Reliability and Validity of Turkish Myasthenia Gravis-Activities of Daily Living Scale

Karanfil, Ecem; Salcı, Yeliz; Fil-Balkan, Ayla; Bekircan-Kurt, Can Ebru; Özdamar, Sevim Erdem; Armutlu, Kadriye

doi:10.1177/1539449220961077

Cited by 4 publications

(7 citation statements)

References 33 publications

(49 reference statements)

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“…18 The internal consistency of the Italian, Arabic, and Turkish versions of MG-ADL was different. 15 , 16 , 19 The internal consistency of the Turkish version of MG-ADL was obtained 0.67, similar to the Mohd Thabit et al study.…”

Section: Discussionsupporting

confidence: 85%

“…Several studies have demonstrated excellent test-retest reliability in the different languages. 15 - 17 , 19 …”

Section: Discussionmentioning

confidence: 99%

“…The test-retest correlation of the MG-ADL-P scale was excellent for all the items similar to other studies. 9 , 19 Generally, on a reliable scale, all items should be correlated with the total score. We documented that all scale items were excellent except talking and swallowing items that represented a very good correlation with the total score.…”

Section: Discussionmentioning

confidence: 99%

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Validation of myasthenia gravis activity of daily living questionnaire: Persian version

Faghani¹,

Okhvat²,

Karimi³

et al. 2022

CJN

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Background: The 8-item myasthenia gravis activity of daily living (MG-ADL) questionnaire is a valid and reliable instrument for evaluating myasthenia gravis (MG)-associated disability. This study aims to assess its validity and reliability in the Iranian population. Methods: A total number of 58 patients with MG were qualified for the examination. All 58 patients completed the Persian translation of 15-item Myasthenia Gravis Quality of Life (MG-QOL15) and MG-ADL questionnaires initially, and 30 filled out the MG-ADL questionnaire 2 to 4 weeks after the initial visit. Pearson correlation coefficient of questionnaires, internal consistency using Cronbach's alpha (α), and test-retest repeatability of the questionnaire were evaluated. Results: The Pearson correlation coefficient of Persian versions of MG-QOL and MG-ADL was 0.93 (P < 0.01). The Persian MG-ADL showed satisfactory internal consistency (Cronbach’s α = 0.89) and test-retest reliability (r = 0.99, P < 0.01). Conclusion: The Persian MG-ADL is a valid and reliable questionnaire for the determination of activities of daily life in Iranian patients with MG.

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Section: Discussionsupporting

confidence: 85%

“…Several studies have demonstrated excellent test-retest reliability in the different languages. 15 - 17 , 19 …”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Validation of myasthenia gravis activity of daily living questionnaire: Persian version

Faghani¹,

Okhvat²,

Karimi³

et al. 2022

CJN

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“…The MG-QOL15 is a speci c assessment scale of the quality-of-life speci c assessment scale for myasthenia gravis which is most widely used, cross-culturally validated [11][12][13][14][15], and encompasses the physical, psychological, and social dimensions of quality-of-life assessment. MG-ADL is used as an extension of the quantitative MG scoring system (QMG) (a standardized scale for the objective measurement of muscle strength and endurance in MG-involved muscle groups) to assess the current severity of the disease in patients with myasthenia gravis.…”

Section: Discussionmentioning

confidence: 99%

The utility of a single simple question in the evaluation of the quality of life of patients with myasthenia gravis

