Review of Family-Based Psychosocial Interventions for Childhood Cancer

Meyler, Emma; Guérin, Suzanne; Kiernan, Gemma; Breatnach, Fin

doi:10.1093/jpepsy/jsq032

Cited by 56 publications

(49 citation statements)

References 34 publications

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“…Prior studies of psychological interventions have demonstrated promise in decreasing distress and improving the adjustment of parents of children with cancer. 50 Others have suggested methods to integrate multiple family members, but have highlighted the variability of modalities employed, 51 or the challenges inherent to conducting randomized controlled trials to evaluate such interventions among parents who are already overwhelmed. 52 Future studies must attempt to overcome these obstacles and better determine methods to promote resilient outcomes.…”

Section: Perceptions and Appraisalsmentioning

confidence: 99%

Promoting Resilience among Parents and Caregivers of Children with Cancer

Rosenberg

Baker

Syrjala

et al. 2013

Journal of Palliative Medicine

107

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Background: Promoting resilience is an aspect of psychosocial care that affects patient and whole-family wellbeing. There is little consensus about how to define or promote resilience during and after pediatric cancer. Objectives: The aims of this study were (1) to review the resilience literature in pediatric cancer settings; (2) to qualitatively ascertain caregiver-reported perceptions of resilience; and (3) to develop an integrative model of fixed and mutable factors of resilience among family members of children with cancer, with the goal of enabling better study and promotion of resilience among pediatric cancer families. Methods: The study entailed qualitative analysis of small group interviews with eighteen bereaved parents and family members of children with cancer treated at Seattle Children's Hospital. Small-group interviews were conducted with members of each bereaved family. Participant statements were coded for thematic analysis. An integrative, comprehensive framework was then developed. Results: Caregivers' personal appraisals of the cancer experience and their child's legacy shape their definitions of resilience. Described factors of resilience include baseline characteristics (i.e., inherent traits, prior expectations of cancer), processes that evolve over time (i.e., coping strategies, social support, provider interactions), and psychosocial outcomes (i.e., post-traumatic growth and lack of psychological distress). These elements were used to develop a testable model of resilience among family members of children with cancer. Conclusions: Resilience is a complex construct that may be modifiable. Once validated, the proposed framework will not only serve as a model for clinicians, but may also facilitate the development of interventions aimed at promoting resilience in family members of children with cancer.

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Section: Perceptions and Appraisalsmentioning

confidence: 99%

Promoting Resilience among Parents and Caregivers of Children with Cancer

Rosenberg

Baker

Syrjala

et al. 2013

Journal of Palliative Medicine

107

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“…Cuidar a una persona dependiente supone una notable fuente de estrés, que incrementa el riesgo de padecer diversos problemas físicos, así como importantes alteraciones emocionales, familiares y sociales (21) . En el caso del cuidado de un niño con enfermedad crónica se produce un esfuer-zo físico, una limitación financiera, efectos emocionales y un aislamiento social que finalmente impacta la salud física y emocional del cuidador, porque este le da prioridad a las necesidades de su paciente sobre las propias, y toma las decisiones sobre esta base (22)(23)(24) . Esta situación puede llevar al cuidador a que desarrolle adicción al tabaco y/o al alcohol para poder cumplir las demandas del cuidado (25) .…”

Section: Introductionunclassified

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Pardo¹,

Cárdenas²,

Venegas³

2015

Psicooncología

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ResumenEl propósito del estudio fue identificar las variables psicológicas y las características del cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de niños con cáncer, en un hospital de la ciudad de México. La muestra no probabilística constó de 100 participantes, quienes contestaron una batería integrada por la encuesta de salud para el CPI, la escala de carga del cuidador de Zarit, los inventarios de ansiedad y depresión de Beck, la escala de apoyo familiar para CPI y la escala de modos de afrontamiento al estrés de Lazarus y Folkman. Los resultados confirmaron que las mujeres (en la mayoría de los casos la madre del paciente) actúan como CPI de niños con cáncer. Las variables predictoras de la carga en el modelo de regresión múltiple por pasos fueron la depresión (R 2 =0,228), el número de áreas afectadas en la vida del cuidador (R 2 =0,319) y la ansiedad (R 2 =0,348). En total las tres variables explicaron el 34% de la varianza. Mientras que el estilo de afrontamiento, el apoyo familiar, el tiempo de cuidado del paciente, las horas diarias de cuidado de éste y el número de actividades que realiza no resultaron variables relevantes en la predicción de la carga. Los hallazgos podrían ser útiles para diseñar intervenciones que promuevan el bienestar físico, social y emocional de esta población, previniendo que los cuidadores se conviertan en pacientes.Palabras clave: Niños con cáncer, cuidadores, carga, ansiedad y depresión. AbstractThe purpose of the study was to identify the psychological characteristics and care variables that predict the onset of primary informal caregivers burden (CPI) of children with cancer, in a hospital in Mexico City. The nonrandom sample consisted of 100 participants, who answered an integrated battery conformed by a health interview for the CPI, the load scale for the Zarit caregiver, the anxiety and depression of Beck inventory, the family support for the CPI scale and the scale modes of coping with stress by Lazarus and Folkman. The results confirmed that women react as CPI to children with cancer, and in most cases the patient's mother. The variables of burden model stepwise multiple regressions were depression (R 2 =0.228), the number of affected areas in the caregiver's life (R 2 =0.319) and anxiety (R 2 =0.348). In all the three variables explained 34% of variance. While coping style, family support, time to patient care, daily care hours and the number of activities carried out were not significant variables in predicting overload. The findings of this study could be useful for designing interventions that promote physical, social and emotional wellbeing of this population, preventing the patient from becoming caregivers.

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“…Pedro et al [34], investigated social support and they recommend the need for it to be assessed and included in care plans and guidelines. Research has found that family-based psychosocial interventions are feasible, acceptable, and potentially effective to for use in paediatric oncology [43].…”

Section: Discussionmentioning

confidence: 99%

A literature Review of the Results from Nursing and Psychosocial Research within Swedish Pediatric Oncology

Enskär

Knutsson²,

Huus³

et al. 2013

J Nurs Care

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A literature review of the results from nursing and psychosocial research within Swedish pediatric oncology. Nursing & Care, 3(6) Journal of AbstractThe body of research-based knowledge in paediatric caring science has been increasing leading to dramatic improvements in treatment. The purpose of this manuscript was to analyze results as stated by the researchers', in recently published articles on nursing and psychosocial research, within Swedish pediatric oncology setting. This was done through a review of 137 published articles about paediatric oncology related to caring science in Sweden. The result shows that the illness has affected, in both positive and negative ways, the wellbeing of everyone coming into contact with the child. The cancer also causes distress related to all aspects of life including physical, psychological, existential and social. Mediating factors for the experience of distress and wellbeing are: disease and treatment severity, age, gender and ethnicity of the participant, time since diagnosis, the use of internal and external support, and the identity of the person reporting the data. Health promoting aspects frequently reported are: family togetherness, coping strategies, engaging in normal life and activities, and quality of care which includes emotional support, information and family participation in care. The hospital staff has to be aware of the psychosocial issues experienced by children with cancer and their families, and they have to acknowledge the value of formal interventions, reporting benefits for children, families, and themselves.

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Review of Family-Based Psychosocial Interventions for Childhood Cancer

Cited by 56 publications

References 34 publications

Promoting Resilience among Parents and Caregivers of Children with Cancer

Promoting Resilience among Parents and Caregivers of Children with Cancer

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

A literature Review of the Results from Nursing and Psychosocial Research within Swedish Pediatric Oncology

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