useful in both clinical practice and research for measuring the level of community integration among the healthy population.

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Community integration outcomes of people with spinal cord injury and multiple matched controls: A pilot study

Cited by 17 publications

References 34 publications

Quality of life of adults with chronic spinal cord injury in mainland china: A cross-sectional study

Quality of life of adults with chronic spinal cord injury in mainland china: A cross-sectional study

Impact of Divorce and Separation for the Women with Spinal Cord Injury in Community Reintegration

Crosscultural Validation of the Community Integration Questionnaire–Revised in an Italian Population

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