Referral of Very Low Birth Weight Infants to High-Risk Follow-Up at Neonatal Intensive Care Unit Discharge Varies Widely across California

Hintz, Susan R.; Gould, Jeffrey B.; Bennett, Mihoko V.; Gray, Erika; Kagawa, Kimie J.; Schulman, Joseph D.; Murphy, Barbara; Villarin-Duenas, Grace; Lee, Henry

doi:10.1016/j.jpeds.2014.10.038

Cited by 52 publications

(37 citation statements)

References 28 publications

(12 reference statements)

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“…We aim to tie our current study findings to long-term outcomes in the future through the CPQCC-California Children's Services High Risk Infant Follow-up Quality of Care Initiative, which collects data on outcomes at 2 years of age for eligible patients. 37 abbRevIaTIOns CI: confidence interval CPQCC: California Perinatal Quality Care Collaborative GA: gestational age OR: odds ratio PDA: patent ductus arteriosus VLBW: very low birth weight…”

Section: Discussionmentioning

confidence: 99%

Trends in Patent Ductus Arteriosus Diagnosis and Management for Very Low Birth Weight Infants

et al. 2017

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Section: Discussionmentioning

confidence: 99%

Trends in Patent Ductus Arteriosus Diagnosis and Management for Very Low Birth Weight Infants

et al. 2017

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“…Families caring for high-risk infants face multiple challenges in meeting their child's health needs, which are pronounced in underserved populations. For example, Hispanic and Black families are less likely to be referred to high-risk infant follow up programs [6] and Black families are five to eight times less likely to follow up at the 24 month visit in early intervention programs [7]. Disparities in transition-to-home and follow-up for families who have limited English proficiency and/or are minorities or low-income exist and may be reduced by engaging families in the process of re-designing transition of care from NICU-to-home [3,4,[8][9][10].…”

Section: Introductionmentioning

confidence: 99%

Viewpoints from families for improving transition from NICU-to-home for infants with medical complexity at a safety net hospital: a qualitative study

et al. 2019

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Background: We have limited information on families' experiences during transition and after discharge from the neonatal intensive care unit. Methods: Open-ended semi-structured interviews were conducted with English or Spanish-speaking families enrolled in Medicaid in an urban high-risk infant follow up clinic at a safety-net center, which serves preterm and high-risk term infants. We generated salient themes using inductive-deductive thematic analysis. Results: Twenty-one participants completed the study. The infant's median (IQR) birth weight was 1750 (1305, 2641) grams; 71% were Hispanic and 10% were Black non-Hispanic; 62% reported living in a neighborhood with 3-4th quartile economic hardship. All were classified as having chronic disease per the Pediatric Medical Complexity Algorithm and 67% had medical complexity. A conceptual model was constructed and the analysis revealed major themes describing families' challenges and ideas to support transition centered on the parent-child role and parent self-efficacy. The challenges were: (1) comparison to normal babies, (2) caregiver mental health, (3) need for information. Ideas to support transition included, (1) support systems, (2) interventions using mobile health technology (3) improved communication to the primary care provider and (4) information regarding financial assistance programs. Specific subthemes differed in frequency counts between infants with and without medical complexity. Conclusions: Families often compare their preterm or high-risk infant to their peers and mothers feel great anxiety and stress. However, families often found hope and resilience in peer support and cited that in addition to information needs, interventions using mobile health technology and transition and financial systems could better support families after discharge.

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“…These process-improvement strategies were implemented in collaboration with the CPQCC-CCS HRIF Quality of Care Initiative after an analysis demonstrated poor HRIF referral rates from California NICUs for eligible high-risk infants. 16 We were surprised and encouraged that most respondents felt they had adequate resources to communicate with non-English speakers. This is reassuring in light of the fact that in California 44% of residents speak a language other than English (compared with 21% nationally), and 19% of residents speak English less than "very well."…”

Section: Discussionmentioning

confidence: 99%

“…Additional details regarding the organizational structure of this statewide network of HRIF programs are described in previous studies. 15,16…”

Section: Study Settingmentioning

confidence: 99%

Programmatic and Administrative Barriers to High-Risk Infant Follow-Up Care

et al. 2018

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Referral of Very Low Birth Weight Infants to High-Risk Follow-Up at Neonatal Intensive Care Unit Discharge Varies Widely across California

Cited by 52 publications

References 28 publications

Trends in Patent Ductus Arteriosus Diagnosis and Management for Very Low Birth Weight Infants

Trends in Patent Ductus Arteriosus Diagnosis and Management for Very Low Birth Weight Infants

Viewpoints from families for improving transition from NICU-to-home for infants with medical complexity at a safety net hospital: a qualitative study

Programmatic and Administrative Barriers to High-Risk Infant Follow-Up Care

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