Relatives of Children Bearing Sickle Cell Anemia: Knowledge and Practice / O Familiar da Criança com Doença Falciforme: Saberes e Práticas

Abstract

Objective: This work aims to describe the type of care provided by relatives for children with sickle cell anemia according to Collière. Methods: It is descriptive study with a qualitative approach, which was carried out with relatives of children bearing sickle cell anemia in a general hospital in Vitória city, Espírito Santo State, Brazil, by using semi-structured interviews. Data were interpreted in light of the Collière's Theoretical Reference and submitted to Thematic Analysis. Results: Families had to deal with the health care professionals' lack of skill needed to convey the diagnostic. Also, there was a predominance of the maintenance care related to the time of diagnosis, playing, daily medication, body hydration, diet, elimination, and clothing. Nonetheless, repair care was restricted to emergency situations. Conclusion: It is necessary to train the professionals who care for children with sickle cell anemia to better meet their needs and those of their families.

Perspectiva do cuidador familiar frente a criança com anemia falciforme: uma revisão integrativa

“…O cuidado no cotidiano ofertado pela assistência domiciliar se caracteriza por ser integral e amplo, abrangendo praticas em todos os eixos do indivíduo, desde ofertar uma alimentação equilibrada entre proteínas, fibras e carboidratos, á evitar ao máximo alimentos hiper lipídicos e hiper sódicos, combinando isso com uma ingesta hídrica adequada, tanto no ambiente domiciliar quanto escolar, e assim evidenciou-se também, uma preocupação com a temperatura do ambiente, agasalhando bem o filho em dias frios, e ofertando poucas roupas em dias quentes, e entre outras atividades desempenhadas cotidianamente pelo cuidador domiciliar (Pacheco et al 2019).…”