Resilience and difficulties of parents of children with a cleft lip and palate

Ueki, Showa; Fujita, Yuichi; Kitao, Mika; Kumagai, Yukari; Ike, Miho; Niinomi, Kazuteru; Matsunaka, Eriko; Fujiwara, Chieko

doi:10.1111/jjns.12231

Cited by 4 publications

(5 citation statements)

References 15 publications

(13 reference statements)

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“…This phenomenon resulted from the fact that mothers usually took more responsibilities on child caring in families in China, in comparison with fathers. What's more, more fathers were employed than mothers in this study, similar to other research ( 12 , 61 ). Besides, mothers had higher levels of parental involvement behaviors than fathers ( 62 ).…”

Section: Discussionsupporting

confidence: 90%

“…In this study, we also found that perceived social support made a positive contribution to the resilience of mothers of patients with CL/P. The positive effect of social support has been confirmed in many studies, both studies on the resilience of caregivers with chronic diseases ( 35 , 69 ) and studies on psychological conditions of caregivers of patients with CL/P ( 12 , 67 , 70 ). Perceived social support is a part of the positive psychological capital of almost all patients and caregivers.…”

Section: Discussionsupporting

confidence: 81%

“…Previous studies have shown that the normal development of psychological and social behavior among patients with CL/P depends mostly on the psychological state of their parents (8)(9)(10). However, parents of patients with CL/P are under more pressure, including "strike syndrome" (11)(12)(13), feeding difficulties (14,15), difficulties seeking medical treatment (16), a lack of disease information (17), a fear of treatment failure (17), heavy financial burden of treatment (18), growth and academic problems of patients (19)(20)(21)(22), marriage and family relationships (23,24), stigma (25,26), social isolation (27) and decreased quality of life (28,29). What's more, so far, the majority of related studies are on mothers, only few on fathers.…”

Section: Introductionmentioning

confidence: 99%

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Resilience and Related Factors: A Comparison of Fathers and Mothers of Patients With Cleft Lip and/or Palate in China

et al. 2022

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Background: Resilience has become a hot spot in the field of positive psychology to study life-change events. However, there were little information on resilience among the fathers and mothers of patients with cleft lip and/or palate respectively. The present study aimed to explore and compare the level and potential influential factors associated with resilience among fathers/mothers of patients with cleft lip and/or palate in China.Method: A cross-sectional study was carried out between April 2019 and July 2020 among fathers/mothers of patients with cleft lip and/or palate in two cleft lip and/or palate treatment centers in China. Sixty Nine fathers and 179 mothers of patients with cleft lip and/or palate were interviewed with a questionnaire on demographic variables and the Resilience Scale-14 (RS-14), Herth Hope Index (HHI), Multidimensional Scale of Perceived Social Support (MSPSS), Revised Life Orientation Test (LOT-R), Parenting Stress Index-Short Form (PSI-SF) and Coping Health Inventory for Parents (CHIP). T-test/univariate one-way ANOVA, Pearson's r, hierarchical linear regression analysis were conducted to explore the influential factors of resilience.Results: Fathers of patients with cleft lip and/or palate had a higher level of resilience (77.77 ± 14.18) than mothers (74.52 ± 14.33) though without significance. Resilience was positively associated with hope, perceived social support, optimism and coping and negatively correlated with parenting stress both in the fathers and the mothers. Hierarchical linear regression analysis showed that hope (β = 0.400, P < 0.01), coping (β = 0.281, P < 0.05), job status, medical payments (β = −0.240, P < 0.05) were found to be associated with resilience among the fathers of patients with CL/P, and all four variables in the model could explain 42.8% of the variance in resilience; Hope (β = 0.225, P < 0.05), perceived social support (β = 0.194, P < 0.05), the age of patients (β = 0.189, P < 0.05) were found to be associated with resilience among the mothers, and all three variables in the model could explain 27.6% of the variance in resilience.Conclusion: Our study showed that, in China, fathers of patients with cleft lip and/or palate had a higher level of resilience than mothers though without significance. Hope was the only communal variable strongly associated with resilience among both the fathers and the mothers; besides, coping, job status and medical payments were found to be associated with resilience among the fathers; while perceived social support and the age of patients were found to be associated with resilience among the mothers. The results suggest that enhance hope in parents of patients with cleft lip and/or palate might greatly help improve their resilience. Besides, fathers and mothers need specific intervention to prompt their resilience.

