Risk-taking and the adolescent hemophiliac

Senft, Karen; Eyster, M. Elaine; Haverstick, Judy; Bartlett, Glen S.

doi:10.1016/s0197-0070(81)80096-4

Cited by 6 publications

(3 citation statements)

References 9 publications

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“…The choices made regarding specific sports seem to be based on adaptation to the diagnosis. This is conforming the findings of Senft et al in 1981, who found no difference in risk-taking attitude and behaviour between 17 adolescents (11-18 years) with haemophilia and an age-matched control group [23]. Moreover, the older boys (15-18 years) tended to be more cautious when choosing and participating in activities with a higher risk compared to the younger boys (11-14 years).…”

Section: Discussionsupporting

confidence: 91%

Participation and risk‐taking behaviour in sports in children with haemophilia

et al. 2009

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The aim of this study was to investigate participation in sports activities and risk-taking behaviour in children with haemophilia and the relationship to personal and health related factors. Ninety-nine children (mean age 12.6 years) completed questionnaires regarding participation in sports and physical education, medication, health related quality of life, and perceived motor competence. Furthermore, weight, height, active range of motion, pain, and muscle strength were assessed. Based on a risk exposure factor (REF) we defined subgroups with low, medium, and high risk when participating in sport. Most children participate in sport five times a week (mean 140 min per week), and little absence during school sports was reported. In general, prophylaxis was not tailored to sport activities. Boys with haemophilia preferred other sports than their Dutch contemporaries. The top-5 being soccer, swimming, tennis, gymnastics, and cardio-fitness for the former; soccer, gymnastics, tennis, hockey, and swimming for the latter. Significant differences between the low risk group and both other groups were found for sport intensity, total energy expenditure (EE) and average risk factor (ARF), however the medium and high-risk groups did not differ in ARF. REF and sport participation increased associated with increasing interest in athletic and motor activities. No significant differences were found between REF groups regarding age, Z-BMI, Z-AROM, Z-Muscle force, and the presence of painful joints. As in normal peers motivation to participate in sport depends upon the enthusiasm and interest, in children with haemophilia choice of sports differs, probably related to sport advice.

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Section: Discussionsupporting

confidence: 91%

Participation and risk‐taking behaviour in sports in children with haemophilia

et al. 2009

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“…Our observation of an inverse correlation with the Self‐efficacy sub‐score for Support‐Seeking with time spent in vigorous or high level activity is worth a brief comment as it raises questions about possible risk‐taking behaviour. This concern has often been raised about boys with haemophilia, but remains controversial [19]. Another possible explanation is that these boys may not seek support out of concern of encountering additional barriers.…”

Section: Discussionmentioning

confidence: 99%

Psychosocial correlates of physical activity in adolescents with haemophilia

Buxbaum¹,

Ponce²,

Saidi³

et al. 2010

Haemophilia

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Boys with haemophilia are now encouraged to exercise and take part in physical activities, but actual measures of time spent in active participation is lacking. The aim of this study was to obtain an objective measure of daily physical activity in boys with haemophilia as compared with healthy controls. The study also aimed to ascertain the social and cognitive factors associated with exercise in this population. Seventeen patients (aged 11-18 years) with haemophilia were studied and compared with 44 healthy controls (aged 10-16.5 years). Physical activity was measured by accelerometry. Psychosocial correlates were assessed using validated questionnaires. Measured physical activity levels in subjects with haemophilia were slightly higher than for the control group. Both groups spent 70% of the day inactive, with similar proportions of time in moderate and vigorous activity. Subjects with haemophilia had a favourable self-image and similar levels of anxiety as peers without a bleeding disorder. Self-efficacy scores were lower than for controls suggesting increased sensitivity to barriers and lack of acceptance of alternatives. Health beliefs did not influence physical activity, but a negative correlation of time spent in high or vigorous activity with scores for support-seeking was observed. The data demonstrate that in the appropriate social environment and with medical support, patients with haemophilia may be as physically active as their peers without a bleeding disorder. Further investigation into the psychosocial barriers of physical activity in patients with haemophilia is needed to more effectively encourage healthy behaviours.

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“…At the same time, the male adolescent is fully aware of his physical limitations, and he is more and more responsible of his therapy through self‐administration. Studies have not confirmed early clinical impressions that haemophiliacs may be uncomfortably interested in physical activities at risk of bleeding: risk‐taking attitudes by affected males increase with age, but they are similar to those in age‐matched controls [29]. Besides physical benefits, cautious practical and psychological support for sport activities with limited or no physical contact may help the boy to control stress, to improve self‐esteem and body image and to overcome the tendency to withdrawal and depression.…”

Section: Psychological Support and Haemophilia Care From Childhood Tomentioning

confidence: 99%

Confronting the psychological burden of haemophilia

et al. 2010

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Providing comprehensive care, counselling and support to haemophilic patients, and their parents have always been quite complex for haemophilia treatment centres. Nowadays, starting with recent developments in genetic counselling, prenatal diagnosis and carrier testing, the psychological burden on patients and parents might possibly have increased, compared with even the recent past. The emotional strains and worries associated with a possibly affected newborn and his care through childhood and adolescence may also have a grievous impact on couple dynamics and marital relationship. The impact may be even higher in families in which haemophilia is newly diagnosed. The main psychological problems faced by parents and then by affected individuals are herein chronologically reviewed, starting from genetic counselling before conception through childhood, adolescence and adulthood. Aware of the psychosocial burden on patients and their families associated with haemophilia, from prenatal diagnosis and carrier testing until later stages of life of the affected individual, a board of Italian haemophilia specialists and psychologists is designing and organizing an innovative network of psychological support services in some Italian haemophilia centres and promoting specific educational programmes in this setting.

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Risk-taking and the adolescent hemophiliac

Cited by 6 publications

References 9 publications

Participation and risk‐taking behaviour in sports in children with haemophilia

Participation and risk‐taking behaviour in sports in children with haemophilia

Psychosocial correlates of physical activity in adolescents with haemophilia

Confronting the psychological burden of haemophilia

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