Recovery After Psychosis: Qualitative Study of Service User Experiences of Lived Experience Videos on a Recovery-Oriented Website (Preprint)

Williams, Anne; Fossey, Ellie; Farhall, John; Foley, Fiona; Thomas, Neil

doi:10.2196/preprints.9934

Cited by 1 publication

(1 citation statement)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Only two systematic reviews have included aspects of hedonic well-being (Rennick-Egglestone et al, 2019b;Drewniak et al, 2020). Focusing on health recovery narratives, a systematic review by Rennick-Egglestone et al (2019a) identified two qualitative studies showing that recovery narratives about eating disorder (Thomas et al, 2006) as well about psychosis (Williams et al, 2018) have the potential to increase hope and decrease psychological distress. Similar effects of patient narratives on optimistic feelings were also reported by another qualitative study on health recovery narratives for a broad variety of psychological disorders (Rennick-Egglestone et al, 2019b) as well as a qualitative study on the role of patient experiences in health-decision making (Entwistle et al, 2011).…”

Section: Well-being Related E Ects Of Narratives In Patient Informationmentioning

confidence: 99%

On the need for narratives in patient information: Differentiating types and functions of narratives from pulmonary embolism patients' point of view

et al. 2022

View full text Add to dashboard Cite

The inclusion of narratives in evidence-based patient information is a heavily discussed topic in literature. Narratives elicit intense engagement and emotional insights, but may also cause unintended persuasion effects. There is mixed evidence that adding narratives to non-narrative factual patient information is valuable for patients. In addition, providing patients with narratives about the outcome of treatments has been found to bias treatment decisions, in line with the direction implied by the narratives. This may counteract informed decision making of patients. However, narratives about the process of a treatment and personal experiences with treatments may support the well-being of patients in tertiary prevention. In order to investigate patients' views on narratives and their function in patient information, we conducted 26 semi-structured qualitative interviews with pulmonary embolism patients. Answers were coded using thematic analysis. Results show that patients are especially interested in experience and process narratives when combined with evidence-based patient information. We identified four main functions of experience and process narratives that patients ascribe to these narratives: (1) motivating self-reflection and reflection on the recovery process, (2) reducing the feeling of loneliness, (3) reducing emotional distress, and (4) inspiring mindful mastery.

show abstract

Section: Well-being Related E Ects Of Narratives In Patient Informationmentioning

confidence: 99%

On the need for narratives in patient information: Differentiating types and functions of narratives from pulmonary embolism patients' point of view

et al. 2022

View full text Add to dashboard Cite

show abstract

Recovery After Psychosis: Qualitative Study of Service User Experiences of Lived Experience Videos on a Recovery-Oriented Website (Preprint)

Abstract: Title: Being inspired that recovery after experiencing psychosis is possible: Consumers' experiences of engaging with video-based lived experience through a recovery-oriented website

Cited by 1 publication

References 38 publications

On the need for narratives in patient information: Differentiating types and functions of narratives from pulmonary embolism patients' point of view

On the need for narratives in patient information: Differentiating types and functions of narratives from pulmonary embolism patients' point of view

Contact Info

Product

Resources

About