Research as intervention? Exploring the health and well-being of children and youth facing global adversity through participatory visual methods

D'Amico, Miranda; Denov, Myriam; Khan, Fatima; Linds, Warren; Akesson, Bree

doi:10.1080/17441692.2016.1165719

Cited by 63 publications

(42 citation statements)

References 51 publications

(33 reference statements)

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“…In addition to interviews or surveys, the most common methods of data collection for studies at higher levels of participation, were methods where children could be active and express themselves in other ways than verbal ones [ 30 , 31 , 35 , 42 , 46 , 52 , 57 – 59 , 63 ]. Such methods could for example include drawing, painting, writing [ 72 ], theatre [ 73 ], photography, filming [ 74 ] workshops, storytelling using software and digital tools, and mapmaking [ 73 ]. Using such methods at different stages in the research process does not in itself guarantee a participatory approach [ 74 , 75 ], but they can promote the participants’ sense of control and thereby enable them to take a more active part in the research process [ 73 ].…”

Section: Discussionmentioning

confidence: 99%

Children and young people’s participation in developing interventions in health and well-being: a scoping review

Larsson

Staland-Nyman

Svedberg

et al. 2018

BMC Health Serv Res

128

109

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BackgroundGreater interest is being shown in participatory approaches, especially in research on interventions that concern children and young people’s health and well-being. Although participatory approaches have user involvement in common, they differ in terms of the explicit guidance on how to actually involve and engage children and young people in health research. The aim of this scoping review was to systematically map recent research involving children and young people in the development of interventions targeting issues of health and well-being.MethodsAn interpretative scoping literature review based on: a scientific literature search in (health and social science) databases, reference lists, a manual search in key journals and contact with existing networks was conducted. A total of 4458 references were identified through the literature search, of which 41 studies published between 2000 and 2017 were included in the review. The target population was children and young people under 25 years old. Level of participation was categorized according to Shier’s Pathways to Participation Model.ResultsThe review showed that participatory approaches were most often used in the development of interventions in school settings and in community and healthcare settings and on issues concerning support in lifestyle or in managing illness or disease. The level of participation varied from children and young people taking part just as active informants, through stages of greater participation both in quantitative and qualitative terms, to children and young people becoming an active agent involved as a co-researcher where the research process was shaped by views of a higher level of mutuality. Most of the studies were categorised at a medium level and only three studies were judged to involve the children and young people at the highest level.ConclusionsThis scoping review showed that work remains in enabling children and young people to influence the development of interventions targeting health and well-being. In relation to level of sustainability in the interventions, it is relevant that goals, strategies and processes are formulated by those who can gain from the interventions. Participatory approaches aiming for a higher level of participation where children and young people work together with the researchers in partnerships are thus warranted.

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Section: Discussionmentioning

confidence: 99%

Children and young people’s participation in developing interventions in health and well-being: a scoping review

Larsson

Staland-Nyman

Svedberg

et al. 2018

BMC Health Serv Res

128

109

View full text Add to dashboard Cite

show abstract

“…Given the tragedy of war and genocide, words and narrative alone often cannot adequately capture the realities and complexity of conflict and migration-related experiences. As such, researchers and practitioners are increasingly turning to the arts to enable multiple forms of expression, as well as for the therapeutic, restorative, and empowering qualities of arts-based techniques (D'Amico, Denov, Khan, Linds, & Akesson, 2016;Green & Denov, in press;Leavy, 2009). Although the merging of art, war, migration, and direct social work practice are growing and essential for clients and practitioners, greater understanding of how art can be used within the context of social work practice and education is vital.…”

Section: Art and Social Work Practicementioning

confidence: 99%

Social work practice with war-affected children and families: the importance of family, culture, arts, and participatory approaches

Denov

Shevell

2018

Journal of Family Social Work

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War and armed conflict not only gravely impact individual children, but the entire family system, with the impacts of war further compounded by the complexities of displacement, flight, migration, and resettlement to new contexts. These processes can cause destabilizing ruptures in the social fabric, networks, and services that support and protect children and families, ultimately hindering their potential protective capacities and potentially contributing to negative long-term intergenerational effects. The family plays a vital role in shaping children's mental health and well-being in conflict and post conflict settings, and thus the family needs to be accorded greater consideration in designing psychosocial support services for war-affected populations. With growing numbers of war-affected refugees resettling in Canada and the U.S., it is critical that psychosocial programs and interventions address their unique needs, as individuals, families, and communities. Moreover, there is a greater need for culturally responsive practice with war-affected refugee children and families that accounts for the diversity and heterogeneity of their needs and lived experiences. In this Special Issue entitled: "Children of War and their Families: Perspectives on Social Work Practice & Education", we suggest that factors such as fostering a family approach, allotting careful attention to context and culture, alongside an emphasis on linking the arts and participation with social work practice, can be key social work contributions to research, education, and practice with this important and often overlooked population.

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“…Research that utilises non-verbal methods, such as drawings, are also increasingly recognised as particularly ethical as they offer research subjects active participation in the research process, authenticating their voice through their engagement, offering more developmentally appropriate means of accessing data, diminishing stress in the child/adolescent-adult interaction and providing a more comfortable method of engagement than language (Clacherty & Donald, 2007;Coad, 2007;D'Amico et al, 2016;Driessnack, 2005;Berman, 2016). Non-verbal methods thus offer children/adolescents and adults an easier platform for communication.…”

Section: Image Making In the Research Processmentioning

confidence: 99%

Revealing the impact of loss: Exploring mental health through the use of drawing/writing with HIV positive adolescents in Johannesburg

Woollett

Brahmbhatt

Dodd³

et al. 2017

Children and Youth Services Review

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Background: Loss and bereavement are pervasive in the lives of perinatally infected HIV positive adolescents, however little is known about how this population experiences loss. This study aimed to understand how mental health was reflected in drawings/writing of perinatally infected HIV adolescents in Johannesburg. Loss was explored through these methods and facilitated by lay counsellors. Methods: Mental health (depression, anxiety, post traumatic stress disorder, suicidality) was assessed for n=343 HIV positive adolescents and the most and least symptomatic participants (n=26; 13 females (50%); aged 13-19 years) were identified. Drawings and written accounts of the loss of a significant attachment figure of participants were assessed and compared by professionals (art therapists, psychologists, social workers and counsellors) in 3 focus group discussions (FGDs). These data were analysed using a thematic approach to coding. Results: The drawings and written accounts in this study highlight contextual deprivation, including high exposure to multiple and consistent losses of significant attachment figures. They also underscore emotional deprivation and impoverishment, including unresolved complicated grieving impacting on mental health functioning. Views from focus group participants emphasized missed opportunities, including failure to address the mental health concerns of a population at risk. Conclusion: The impact of unprocessed loss early in life has long term negative consequences for HIV positive adolescents. Innovative methods are required to address unmet mental health needs of this patient population. The use of non-verbal methods (drawing and writing) by healthcare professionals could be especially valuable to both patient and provider, particularly in the case of managing bereavement.

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Research as intervention? Exploring the health and well-being of children and youth facing global adversity through participatory visual methods

Cited by 63 publications

References 51 publications

Children and young people’s participation in developing interventions in health and well-being: a scoping review

Children and young people’s participation in developing interventions in health and well-being: a scoping review

Social work practice with war-affected children and families: the importance of family, culture, arts, and participatory approaches

Revealing the impact of loss: Exploring mental health through the use of drawing/writing with HIV positive adolescents in Johannesburg

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