Satisfaction with information and its association with illness perception and quality of life in Indonesian breast cancer patients

Iskandarsyah, Aulia; Klerk, Cora de; Suardi, Dradjat R.; Soemitro, Monty P.; Sadarjoen, Sawitri S.; Passchier, Jan

doi:10.1007/s00520-013-1877-5

Cited by 41 publications

(64 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Through our review we identified 27 citations that dealt with NCD management at the structural policy level [25, 61, 88], clinical level [23, 54, 63, 72, 75, 83, 90–92, 95, 106, 108, 110, 113], community [16, 38, 52, 73, 74, 100], family [105, 107], and individual level [59, 77]. At the structural level, we recognized three issues: health insurance services for NCD patients [88], the need for a better collaboration between health and registration sectors [61], and the need to address the double burden of NCDs and infectious diseases such as tuberculosis and diabetes [25], which might be aggravated by smoking [39].…”

Section: Resultsmentioning

confidence: 99%

“…nasopharyngeal cancer [54, 72], breast cancer [83, 91, 92], cervical cancer [108], and colorectal cancer [75]. Tackling low screening uptake [75], improving early diagnosis, and increasing compliance with treatment [72] as well as better advanced physician’s knowledge and continuous education [54] are necessary steps to be taken.…”

Section: Resultsmentioning

confidence: 99%

“…Tackling low screening uptake [75], improving early diagnosis, and increasing compliance with treatment [72] as well as better advanced physician’s knowledge and continuous education [54] are necessary steps to be taken. One study identified the heightened need for physicians to be aware of patients’ unrealistic beliefs in delaying treatment and consulting traditional healers [83, 91, 92]. One study raised problems and unmet needs in relation to palliative cancer care [106].…”

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

How is Indonesia coping with its epidemic of chronic noncommunicable diseases? A systematic review with meta-analysis

et al. 2017

View full text Add to dashboard Cite

BackgroundChronic noncommunicable diseases (NCDs) have emerged as a huge global health problem in low- and middle-income countries. The magnitude of the rise of NCDs is particularly visible in Southeast Asia where limited resources have been used to address this rising epidemic, as in the case of Indonesia. Robust evidence to measure growing NCD-related burdens at national and local levels and to aid national discussion on social determinants of health and intra-country inequalities is needed. The aim of this review is (i) to illustrate the burden of risk factors, morbidity, disability, and mortality related to NCDs; (ii) to identify existing policy and community interventions, including disease prevention and management strategies; and (iii) to investigate how and why an inequitable distribution of this burden can be explained in terms of the social determinants of health.MethodsOur review followed the PRISMA guidelines for identifying, screening, and checking the eligibility and quality of relevant literature. We systematically searched electronic databases and gray literature for English- and Indonesian-language studies published between Jan 1, 2000 and October 1, 2015. We synthesized included studies in the form of a narrative synthesis and where possible meta-analyzed their data.ResultsOn the basis of deductive qualitative content analysis, 130 included citations were grouped into seven topic areas: risk factors; morbidity; disability; mortality; disease management; interventions and prevention; and social determinants of health. A quantitative synthesis meta-analyzed a subset of studies related to the risk factors smoking, obesity, and hypertension.ConclusionsOur findings echo the urgent need to expand routine risk factor surveillance and outcome monitoring and to integrate these into one national health information system. There is a stringent necessity to reorient and enhance health system responses to offer effective, realistic, and affordable ways to prevent and control NCDs through cost-effective interventions and a more structured approach to the delivery of high-quality primary care and equitable prevention and treatment strategies. Research on social determinants of health and policy-relevant research need to be expanded and strengthened to the extent that a reduction of the total NCD burden and inequalities therein should be treated as related and mutually reinforcing priorities.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

How is Indonesia coping with its epidemic of chronic noncommunicable diseases? A systematic review with meta-analysis

et al. 2017

View full text Add to dashboard Cite

show abstract

“…In Indonesia, Iskandarsyah et al assessed both, the extent to which patients were satisfied from the information they received and the association between satisfaction, on the one hand, and perception of the disease and quality of life on the other 44 . This study comprised 77 patients with a mean age of 45.6 years (SD = 7.88), 50% of whom were at an advanced stage at diagnosis and had most undergone surgery and chemotherapy.…”

Section: Informational Needs and The Health Systemmentioning

confidence: 99%

Special Needs of Young Women with Breast Cancer in Limited Resource Settings

Gálvez-Hernández

González-Robledo

Barragán-Carrillo

et al. 2017

RIC

View full text Add to dashboard Cite

show abstract

“…A cross-sectional study in 70 breast cancer patients in Indonesia showed also that many breast cancer patients in Indonesia were not satisfied with the information they received [16]. The study showed that most patients were dissatisfied with the information about social support.…”

Section: Introductionmentioning

confidence: 99%

A protocol for a cluster-randomized controlled trial of a self-help psycho-education programme to reduce diagnosis delay in women with breast cancer symptoms in Indonesia

et al. 2017

Self Cite

View full text Add to dashboard Cite

BackgroundBreast cancer (BC) is the most frequent cancer occurring in women across the world. Its mortality rate in low-middle income countries (LMICs) is higher than in high-income countries (HICs), and in Indonesia BC is the leading cause of cancer deaths among women. Delay in breast cancer diagnosis negatively impacts cancer prognosis. Only about 30% of patients who come to the hospital to check on their breast abnormalities, continue thorough examination to biopsy to get a diagnosis based on the results of anatomical pathology. Many Indonesian women with breast cancer were already in an advanced stage when starting treatment. Therefore, delay in diagnosis is a serious problem that needs to be addressed. The present study will investigate whether our newly developed self-help psycho-educational programme, “PERANTARA”, for women with breast cancer symptoms is effective to reduce patient diagnosis delay in Indonesia.MethodsA cluster-randomized controlled trial will be conducted in 106 patients in four hospitals in Bandung, West Java, Indonesia. Data will be collected at baseline (pre-assessment), 7 days after the intervention (post-assessment), and at 3 months (follow-up assessments). The primary outcome is delay in diagnosis and treatment. Secondary outcomes are breast cancer knowledge, anxiety and depression, and quality of life. Exploratively, adherence with treatment will be measured too. Data will be analysed by hierarchical linear modelling (HLM) to assess differential change over time.DiscussionIf proven effective, PERANTARA will be evaluated and implemented in a diversity of settings for local cares (such as in POSYANDU, PUSKESMAS) that provide health education/psycho-education for women with breast symptoms.Trial registration ISRCTN12570738. Date: November 19th, 2016.Electronic supplementary materialThe online version of this article (doi:10.1186/s12885-017-3268-7) contains supplementary material, which is available to authorized users.

show abstract

Satisfaction with information and its association with illness perception and quality of life in Indonesian breast cancer patients

Abstract: Satisfaction with the information provided is associated with better health outcomes, including more positive illness perceptions. This study appears to highlight the importance of providing adequate and sufficient information that meets the needs of patients.

Cited by 41 publications

References 28 publications

How is Indonesia coping with its epidemic of chronic noncommunicable diseases? A systematic review with meta-analysis

How is Indonesia coping with its epidemic of chronic noncommunicable diseases? A systematic review with meta-analysis

Special Needs of Young Women with Breast Cancer in Limited Resource Settings

A protocol for a cluster-randomized controlled trial of a self-help psycho-education programme to reduce diagnosis delay in women with breast cancer symptoms in Indonesia

Contact Info

Product

Resources

About