Special Needs of Young Women with Breast Cancer in Limited Resource Settings

Gálvez-Hernández, Carmen Lizette; González-Robledo, María Cecilia; Barragán-Carrillo, Regina; Villarreal‐Garza, Cynthia

doi:10.24875/ric.17002285

Cited by 5 publications

(9 citation statements)

References 41 publications

(68 reference statements)

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“…It could be the result of training programs for nurses and midwives started by Dr. Rauofi Rokai in 2016. Mastitis has been associated with lactation in 85.7% ( Table 2 ) of cases, most likely a cause that this rate is higher as in the neighbouring countries [ 23 – 25 , 27 , 29 , 30 ]. The reasons may be a long breast feeding time and inadequate hygiene measurements.…”

Section: Discussionmentioning

confidence: 99%

“…Both differences are significant. There is a great lack of publications about breast cancer in young women in countries with restricted resources as recognized by Galvez-Hernandez and coworkers in 2017 [ 30 ]. A breast cancer register may be a first step in better treatment for such patients in countries with restricted resources.…”

Section: Discussionmentioning

confidence: 99%

“…Finally, the disease registry should be supplemented by an annual follow-up at least in IBC patients in order to be able to examine diagnostic and therapeutic measurements in view of Overall Survival (OVS) and Disease-Free Survival (DFS). In summary, our data are useful in each case of breast disease and help to improve treatment by collecting knowledge from each single case and to diminish the growing gap between high-income countries with sophisticated research methods [ 31 – 33 ] and low-income countries with lack of nearly all modern technologies like molecular biology or immunohistochemistry [ 30 ].…”

Section: Discussionmentioning

confidence: 99%

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The Importance of Clinical Data for the Diagnosis of Breast Tumours in North Afghanistan

Stauch¹,

Fritz

Rauofi³

et al. 2021

International Journal of Breast Cancer

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Background. This study was performed in knowledge of the increasing gap between breast disease treatment in countries with restricted resources and developed countries with increasingly sophisticated examination methods. Methods. The authors present the analysis of a breast disease register consisting of diagnostic cases from Mazar e Sharif and Herat in 2018 and 2019. The study comprises a total of 567 cases, which were presented to experts via telemedicine for final diagnosis. 62 cases (10.9%) were excluded due to inacceptable data or insufficient image quality. These data provided by daily diagnostic classification were used for the built-up of a profile for each frequent breast disease and a breast cancer register. All images and cases were seen by at least 3 independent experts. The diagnoses were made in 60% of cases by cytology of fine needle aspiration and in 40% by histological images. Results. For each entity of breast diseases (e.g., fibroadenoma), a profile of context variables was constructed allowing to assist medical decisions, as “wait and see,” elective surgery or immediate surgical intervention with R0 (complete) resection. These “profiles” could be described for fibroadenoma, mastitis, galactocele, fibrous-cystic disease, and invasive breast cancer. Conclusions. The presented preliminary data set could serve as a cost-effective basis for a North Afghan breast cancer registry, with option to extent to a national model. These preliminary data are transformed in profiles of breast diseases, which are used by the local physicians in charge of breast disease patients. Each new case can be compared by the local treating physician with the profile of all preceded cases with the same diagnosis.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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The Importance of Clinical Data for the Diagnosis of Breast Tumours in North Afghanistan

Stauch¹,

Fritz

Rauofi³

et al. 2021

International Journal of Breast Cancer

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“…In these settings, only a limited number of initiatives have embarked on addressing the particular issues of YWBC (Villarreal‐Garza, Martinez‐Cannon, Platas, & Ramos‐Elias, ). Furthermore, most of the research studies regarding YWBC have predominantly been conducted in developed countries, with limited representation of the Hispanic population and its unique socioeconomic, cultural and religious context (Galvez‐Hernandez, Gonzalez‐Robledo, Barragan‐Carrillo, & Villarreal‐Garza, ).…”

Section: Introductionmentioning

confidence: 99%

“…Furthermore, most of the research studies regarding YWBC have predominantly been conducted in developed countries, with limited representation of the Hispanic population and its unique socioeconomic, cultural and religious context (Galvez-Hernandez, Gonzalez-Robledo, Barragan-Carrillo, & Villarreal-Garza, 2017).…”

mentioning

confidence: 99%

Medical and information needs among young women with breast cancer in Mexico

Villarreal‐Garza

Lopez-Martinez²,

Martínez-Cannon³

et al. 2019

Eur J Cancer Care

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Objective To describe clinical and information needs, identify unmet support services and guide interventions for young breast cancer (BC) patients in Mexico. Methods Cross‐sectional, qualitative study, using interpretive description methodology. Patients with initial BC diagnosis within 6–12 months prior to enrolment, ≤40 years old and literate were included in focus groups. Results Twenty‐nine patients were included. Expressed needs were classified into the following categories: (a) understanding diagnosis and treatment; (b) treatment side effects; and (c) time, source and communication means. Patients felt their medical team did not provide enough information regarding diagnosis, treatment and relevant side effects related to fertility, menopause and sexuality. Lack of information fuelled uncertainty, distress, anxiety and fear, and could negatively influence treatment decisions. Patients wished that news be communicated considering their own attitude regarding the disease and providing psychological support when necessary, including partners, relatives and friends. They recommended that information should be delivered with an empathic and personalised approach, with take‐home educational material to help them recall, comprehend and/or expand verbal information received during medical appointments. Conclusions This study provides valuable insight to increase attention on unmet needs of young BC patients and to improve doctor–patient communication to ensure better care.

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Patients’ satisfaction with a supportive care program for young breast cancer patients in Mexico: Joven & Fuerte supports patients’ needs and eases their illness process

Villarreal‐Garza

Platas

Ávila

et al. 2020

Support Care Cancer

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Special Needs of Young Women with Breast Cancer in Limited Resource Settings

Abstract: Background: Young women with breast cancer (YWBC) comprise a group of patients with unique biopsychosocial characteristics with a special perception of needs throughout their disease and survivorship. Contexts marked by restricted allocations and economic

Cited by 5 publications

References 41 publications

The Importance of Clinical Data for the Diagnosis of Breast Tumours in North Afghanistan

The Importance of Clinical Data for the Diagnosis of Breast Tumours in North Afghanistan

Medical and information needs among young women with breast cancer in Mexico

Patients’ satisfaction with a supportive care program for young breast cancer patients in Mexico: Joven & Fuerte supports patients’ needs and eases their illness process

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