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Section: Discussionsupporting

confidence: 90%

Section: Discussionsupporting

confidence: 81%

Section: Introductionmentioning

confidence: 99%

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Resilience and Related Factors: A Comparison of Fathers and Mothers of Patients With Cleft Lip and/or Palate in China

et al. 2022

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“…CLP is a complex malformation that involves several psychosocial factors, which can generate anxiety, insecurity, and even guilt or rejection by the patient's family (UEKI et al, 2019). In addition, the family's daily life requires some adaptations, due to the treatment that usually occurs in specialized centers that are located far from their homes.…”

Section: Psychologymentioning

confidence: 99%

University Extension of Health Care: Multiprofessional care for people with cleft lip and palate

Ré¹,

Sepulveda²,

Schilling³

et al. 2023

Collection of International Topics in Health Science- V1

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Introduction: University extension enables a connection of the learning of students and teachers with the community, having multidirectional benefits for comprehensive and multidisciplinary health care. On the other hand, one of the most common congenital craniofacial malformations are cleft lip and palate (CLP), which need multidisciplinary attention from birth to optimize the process of habilitation and rehabilitation in health and monitor individual neuropsychological development. Objective: To report an extension proposal in health care for people with CLP. Materials and Methods: This is an experience report of an extension action in health care for children and adolescents with CLP. Results: This extension proposal counts on the interdisciplinary attention of the speech therapy, odontology, physiotherapy and psychology areas and, multidisciplinary of the medical area. The purpose of this extension activity involves the reception, habilitation of oral functions, neuropsychological development and rehabilitation of people with CLP. Conclusions: The reception and health care of individuals with CLP and their families can benefit from health care activities through university extension.

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“…Previous studies have reported resilience among parents of children with medical conditions such as cancer, acute lymphoblastic leukemia, and type 1 diabetes (T1D; Eilertsen et al, 2015;Rosenberg et al, 2013;Yi-Frazier et al, 2017). Ueki et al (2018) explored the differences in emotional difficulties and resilience between fathers and mothers of a child with a cleft lip and palate. However, researchers only analyzed the data of 64 couples, and the sample was relatively small for a survey.…”

Section: Resilience Parents and Orofacial Cleftsmentioning

confidence: 99%

Resilience and Associated Factors Among Parents of Children with Orofacial Clefts

2020

West J Nurs Res

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This study aims to examine the associations among social support, coping styles, and resilience in parents of children with orofacial clefts (OFCs). We conducted a cross-sectional study. Through convenience sampling, 306 parents of children with OFCs completed questionnaires on social support, coping styles, and resilience. Pearson’s correlations and hierarchical regression analyses were used to examine the relationships among the selected variables. The results showed that age, gender, educational level, diagnosis of children, severity of OFCs, social support, and positive coping style had significant associations with resilience, which jointly explained 69.1% of the total variance in resilience. The findings suggested that social support and a positive coping style may be instrumental in improving resilience. Further research is required to explore interventions to improve the resilience of parents of children with OFCs.

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Resilience and difficulties of parents of children with a cleft lip and palate

Cited by 4 publications

References 15 publications

Resilience and Related Factors: A Comparison of Fathers and Mothers of Patients With Cleft Lip and/or Palate in China

Resilience and Related Factors: A Comparison of Fathers and Mothers of Patients With Cleft Lip and/or Palate in China

University Extension of Health Care: Multiprofessional care for people with cleft lip and palate

Resilience and Associated Factors Among Parents of Children with Orofacial Clefts

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