Reducing the unmet needs of patients with colorectal cancer: a feasibility study of The Pathfinder Volunteer Program

Macvean, Michelle; White, Victoria; Pratt, Sarah I.; Grogan, Suzanne; Sanson‐Fisher, Rob

doi:10.1007/s00520-006-0128-4

Cited by 39 publications

(56 citation statements)

References 17 publications

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“…Surprisingly, "fears about cancer spreading and cancer returning" did not show among the ten highest needs like has been shown in other similar studies. [26][27][28] This result may be related to the fact that majority of our participants were recently diagnosed and that they may not think about recurrence so close to their initial diagnosis.…”

Section: Discussionmentioning

confidence: 91%

Identification of supportive care needs in a sample of Puerto Rican cancer patients with the supportive care needs survey

Gonzalez

Tirado

Hughes

et al. 2015

JNEP

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Background: Puerto Ricans are among the largest Hispanic groups in the US. Clinicians/researchers must become skilled in assessing the prevalence of the perceived unmet needs of Puerto Rican cancer patients undergoing treatment to properly respond to their needs, and is an important part of any culturally comprehensive oncological care. Objective: To assess Puerto Rican cancer survivors reports of perceived unmet needs across 5 domains of the cancer experience: "psychological", "health system and information", "physical and daily living", "patient care and support", and "sexuality" and to examine how the perceived unmet needs and disease characteristics are inter-related. Methods: A cross-sectional survey was conducted from 103 patients (64.1% female, male 35.9%, mean age 54 years) undergoing cancer treatments. The study participants were >20 years of age with breast (28%), gynecologic (21%), prostate (17%) and gastrointestinal (14%) cancer, mostly on chemotherapy. Overall internal consistency of the Supportive Care Needs Survey was 0.882. Results: Patients perceived needs were highest in the domains of sexuality (67%), physical and daily living (55.3%), and psychological (38.8%). Breast cancer was significantly related to reporting unmet needs in the domains of health services/information (p = .018) and sexuality (p = .009). Prostate cancer showed a significant relationship with unmet needs in the domains of psychological (p = .050) and, the physical/daily living (p < .001). Receiving chemotherapy was related with unmet needs in the domains of sexuality (p = .02), and the physical/daily living (p = .047); and, receiving combination of radiation and hormonal therapy was related to unmet needs in the physical/daily living needs domain (p = .024). Conclusions: The accurate assessment of supportive care needs is important in the management of cancer patients. The unmet supportive care needs of our sample of Puerto Rican cancer patients seem to be affected by cancer site and treatment modality.

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Section: Discussionmentioning

confidence: 91%

Identification of supportive care needs in a sample of Puerto Rican cancer patients with the supportive care needs survey

Gonzalez

Tirado

Hughes

et al. 2015

JNEP

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“…Psychological intervention has been integrated inside as an essential component. Various kinds of supportive care programmes have been developed and applied in cancer patients, some of which demonstrated positive effects (Macvean et al, 2007;Sussman et al, 2011;Yavuzsen et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

Perioperative Comprehensive Supportive Care Interventions for Chinese Patients with Esophageal Carcinoma: a Prospective Study

