Recruitment and retention in mobile application-based intervention studies: a critical synopsis of challenges and opportunities

Bremer, Whitney; Sarker, Abeed

doi:10.1080/17538157.2022.2082297

Cited by 6 publications

(2 citation statements)

References 42 publications

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“…Furthermore, reviewing the test scores during consultations can be an additional motivational incentive for patients to use the tool. Finally, the use of more effective user experience design features 32 can help overcome technical barriers associated with the tool, help remind the users to adhere to the test schedule, and provide further motivational incentive.…”

Section: Discussionmentioning

confidence: 99%

Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study

Oh,

Capezzuto,

Kriara

et al. 2024

Sci Rep

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Floodlight Open was a global, open-access, digital-only study designed to understand the drivers and barriers in deployment and use of a smartphone app in a naturalistic setting and broad study population of people with and without multiple sclerosis (MS). The study utilised the Floodlight Open app: a ‘bring-your-own-device’ solution that remotely measures a user’s mood, cognition, hand motor function, and gait and postural stability via smartphone sensor-based tests requiring active user input (‘active tests’). Levels of mobility of study participants (‘life-space measurement’) were passively measured. Study data from these tests were made available via an open-access platform. Data from 1350 participants with self-declared MS and 1133 participants with self-declared non-MS from 17 countries across four continents were included in this report. Overall, MS participants provided active test data for a mean duration of 5.6 weeks or a mean duration of 19 non-consecutive days. This duration increased among MS participants who persisted beyond the first week to a mean of 10.3 weeks or 36.5 non-consecutive days. Passively collected life-space measurement data were generated by MS participants for a mean duration of 9.8 weeks or 50.6 non-consecutive days. This duration increased to 16.3 weeks/85.1 non-consecutive days among MS participants who persisted beyond the first week. Older age, self-declared MS disease status, and clinical supervision as part of concomitant clinical research were all significantly associated with higher persistence of the use of the Floodlight Open app. MS participants performed significantly worse than non-MS participants on four out of seven active tests. The findings from this multinational study inform future research to improve the dynamics of persistence of use of digital monitoring tools and further highlight challenges and opportunities in applying them to support MS clinical care.

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Section: Discussionmentioning

confidence: 99%

Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study

Oh,

Capezzuto,

Kriara

et al. 2024

Sci Rep

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“…Although the threats against participant recruitment and retention are significant when evaluating a remote intervention, 11 , 12 studies that have testing interventions delivered exclusively by telephone for family caregivers do not detail the recruitment process 13 or the strategies used for participant retention 13 , 14 nor do they analyze adherence to the delivered intervention. 14 Reporting these aspects is relevant so that the scientific community learns from the successes and errors of the studies, and consequently, future studies could be planned based on those lessons.…”

Section: Introductionmentioning

confidence: 99%

Recruitment, retention, and adherence of family caregivers: Lessons from a multisite trial

Díaz¹,

Guedes²,

Cruz³

2023

Invest. Educ. Enferm.

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Objective. To describe the recruitment, retention of family caregivers, and adherence to a telephone based intervention evaluated in a multi-site trial and provide recommendations for the design of future studies. Methods. A descriptive study based on a secondary analysis of a multi-site clinical development in Colombia and Brazil. Recruitment was measured by the number of participants eligible and consented. Retention was assessed by the percentage of participants with outcomesdata at two follow-ups. The intervention adherence was measured by the percentage of the caregiver who received the intervention. Results. Of the family caregivers assessed, 63% were eligible, and 32.9% declined to be in the study for time restriction or no interest. In Colombia, the total retention rate of caregivers was 63.4% at the first follow-up and 48% at the second follow-up, while in Brazil was de 52.8% and 46.2%, respectively. At the end of the study, the sample comprised 28 and 70 caregivers in the intervention and control groups, respectively, for a retention rate of 47%. Of 104 family caregivers allocated to the intervention group, 42 (40.3%) received five sessions. Most reported not completing the Caregiver´s ActivityDiary. Conclusion. The recruitment of family caregivers, participant retention, and adherence to the telephone intervention was unsuccessful. Future studies should apply an assessment tool during the recruitment of family caregivers and replace the term "caregiver" with "care provider"; in the material involved in the research; define a retention protocol before starting the study and involve family caregivers in the design of the interventions.

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Comprehensive Performance Evaluation of Mobile Networks in Macao Based on Field Test Data

Yu,

Liu,

Wong

et al. 2023

Lecture Notes in Networks and Systems

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Recruitment and retention in mobile application-based intervention studies: a critical synopsis of challenges and opportunities

Cited by 6 publications

References 42 publications

Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study

Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study

Recruitment, retention, and adherence of family caregivers: Lessons from a multisite trial

Comprehensive Performance Evaluation of Mobile Networks in Macao Based on Field Test Data

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