Register zur Erfassung von Spätfolgen nach Strahlentherapie im Kindes- und Jugendalter - erste Ergebnisse

Bölling, Tobias; Schuck, Andreas; Pape, H.; Rübe, Christian; Fm, Meyer; Martini, Carmen; Timmermann, Beate; Asadpour, Branka; Kortmann, RD; Jd, Beck; Langer, Thor﻿s﻿ten; Paulides, Marios; Könemann, Stefan; Willich, Normann

doi:10.1055/s-2007-973848

Cited by 12 publications

(3 citation statements)

References 2 publications

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“…To obtain statistically robust data on the types and doses of anticancer drugs and radiation therapy that may increase the risk of infertility in paediatric oncology patients, we plan to conduct a nationwide survey with a larger number of participants. Former cancer patients will be contacted using data from the DKKR, from therapy-optimisation trials (TOS), and from the German Registry for the Documentation of Long-term Sequelae Following Radiation Therapy in Children and Youth (RISK) [5,20] . This nationwide survey 'Fertility after Chemo-and Radiotherapy in Paediatric and Adolescent Patients' (FeCt) will be supported by the Deutsche Kinderkrebsstiftung.…”

Section: Discussionmentioning

confidence: 99%

Having Children after Surviving Cancer in Childhood or Adolescence - Results of a Berlin Survey

Reinmuth¹,

Liebeskind²,

Wickmann³

et al. 2008

Klin Padiatr

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We intend to conduct a nationwide survey entitled 'Fertility after Chemo- and Radiotherapy in Paediatric and Adolescent Patients' (FeCt). The aim is to gain valuable data with a larger number of participants and more statistical power to determine whether specific cytotoxic drugs or radiation increase the risk of infertility, and if so, at what doses. For the study, the DKKR has the addresses of more than 5 000 former patients in Germany who are now adults. The results will be used to plan future treatment optimisation studies, and to assess the need for prophylactic measures in cases where fertility-compromising therapies are unavoidable. This nationwide survey 'FeCt' will be supported by the Deutsche Kinderkrebsstiftung.

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Section: Discussionmentioning

confidence: 99%

Having Children after Surviving Cancer in Childhood or Adolescence - Results of a Berlin Survey

Reinmuth¹,

Liebeskind²,

Wickmann³

et al. 2008

Klin Padiatr

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“…Here, the time interval of up to ten years seems particularly relevant. Improved access to long-term follow-up care through radiation therapy and a focus on cooperation with the registry for recording radiogenic long-term effects in children and adolescents (RiSK) appear as suitable solutions to address this problem in the future [2].…”

Section: Long-term Effects In Sensory Impressions and Neurocognition ...mentioning

confidence: 99%

Network Oncolgy Specialist Advisory Service – A Survey of the Psychosocial Situation of Long Term Cancer Survivors During Childhood or Adolescents

Toenne¹,

Baumeister²,

Koch³

et al. 2021

Klin Padiatr

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Background The number of long term cancer survivors during childhood or adolescence is increasing steadily. Survivors often suffer from physical or psychosocial long term effects. There is currently little data on the arrangement of long term aftercare in the field of psychosocial care. Methods In November 2017 a questionnaire was sent to 1900 cancer survivors aged between 18 and 35 years whose diagnosis dated at least five years prior. The obtained data serve as a condition and needs assessment, how the (psychosocial) long-term aftercare is perceived by the survivors and what else is desired. The analysis was conducted using descriptive statistics as well as the calculation of bivariate correlations. Results The response rate was 54.9% (n=1.043). The median interval from the first diagnosis was 20 years. In total 666 survivors (63.9%) stated that they suffered from at least one long term effect. Within this, especially neurocognitive themes played a role. 87.2% of the respondents had the feeling that they had overcome the illness/therapy well. Conclusion Through a stronger patient-focussed orientation concerning the current care and advisory services, the situation of long term survivors could be improved. This especially includes access to relevant information that focuses on the available psychosocial and welfare services, as well as to advisory and care services. Additionally, the development and expansion of care structures in the areas of neurocognition and psychotherapy is important to ensure long term participation attendance.

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“…sches Zeichen, da eine Bulbusprotrusion von 1 mm erst bei einer Volumenzunahme des Orbitainhaltes von 750 mm 3 auftritt, was einem Kugeldurchmesser von 11,3 mm entspricht. Dem klinischen Bild des Exophthalmus, der häufig mit einer akuten Diplopie oder einer Bulbusverlagerung durch die retrobulbäre Raumforderung assoziiert ist, geht häufig eine schmerzlose Lidschwellung voraus (l " Abb.…”

Section: Klinisches Bildunclassified

Therapiekonzepte und Behandlungsergebnisse maligner Orbitatumoren im Kindesalter

Sterker

Hirsch²,

Kortmann

et al. 2008

Klin Monatsbl Augenheilkd

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Orbital rhabdomyosarcoma is one of the few life-threatening diseases often first seen by an ophthalmologist. The ophthalmologist's prompt diagnosis and initiation of therapy therefore strongly influences the patient's chance of survival. The role of the ophthalmologist in the medical care of children with orbital malignancies includes a timely clinical diagnosis with histological confirmation, close monitoring of visual functions, the management of ocular complications, as well as long-term follow-up care to detect later therapeutic side effects and/or complications. The treatment of children with suspected tumours is best performed in paediatric oncological centres with access to all necessary specialties in order to ensure rapid diagnosis and therapy.

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Register zur Erfassung von Spätfolgen nach Strahlentherapie im Kindes- und Jugendalter - erste Ergebnisse

Cited by 12 publications

References 2 publications

Having Children after Surviving Cancer in Childhood or Adolescence - Results of a Berlin Survey

Having Children after Surviving Cancer in Childhood or Adolescence - Results of a Berlin Survey

Network Oncolgy Specialist Advisory Service – A Survey of the Psychosocial Situation of Long Term Cancer Survivors During Childhood or Adolescents

Therapiekonzepte und Behandlungsergebnisse maligner Orbitatumoren im Kindesalter

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