Relaciones padres-médicos en oncología: un enfoque cualitativo

Grau, Cai; Espada, M.C.; Fortes, M.

doi:10.4321/s1137-66272010000400004

Cited by 2 publications

(2 citation statements)

References 2 publications

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“…This psychological reaction exists not only in families living with childhood leukaemia survivors but also in the early process after diagnosis (Kim et al, 2018; Yi et al, 2016). Combined with the results of previous studies (Grau et al, 2010), the word leukaemia has a strong social stigma. Because of the social prejudice and the stereotype of leukaemia in China, childhood leukaemia is such a taboo topic that it is easily associated with misinformed social ideas, such as that it is recognised as an ‘incurable disease’ or a ‘dreaded disease’ (Liu et al, 2020).…”

Section: Discussionsupporting

confidence: 70%

Finding family resilience in adversity: A grounded theory of families with children diagnosed with leukaemia

Huang

Chen

Zhang

et al. 2023

Journal of Clinical Nursing

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Aims and Objectives:To develop a conceptual framework that explores the process of building family resilience among Chinese families with children diagnosed with leukaemia. Background:The diagnosis of childhood leukaemia has a devastating effect on the family. Nonetheless, some families were able to positively respond to the crisis. The process through which Chinese families bounce back has received little attention. Design: Grounded theory. Methods: This study used purposive and theoretical sampling to select 16 parents who agreed to participate in semistructured interviews after children were diagnosed with leukaemia. Data collection and analysis occurred simultaneously. Data were analysed through a process of open, axial and selective coding. The COREQ checklist was followed for reporting. Results: A core category of 'finding family resilience in adversity' was generated. The core category was underpinned by a transition process between two fluid stages: (a) Disrupting the family system, informed by subcategories of negative emotional disturbances and challenges of the diagnosis and treatment journey; (b) Cultivating resilience in families, informed by subcategories of increasing positive attitudes; establishing new family routines; activating good support systems; and practising open family communication. Conclusions: The transition process from the disruption of the family system to the cultivation of family resilience is perceived as a complex family dynamic in response to childhood leukaemia. Our findings can form the basis for further research about resilience-based family interventions that promote family well-being during the early stages of a childhood leukaemia diagnosis. Relevance to Clinical Practice: It is necessary for healthcare professionals to provide essential support for families to face the challenges of diagnosis and treatment to facilitate the successful transition to family resilience. By understanding the dynamic process of developing family resilience, healthcare professionals are able to focus on | 5161 HUANG et al.

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Section: Discussionsupporting

confidence: 70%

Finding family resilience in adversity: A grounded theory of families with children diagnosed with leukaemia

Huang

Chen

Zhang

et al. 2023

Journal of Clinical Nursing

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“…Para conseguir estos objetivos hemos utilizado una metodología cualitativa de carácter grupal (1,2) .…”

Section: Introductionunclassified

Percepciones de los padres de niños enfermos de cáncer sobre los cambios en las relaciones familiares

Grau¹,

Espada

2012

Psicooncología

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ResumenObjetivos: conocer cómo perciben los padres los cambios producidos en las relaciones familiares debidos a un cáncer pediátrico.Método: Se ha utilizado una metodología de investigación grupal (grupos de autoayuda) y cualitativa (análisis del discurso de los participantes en las sesiones grupales). La muestra la constituyen 22 madres/padres cuyos hijos hace más de dos años que han contraído la enfermedad. Las sesiones grupales se realizaron en la sede de ASPANION (Asociación de padres de niños oncológicos de la Comunidad Valenciana) en Valencia.Resultados: Se constata cómo la enfermedad cambia las relaciones: -Con la pareja: redistribución de roles, diferentes formas de reaccionar y de asumir responsabilidades por parte de los padres, dificultades en la comunicación, alteraciones en las relaciones sexuales...-Con los otros hijos y con el niño enfermo.-Con la familia extensa: apoyo, falta de comunicación, y desarrollo de sentimientos inapropiados. También se constatan problemas en el manejo de la enfermedad después de la hospitalización, y en las actividades lúdicas.Palabras clave: Oncología pediátrica, familia, orientación familiar, sesiones grupales. AbstractObjectives: Understanding how parents perceive the changes that occur in family relations as a result of pediatric cancer.Method: We used a research methodology that is both group-based (self-help groups) and qualitative (discourse analysis of participants in group sessions). The sample is composed of 22 parents whose children contracted the disease more than two years before. Group sessions were held at the headquarters of ASPANION (Association of Parents of Children with Cancer of Valencia) in Valencia.Results: It is argued that the disease changes the relationships between family members: -Foreign partner: redistribution of roles, different ways to react and to take responsibility on the part of parents, difficulty in communication, alterations in sexual relationships, and so on.-Relations with other children and the sick child.-Relations with the extended family: support, lack of communication and development of inappropriate feelings.Problems in the management of the disease after hospitalization and development of recreational activities have also been.

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Relaciones padres-médicos en oncología: un enfoque cualitativo

Cited by 2 publications

References 2 publications

Finding family resilience in adversity: A grounded theory of families with children diagnosed with leukaemia

Finding family resilience in adversity: A grounded theory of families with children diagnosed with leukaemia

Percepciones de los padres de niños enfermos de cáncer sobre los cambios en las relaciones familiares

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