Liu

et al. 2023

Preprint

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Background and purpose It is difficult to provide a complete and accurate assessment of the quality of life of patients with myasthenia gravis (MG). The objective was to explore a new evaluation method of the quality of life of patients with myasthenia gravis and investigate it’s influencing factors. Methods A single-center cross-sectional analysis was performed on myasthenia gravis patients who received continuous treatment in the Neurology outpatient clinic from January 2020 to September 2022. A self-made questionnaire was used to collect patients’ social demographic and clinical features、economic burden. Myasthenia gravis activities of daily living profile(MG-ADL), the 15-item myasthenia gravis quality of life scale(MG-QOL15), the single simple question(SSQ) -- "How satisfied are you with your quality of life since myasthenia gravis (last 1 month)?" (0–10 points, 0 points represent completely dissatisfied with the quality of life, 10 points represent strongly satisfied with the quality of life, ≥ 8 points are classified as high SSQ, ＜8 points were classified as low SSQ). Correlation analysis was conducted between SSQ and MG-ADL and MG-QOL15, and univariate and multivariate binary logistics were used to analyze the influencing factors of high SSQ. Results A total of 99 valid questionnaires were collected in this study. There was a moderate negative correlation between the SSQ and MG-ADL (r=-0.547, P = 0.000) and MG-QOL15 (r=-0.608, P = 0.000). There was also a significant negative correlation between SSQ and physiological subgroup (r=-0.552, P = 0.000), psychological subgroup (r=-0.562, P = 0.000), and social subgroup (r=-0.534, P = 0.000) of MG-QO15. The AUC value of MG-QOL15 was 0.797 (95%CI: 70.38%-89.08%), and the Cut-off value was 6 points (0.794 sensitivity, 0.708 specificity). The AUC value of MG-ADL was 0.783 (95%CI: 68.91%-87.69%), and the Cut-off value was 0 points (0.912 sensitivity, 0.523 specificity). There was statistical significance in the SSQ among groups with different economic burdens (F = 2.988, P = 0.023). logistics regression analysis model showed that the MGFA-PIS and MG-QOL15 were the main influencing factors of SSQ (z= -2.663, OR = 0.294 P = 0.008) (z= -2.948, 0R = 0.935, P = 0.003). Conclusion The single simple question -"How satisfied you are with your quality of life since myasthenia gravis (last 1 month)?" is a feasible and effective method to evaluate the quality of life of MG patients, and it can be recommended for routine clinical assessment. The prognosis and economic burden of the disease are important factors influencing the quality of life of patients with myasthenia gravis.

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“…The MG-ADL is responsive to clinical improvement, and it can be also used to assess the progression of the disease and to determine the effectiveness of the treatment (6-8). This scale has been translated into other languages, and those versions have been validated (9)(10)(11)(12). Due to the fact that there is no MG-specific assessment tool for the severity of symptoms and their effect on daily activities in the Latvian language, our aim was to translate and adapt the MG-ADL to Latvian and to evaluate the Latvian version (MG-ADL-L) in terms of construct validity and reliability.…”

Section: Introductionmentioning

confidence: 99%

Translation and validation of the Myasthenia Gravis Activities of Daily Living Questionnaire: Latvian version

Grosmane,

Roze,

Roddate

et al. 2024

Front. Neurol.

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IntroductionOur aim was to translate, adapt and validate the Myasthenia Gravis Activities of Daily Living scale into the Latvian language and to evaluate this instrument (MG-ADL-L) in terms of construct validity and reliability.MethodsWe enrolled patients with a confirmed MG diagnosis, who could speak Latvian fluently. We performed translation and adaptation according to the cross-cultural adaptation guidelines for self-reported measures. The patients were evaluated by a physician according to the Myasthenia Gravis Foundation of America classification (MGFA) and using the Myasthenia Gravis Composite Score (MGCS). Patients were asked to complete the MG-ADL-L and the 15-item Myasthenia Gravis Quality of Life (MGQOL15) Internal consistency was evaluated based on Cronbach’s α, reproducibility—Cohen’s weighted kappa and construct validity—Spearman’s correlation between the MG-ADL-L and the MGQOL15 and MGCS. We used the Kruskal–Wallis H test to compare the MG-ADL-L score distribution between the MGFA groups.Results38 enrolled patients in the study. There was an acceptable internal consistency (Cronbach’s α = 0.76) and moderate to very good agreement between the test and retest scores (Cohen’s weighted kappa = 0.54 and 0.81). The MG-ADL-L showed a moderate positive correlation with the MGQOL15 (r = 0.5, p = 0.001) and the MGCS (r = 0.62, p < 0.001). There was a significant difference in MG-ADL-L scores between the MGFA groups (p = 0.007).DiscussionThe MG-ADL-L is a valid and reliable self-reported scale to assess and evaluate symptom severity and the impact of the disease on the lives of patients with MG.

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Reliability and Validity of Turkish Myasthenia Gravis-Activities of Daily Living Scale

Cited by 4 publications

References 33 publications

Validation of myasthenia gravis activity of daily living questionnaire: Persian version

Validation of myasthenia gravis activity of daily living questionnaire: Persian version

The utility of a single simple question in the evaluation of the quality of life of patients with myasthenia gravis

Translation and validation of the Myasthenia Gravis Activities of Daily Living Questionnaire: Latvian version

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