Recordkeeping research tools in a multi-disciplinary context for cross-jurisdictional health records systems

Iacovino, Livia; Reed, Barbara

doi:10.1007/s10502-008-9070-1

Cited by 6 publications

(4 citation statements)

References 5 publications

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“…The medical specialty, type of information captured and stored in EPRs, and their use and functionality varied widely across the articles included in this scoping review (Additional file 1). While most articles did not specify whether the EPR under consideration was confined to use within a single healthcare practice/organisation or was shared , others refer to challenges and opportunities related to sharing data across organisational boundaries [53][54][55][56][57], nationwide [58,59] or even worldwide [21]. Some consider ethical issues that are associated with characteristics common to all EPR systems such as the nature of digital data [32,60,61], the confidentiality of health information [33,39] or the use of the copy-paste functionality [38,62,63].…”

Section: Resultsmentioning

confidence: 99%

Examination and diagnosis of electronic patient records and their associated ethics: a scoping literature review

Jacquemard¹,

Doherty

Fitzsimons³

2020

BMC Med Ethics

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Background: Electronic patient record (EPR) technology is a key enabler for improvements to healthcare service and management. To ensure these improvements and the means to achieve them are socially and ethically desirable, careful consideration of the ethical implications of EPRs is indicated. The purpose of this scoping review was to map the literature related to the ethics of EPR technology. The literature review was conducted to catalogue the prevalent ethical terms, to describe the associated ethical challenges and opportunities, and to identify the actors involved. By doing so, it aimed to support the future development of ethics guidance in the EPR domain. Methods: To identify journal articles debating the ethics of EPRs, Scopus, Web of Science, and PubMed academic databases were queried and yielded 123 eligible articles. The following inclusion criteria were applied: articles need to be in the English language; present normative arguments and not solely empirical research; include an abstract for software analysis; and discuss EPR technology. Results: The medical specialty, type of information captured and stored in EPRs, their use and functionality varied widely across the included articles. Ethical terms extracted were categorised into clusters 'privacy', 'autonomy', 'risk/ benefit', 'human relationships', and 'responsibility'. The literature shows that EPR-related ethical concerns can have both positive and negative implications, and that a wide variety of actors with rights and/or responsibilities regarding the safe and ethical adoption of the technology are involved. Conclusions: While there is considerable consensus in the literature regarding EPR-related ethical principles, some of the associated challenges and opportunities remain underdiscussed. For example, much of the debate is presented in a manner more in keeping with a traditional model of healthcare and fails to take account of the multidimensional ensemble of factors at play in the EPR era and the consequent need to redefine/modify ethical norms to align with a digitally-enabled health service. Similarly, the academic discussion focuses predominantly on bioethical values. However, approaches from digital ethics may also be helpful to identify and deliberate about current and emerging EPR-related ethical concerns.

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Section: Resultsmentioning

confidence: 99%

Examination and diagnosis of electronic patient records and their associated ethics: a scoping literature review

Jacquemard¹,

Doherty

Fitzsimons³

2020

BMC Med Ethics

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“…Safety and security in terms of user authentication, data access, data storage and backup, and acceptable usage should be incorporated into the design of the EPR [36,73,[114][115][116][117][118][119][120]. Features that strengthen security include audit trails and role-based access controls (RBAC).…”

Section: Data Accessmentioning

confidence: 99%

The anatomy of electronic patient record ethics: a framework to guide design, development, implementation, and use

Jacquemard¹,

Doherty

Fitzsimons³

2021

BMC Med Ethics

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Background This manuscript presents a framework to guide the identification and assessment of ethical opportunities and challenges associated with electronic patient records (EPR). The framework is intended to support designers, software engineers, health service managers, and end-users to realise a responsible, robust and reliable EPR-enabled healthcare system that delivers safe, quality assured, value conscious care. Methods Development of the EPR applied ethics framework was preceded by a scoping review which mapped the literature related to the ethics of EPR technology. The underlying assumption behind the framework presented in this manuscript is that ethical values can inform all stages of the EPR-lifecycle from design, through development, implementation, and practical application. Results The framework is divided into two parts: context and core functions. The first part ‘context’ entails clarifying: the purpose(s) within which the EPR exists or will exist; the interested parties and their relationships; and the regulatory, codes of professional conduct and organisational policy frame of reference. Understanding the context is required before addressing the second part of the framework which focuses on EPR ‘core functions’ of data collection, data access, and digitally-enabled healthcare. Conclusions The primary objective of the EPR Applied Ethics Framework is to help identify and create value and benefits rather than to merely prevent risks. It should therefore be used to steer an EPR project to success rather than be seen as a set of inhibitory rules. The framework is adaptable to a wide range of EPR categories and can cater for new and evolving EPR-enabled healthcare priorities. It is therefore an iterative tool that should be revisited as new EPR-related state-of-affairs, capabilities or activities emerge.

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“…Materials such as lesson plans, curricula, professional setting, curriculum, teaching mode, programs and solutions formed from teaching reform and teacher training, typical lesson plans and lectures comments, statistical reports, comprehensive analysis of exam quality, tapes and CDs formed from multimedia teaching are recorded in teaching archives. The university enrollment archive also records the students' whole study process and score sheet, their graduation and completion of courses, teaching management and so on [2] . These information resources provide evidence for university's teaching management, teaching reform, scientific research, issuing graduation certificate, grade transcript and abroad certificate to students, etc.…”

Section: B the Importance Of The Construction Of University Archivesmentioning

confidence: 99%

On the Construction of University Archives Informatization

Cui¹

2014

Proceedings of the 2014 International Conference on Education, Management and Computing Technology

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Accelerating the construction of university archives informatization is the objective requirements of standardization and modernization of university archives management. In order to promote the construction of university archives informatization, it is required to accurately understand the scientific connotation of informationization construction and grasp the central part of informatization construction. Appropriate measures should also be taken to implement the construction of university archives informatization effectively.

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Recordkeeping research tools in a multi-disciplinary context for cross-jurisdictional health records systems

Cited by 6 publications

References 5 publications

Examination and diagnosis of electronic patient records and their associated ethics: a scoping literature review

Examination and diagnosis of electronic patient records and their associated ethics: a scoping literature review

The anatomy of electronic patient record ethics: a framework to guide design, development, implementation, and use

On the Construction of University Archives Informatization

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