Zhang

Zhao²,

Fang³

et al. 2013

Asian Pacific Journal of Cancer Prevention

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Objective: To assess the effects of perioperative comprehensive supportive care interventions on outcome of Chinese esophageal cancer patients in a prospective study. Methods: 60 patients with primary esophageal carcinoma were randomized into an intervention group (IG, n=31) and a control group (CG, n=29). The Chinese version of symptom checklist-90 (SCL-90) was adopted to assess their psychological status. The interventions, including health education, psychological support, stress management, coping strategies and behavior training, were carried out in 3 phases (preoperative, postoperative Ⅰ and postoperative Ⅱ), and psychological effects were thereafter evaluated accordingly before surgery, and 1 week, 4 weeks and 24 weeks post-surgery. Medical costs were estimated at discharge. Survival of patients was estimated each year post-surgery. General health status and satisfaction-with-hospital were surveyed by a follow-up questionnaire 4 years post-surgery. Results: All the subjects demonstrated higher scores in the preoperative phase than the normal range of Chinese population concerning 7 psychological domains including somatization, obsessive-compulsive, depression, anxiety, hostility, phobic anxiety and paranoid ideation. Although no significant difference was observed between the two groups at admission, the scores of IG, which tended to decrease at a faster rate, were generally lower than those of CG at weeks 1, 4 and 24 post-surgery. The length of hospital stay and medical costs of IG were significantly less than those of CG and satisfaction-with-hospital was better. However, there was no significant difference in 4-year survival or health status between two groups. Conclusions: Appropriate perioperative comprehensive supportive care interventions help to improve the psychological state of Chinese patients with esophageal carcinoma, to reduce health care costs and to promote satisfaction of patients and their families with hospital.

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“…interventions have targeted patients with CRC during either the immediate post-operative period 29 (Young et al, 2010) or survivorship (Macvean et al, 2007;Siegel et al, 1992). Somewhat differently, 30 our study aimed to address the needs of those transitioning from active chemotherapy to post-31 treatment in line with clinical priorities identified by our study participants.…”

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confidence: 99%

Feasibility and acceptability of the use of patient-reported outcome measures (PROMs) in the delivery of nurse-led supportive care to people with colorectal cancer

Kotronoulas

Papadopoulou

MacNicol

et al. 2017

European Journal of Oncology Nursing

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Purpose Logistical issues pertinent to the use of patient-reported outcome measures (PROMs) by colorectal cancer nurse specialists (CNS) to identify the needs of people with colorectal cancer (CRC) in acute care remain unknown. We explored the feasibility and acceptability of PROMs-driven, CNS-led consultations to enhance delivery of supportive care to people with CRC completing adjuvant chemotherapy. Methods A systematic literature review and focus groups with patients and CNS (Phase 1) were followed by a repeated-measures, exploratory study (Phase 2), whereby pre-consultation PROM data were collected during three consecutive, monthly consultations, and used by the CNS to enable delivery of personalised supportive care. Results Based on Phase 1 data, the Supportive Care Needs Survey was selected for use in Phase 2. Fourteen patients were recruited (recruitment rate: 56%); thirteen (93%) completed all study assessments. Forty in-clinic patient-clinician consultations took place. At baseline, 219 unmet needs were reported in total, with a notable 21% (T2) and 32% (T3) over-time reduction. Physical/daily living and psychological domain scores declined from T1 to T3, yet not statistically significantly. In exit interviews, patients described how using the PROM helped them shortlist and prioritise their needs. CNS stressed how the PROM helped them tease out more issues with patients than they would normally. Conclusions Nurse-led, PROMs-driven needs assessments with patients with CRC appear to be feasible and acceptable in clinical practice, possibly associated with a sizeable reduction in the frequency of unmet needs, and smaller decreases in physical/daily living and psychosocial needs in the immediate post-chemotherapy period

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Reducing the unmet needs of patients with colorectal cancer: a feasibility study of The Pathfinder Volunteer Program

Abstract: The Pathfinder Program has been found to be feasible, acceptable for patients, and has the potential to reduce needs and depression. A larger, randomized controlled trial is needed to determine the impact of this program on colorectal symptoms and anxiety.

Cited by 39 publications

References 17 publications

Identification of supportive care needs in a sample of Puerto Rican cancer patients with the supportive care needs survey

Identification of supportive care needs in a sample of Puerto Rican cancer patients with the supportive care needs survey

Perioperative Comprehensive Supportive Care Interventions for Chinese Patients with Esophageal Carcinoma: a Prospective Study

Feasibility and acceptability of the use of patient-reported outcome measures (PROMs) in the delivery of nurse-led supportive care to people with colorectal cancer

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