Roles of nurses and parents caring for hospitalised children

Bedells, Ella; Bevan, Ann

doi:10.7748/ncyp.28.2.24.s22

Cited by 13 publications

(11 citation statements)

References 18 publications

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“…Information sharing with the child, parents and family (Bedells & Bevan, ; Coyne et al, ; Dunst & Trivette, ; Foster et al, ; Tallon et al, ) and empowering the family to participate in informed decision‐making were other features which emerged frequently (Banerjee et al, ; Franck & Callery, ; Kuo et al, ; Mikkelsen & Frederiksen, ; Shields, ). Within this element, the importance of communication and negotiation which promote the clarification of roles and responsibilities for each member of the partnership in order to avoid conflict was referred to by many authors including Coyne (), Shields et al (), Coyne, ; Mikkelsen and Frederiksen (), Bedells and Bevan (), Dennis et al () and Foster et al (). Shields et al () suggest a revised definition which includes all family members as care recipients .…”

Section: Methodsmentioning

confidence: 99%

“…These antecedents largely refer to the understanding, values and attitudes of nurses and parents of the concept of FCC and are linked to the presence of parents at the bedside of their hospitalised child (Casey & Mobbs, ; Chenery, ; Mikkelsen & Frederiksen, ; Power & Franck, ; Shields et al, ) and their willingness to perform some aspects of their child's care (Casey & Mobbs, ; Chenery, ; Shields, ; Smith et al, ). In order for effective FCC to occur, there must be a willingness on the part of the staff to collaborate positively and respectfully with parents and families and a commitment to share jointly the responsibility for care (Bedells & Bevan, ; Smith et al, ). Open, honest, respectful communication and negotiation must be in place to facilitate the development of an effective partnership relationship (Coyne, ; Foster et al, ; Hutchfield, ).…”

Section: Methodsmentioning

confidence: 99%

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Family‐centred care of children and young people in the acute hospital setting: A concept analysis

O’Connor

Brenner

Coyne

2019

Journal of Clinical Nursing

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Aims and objectives:To provide an operational definition of family-centred care as it applies to hospitalised children. The objective was to provide clarification of the concept by comprehensively analysing the evidence.Background: Terms associated with family-centred care include partnership-in-care, negotiated care, parental participation/involvement in care, care-by-parent and child-centred care. The absence of a universally accepted definition contributes to its inconsistent implementation. Design and Methods: Concept analysis is acknowledged as a form of inquiry to develop the knowledge base of nursing. Rodgers' evolutionary approach to concept analysis was used as a guiding framework. The systematic literature search yielded 30 theoretical papers; the results are outlined on a PRISMA flow diagram.Results: Surrogate terms identified include partnership-in-care, negotiated care and parent participation. Parental participation in care, the development of respectful and trusting partnerships, information sharing and all family members as care recipients were identified as attributes to family-centred care. There is limited evidence that family-centred care enhances the child's, parents' and families' experience of hospitalisation and is associated with reduced anxiety for parents. Conclusion:There is a lack of attention to cultural and societal changes, which impact on those receiving and delivering care. While we know that family-centred care is widely endorsed and enhances well-being, there is a lack of empirical evidence about the impact on health outcomes for children. While children's nurses have been applying some elements of family-centred care to their clinical practice for decades, the concept continues to evolve.Relevance to clinical practice: Further research examining the effects of familycentred care for children, their families, healthcare professionals and healthcare organisations reflecting cultural diversity and norms must be conducted. This research should include the effects of family-centred care on parents caring for their child in hospital, how family-centred care supports parents to make healthcare decisions and the outcomes of family-centred care for children and families.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Family‐centred care of children and young people in the acute hospital setting: A concept analysis

O’Connor

Brenner

Coyne

2019

Journal of Clinical Nursing

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“…A well-working partnership with parents has previously been identified as an important issue in pediatric nursing. 27,28 Especially in the field of pediatric palliative nursing, a well-working partnership between nurses and parents is of utmost importance, because in the multidisciplinary team, nurses have a crucial role regarding the 24/7 continuity of care. 29 Within the multidisciplinary team, nurses are the staff members with the most patient contacts.…”

