Responsiveness of outcome measures in juvenile chronic arthritis. Italian Pediatric Rheumatology Study Group

Ruperto, Nicolino; Ravelli, Angelo; Falcini, Fabio; Lepore, Loredana; Buoncompagni, Antonella; Gerloni, Valeria; Bardare, M; Cortis, Elisabetta; Zulian, Francesco; Sardella, M; Strano, C. G.; Alessio, Maria; Alpigiani, MG; Migliavacca, Daniela; Pistorio, Angela; Viola, Stefania; Martini, Alberto

doi:10.1093/rheumatology/38.2.176

Cited by 39 publications

(27 citation statements)

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“…The CHAQ is well established for the use in children with JIA (14) and is used as one of six core response variables in clinical drug trials (15)(16)(17)(18)(19)(20). It has been validated and evaluated in the German language (21).…”

Section: Introductionmentioning

confidence: 99%

Improvement of functional ability in children with juvenile idiopathic arthritis by treatment with etanercept

Halbig

Horneff

2009

Rheumatol Int

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Section: Introductionmentioning

confidence: 99%

Improvement of functional ability in children with juvenile idiopathic arthritis by treatment with etanercept

Halbig

Horneff

2009

Rheumatol Int

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“…G More than one joint with limited range of motion (joint motion reduced by at least 5°f rom normative range for age 58 ).…”

mentioning

confidence: 99%

Is hydrotherapy cost-effective? A randomised controlled trial of combined hydrotherapy programmes compared with physiotherapy land techniques in children with juvenile idiopathic arthritis

Epps¹,

Ginnelly²,

Utley³

et al. 2005

Health Technol Assess

152

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Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per monograph and for the rest of the world £3 per monograph.You can order HTA monographs from our Despatch Agents:-fax (with credit card or official purchase order) -post (with credit card or official purchase order or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you either to pay securely by credit card or to print out your order and then post or fax it. Contact Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to Direct Mail Works Ltd and drawn on a bank with a UK address. Paying by credit cardThe following cards are accepted by phone, fax, post or via the website ordering pages: Delta, Eurocard, Mastercard, Solo, Switch and Visa. We advise against sending credit card details in a plain email.Paying by official purchase order You can post or fax these, but they must be from public bodies (i.e. NHS or universities) within the UK.We cannot at present accept purchase orders from commercial companies or from outside the UK. How do I get a copy of HTA on CD?Please use the form on the HTA website (www.hta.ac.uk/htacd.htm). Or contact Direct Mail Works (see contact details above) by email, post, fax or phone. HTA on CD is currently free of charge worldwide.The website also provides information about the HTA Programme and lists the membership of the various committees. HTA NHS R&D HTA ProgrammeT he research findings from the NHS R&D Health Technology Assessment (HTA) Programme directly influence key decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC) who rely on HTA outputs to help raise standards of care. HTA findings also help to improve the quality of the service in the NHS indirectly in that they form a key component of the 'National Knowledge Service' that is being developed to improve the evidence of clinical practice throughout the NHS.The HTA Programme was set up in 1993. Its role is to ensure that high-quality research information on the costs, effectiveness and broader impact of health technologies is produced in the most efficient way for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined to include all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care, rather than settings of care.The HTA Programme commissions research only on topics where it has identified key gaps in the evidence needed by the NHS. Suggestions for topics are actively sought from people working in the NHS, the public, service-users groups and professional bodies such as Royal Colleges and NHS Trusts.Research suggestions are carefully considered by panels of independent experts (including service users) whose advice results in a ranked list of recommended research priorities. The HTA Programme then commissions the research team best suited to und...

