Research Concerning Families of Children with Autism

Cantwell, Dennis P.; Baker, Lorian

doi:10.1007/978-1-4899-2293-9_3

Cited by 20 publications

(14 citation statements)

References 65 publications

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“…However, although case reports and clinical studies abound, there is a relative dearth of systematic research examining the association between autism and adaptation among individual family members (see reviews by Cantwell & Baker, 1984;Morgan, 1988). Mothers of autistic children may be at increased risk for psychosocial difficulties because of the scarcity of professional resources, unrelieved parental responsibilities, parental loneliness and isolation, and their child's minimal or slow progress (Bristol & SchapIer, 1983;Marcus, 1984).…”

Section: P'mentioning

confidence: 99%

Families of Autistic Children: Psychological Functioning of Mothers

Rodrigue

Morgan²,

Geffken³

1990

Journal of Clinical Child Psychology

184

121

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Section: P'mentioning

confidence: 99%

Families of Autistic Children: Psychological Functioning of Mothers

Rodrigue

Morgan²,

Geffken³

1990

Journal of Clinical Child Psychology

184

121

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“…OV E R R E C E N T Y E A R S , there has been an increase in theoretical and research interest in families of children with a diagnosis of learning disability. In the case of autism, early research focused on the presumed role of the family in the cause of the condition, postulating links with early traumatic separation, parental psychopathology and deviant parent-child interaction patterns (Cantwell & Baker, 1984). Contemporary theories construct autism as a pervasive developmental disorder, with a predominately organic aetiology, and characterized by specific cognitive deficits which lie along a spectrum of ability (Bailey, Phillips, & Rutter, 1996).…”

Section: Introductionmentioning

confidence: 99%

Parents' Constructions of the ‘Problem’ during Assessment and Diagnosis of their Child for an Autistic Spectrum Disorder

Avdi¹,

Griffin

Brough

2000

J Health Psychol

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The majority of studies on the effects of a diagnosis of learning disability in the family have employed traditional 'loss' and 'stress reaction' paradigms. In contrast to this approach, the current analysis employed a form of discourse analysis to explore the ways in which parents represented the 'problem' during the process of assessment of their child for an autistic spectrum disorder. The analysis suggested that parents employed three main discourses in their talk about the 'problem', which were termed the discourse of normal development, the medical discourse and the discourse of disability. The ways in which these discourses were used in constructing the 'problem', their relationship to each other and the discursive work underlying the diagnosis are discussed. Although this study focused on the specific case of autism, it is suggested that the findings could inform thinking around the complex ways in which medical diagnosis is constructed by families and extend our understanding of this important aspect of health care practice.

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“…For this wider population, some of the most distressing factors are focused on managing problem behaviour (Besag, 2002;Saloviita et al, 2003). For families of children with ASD there appear to be even greater constraints on family life, overwhelming levels of stress and social isolation (Cantwell and Baker, 1984;Moes, 1996). Some of the stressors specific to ASD are reflected in the priorities identified by parents in the present study for practical advice and help.…”

Section: Discussion and Implications For Practicementioning

confidence: 99%

“…For this group, uncertainty surrounding initial diagnosis, uneven functioning in children and therefore confused expectations, together with question marks over the availability of services and how these will be funded, contribute to parental anxiety (Schopler and Mesibov, 1984). Parents of autistic children have to contend with many challenges, and in the research literature a recurring theme is the very high levels of family stress and maternal depression associated with having a child with ASD (Cantwell and Baker, 1984;Moes, 1996). There are some indications that the pressures on parents with autistic children are higher than those of families with children with other special needs, such as Down Syndrome (Bristol, 1984).…”

Section: Introductionmentioning

confidence: 99%

Parental Perspectives on Early Intensive Intervention for Children Diagnosed with Autistic Spectrum Disorder

Webster

Feiler

Webster

et al. 2004

Journal of Early Childhood Research

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Previous research on early intensive intervention in autistic spectrum disorder (ASD) has largely focused on outcomes of treatment for children. Although some account has been taken of parental viewpoints, the potential impact of intervention on families has not achieved the same kind of research prominence. This contrasts with the considerable literature that exists exploring the experiences of parents of children with a wide range of special needs and disabilities. This article reports data from a Local Education Authority (LEA)-funded research commission designed to inform future policy and service provision. Themes are extracted from interview transcripts and questionnaire responses to reflect the views of 15 families, including nine whose children were receiving an LEA pilot intervention programme for ASD, and six who were managing their own interventions based on Applied Behavioural Analysis (ABA). Implications are drawn for future service delivery in support of key principles for early intervention for all families of young children with developmental disabilities.

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Research Concerning Families of Children with Autism

Cited by 20 publications

References 65 publications

Families of Autistic Children: Psychological Functioning of Mothers

Families of Autistic Children: Psychological Functioning of Mothers

Parents' Constructions of the ‘Problem’ during Assessment and Diagnosis of their Child for an Autistic Spectrum Disorder

Parental Perspectives on Early Intensive Intervention for Children Diagnosed with Autistic Spectrum Disorder

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