Section: Main Findingsmentioning

confidence: 99%

Addressing multidrug resistant pathogens in pediatric palliative care patients—the nurses point of view: A qualitative study

et al. 2019

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Background: Multidrug resistant pathogens are a large-scale healthcare issue. In particular, children with life-limiting conditions have a significantly increased risk of multidrug resistant pathogen colonization. Official hygiene requirements recommend children, who are colonized with multidrug resistant pathogens, to be isolated. In the context of pediatric palliative care, such isolation adversely affects the aim of social participation. To overcome this challenge of conflicting interests on a pediatric palliative care inpatient unit, a hygiene concept for patients colonized with multidrug resistant pathogens, called PALLINI, was implemented. Aim: The aim of this study was to identify the nurses' attitudes and opinions toward PALLINI. Methods: Nurses (N = 14) from the pediatric palliative care unit were queried in guideline-oriented interviews. Interviews were analyzed qualitatively by means of content analysis. Results: The following four categories were identified: (1) safety, (2) effort, (3) quality of care, and (4) participation. All categories demonstrated ambivalence by nursing staff regarding PALLINI. Ambivalence arose from guaranteeing infection control versus noncompliance by the families, additional workload for patients with multidrug resistant pathogens versus lack of resources, impaired relationship with the parents versus enabling better care for the child, as well as enabling some limited contact versus the larger goal of genuine social participation. Despite this, nurses reported the importance of arranging everyday-life for the patients so that they experience as much social participation as possible. Conclusion: The implementation of a new hygiene concept is challenging. Despite positive reception of PALLINI from the nurses, ambivalence remained. Addressing these ambivalences may be critical to best implement the new hygiene concept.

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“…7 After the Report on maternal deprivation, which was published in 1951 by the World Health Organization, addressing maternal deprivation as an etiological factor affecting one's mental health, in addition to the publication of the Platt Report in 1959, a new view was established in regard to the hospitalization of children. 5,[8][9][10] In addition to such milestones in the history of care provided to hospitalized children, the right to have a companion in pediatric wards became law in Brazil on July 13 th 1990. Law No.…”

Section: Introductionmentioning

confidence: 99%

Translation and cultural adaptation of the Needs of Parents Questionnaire (NPQ) to be used in Brazil

et al. 2017

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Objective: To translate, culturally adapt, and assess the internal consistency of the adapted version of the Needs of Parents Questionnaire (NPQ) to be used in Brazil with a sample of parents of hospitalized children. Method: Methodological study, essentially based on the DISABKIDS ® method and conducted in a public university hospital. The stages included translation, assessment by an expert committee, back translation, semantic validation, and pilot study. Results: After the original instrument was translated into Brazilian Portuguese and then back-translated, the semantic validation was performed with 30 parents and adjustments were implemented until the translated version was understandable by most participants. Afterwards, a pilot test was implemented with another 59 parents, the internal consistency of which was satisfactory. Conclusions: The Brazilian version of the NPQ proved to be reliable and, after assessing other psychometric properties in the field study, it will be useful to assess the needs of parents of hospitalized children, qualifying nursing care. resumenObjetivo: Realizar traducción, adaptación cultural y evaluación de la consistencia interna de la versión adaptada del Needs of Parents Questionnaire (NPQ) en muestras con padres de niños hospitalizados en Brasil. Método: Estudio metodológico, fundamentado esencialmente en el método DISABKIDS ® , desarrollado en hospital público universitario. Fueron realizadas etapas de traducción, evaluación por un comité de expertos, retrotraducción, validación semántica y estudio piloto. Resultados: Después del proceso de traducción y retrotraducción del instrumento original para el portugués, se produjo la validación semántica con 30 padres, realizándose adecuaciones hasta que la versión traducida fuera considerada comprensible por la mayoría. Después, fue realizado el estudio piloto con otros 59 padres, presentando valores satisfactorios de la consistencia interna. Conclusiones: El NPQ adaptado se demostró confiable y, después de la evaluación de propiedades psicométricas en el estudio de campo, podrá ser útil para evaluar las necesidades de padres de niños hospitalizados, cualificando el cuidado de enfermería. Palabras clave:

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Roles of nurses and parents caring for hospitalised children

Cited by 13 publications

References 18 publications

Family‐centred care of children and young people in the acute hospital setting: A concept analysis

Family‐centred care of children and young people in the acute hospital setting: A concept analysis

Addressing multidrug resistant pathogens in pediatric palliative care patients—the nurses point of view: A qualitative study

Translation and cultural adaptation of the Needs of Parents Questionnaire (NPQ) to be used in Brazil

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