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“…Para ser qualificada como responsiva, uma medida deve ter mudanças consistentes ao longo do tempo, ou ser comparada a outra medida de valor conhecido 28 . Em consonância com outros estudos 17,27 , verificamos maior responsividade da avaliação global pelo médico e menor responsividade nas medidas de percepção pelos pais, entre as medidas subjetivas, tendo as medidas avaliadas por instrumento, sensibilidade relativa para estimar a melhora clínica em pacientes com artrite e recebendo tratamento específico. A despeito da menor responsividade, concluímos que a dimensão física e psicossocial, avaliada de forma abrangente por meio de instrumentos, é aplicável e útil no atendimento clínico rotineiro de pacientes.…”

Section: Discussionunclassified

Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis

Brasil¹,

Ferriani²,

Machado³

2003

J Pediatr (Rio J)

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ResumoObjetivo: estudar o impacto da artrite crônica na qualidade de vida relacionada à saúde, por meio de dois instrumentos autoaplicáveis: a versão destinada aos pais do Childhood Health Assessment Questionnaire (CHAQ) e do Child Health Questionnaire (CHQ) PF50 ® .Método: os dois questionários foram respondidos por 36 pais, após instruções durante 1 a 2 visitas clínicas, sendo os índices da Capacidade Funcional (CHAQ), Físico e Psicossocial (CHQ) comparados com as medidas essenciais de atividade da doença: (1) a avaliação global pelo médico, (2) a avaliação global pelos pais, ambas em escala analógica visual de 10 cm, (3) o número de articulações ativas, (4) o numero de articulações com limitação dos movimentos, (5) a velocidade de hemossedimentação.Resultados: houve diferença significante entre os grupos oligoarticular e poliarticular, sendo os índices de atividade maiores no poliarticular, com exceção da velocidade de hemossedimentação, avaliação global pelos pais e índice psicossocial, confirmando diferentes níveis de percepção pelos pais sobre a atividade e prognós-tico. A melhor responsividade estatística frente à intervenção terapêutica, em duas visitas consecutivas, foi a medida da avaliação global pelo médico entre as subjetivas, tendo as medidas avaliadas por instrumentos de responsividade intermediária, quando comparadas com o numero de articulações ativas, número de articulações com limitação dos movimentos e a velocidade de hemossedimentação.Conclusão: a medida da responsividade de dois instrumentos de avaliação funcional e da qualidade de vida indicou a sua sensibilidade relativa para estimar a melhora clínica em pacientes com artrites idiopáticas juvenis, recebendo tratamento específico.J Pediatr (Rio J) 2003;79(1):63-8: artrites idiopáticas juvenis, qualidade de vida relacionada à saúde, avaliação funcional, instrumentos auto-aplicáveis, prognóstico. AbstractObjective: to study the impact of chronic arthritis on health related quality of life by means of two self-reported tools: the parents' version of the Childhood Health Assessment Questionnaire (CHAQ) and the Childhood Health Questionnaire PF50 ® (CHQ).Methods: both tools were filled in after proper instructions by 36 parents, during 1-2 clinic visits. The Disability Index (CHAQ) and the Physical and Psychosocial scores (CHQ) were compared to the core set of outcome measures, namely 1) physician's global assessment, 2) parents' global assessment, both scored by 10 cm visual analogue scale, 3) number of joints with active arthritis, 4) number of joints with limited range of motion, 5) erythrocyte sedimentation rate.Results: there was significant difference for all measures of disease activity, being higher in the polyarticular as compared to oligoarticular except for erythrocyte sedimentation rate, parents' global assessment, and psychosocial score. This leads to different parents' perceptions of disease activity and outcome. The responsiveness of the outcome measures during two follow-up visits of patients receiving active treatment indicated...

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Responsiveness of outcome measures in juvenile chronic arthritis. Italian Pediatric Rheumatology Study Group

Cited by 39 publications

References 0 publications

Improvement of functional ability in children with juvenile idiopathic arthritis by treatment with etanercept

Improvement of functional ability in children with juvenile idiopathic arthritis by treatment with etanercept

Is hydrotherapy cost-effective? A randomised controlled trial of combined hydrotherapy programmes compared with physiotherapy land techniques in children with juvenile idiopathic arthritis

Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis

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