Reconciling Preferences and Constraints in Online Peer Support for Youth With Asthma and Allergies

Masuda, Jeffrey R.; Anderson, Sharon; Letourneau, Nicole; Morgan, Vanessa Sloan; Stewart, Miriam

doi:10.1177/1524839912465083

Cited by 7 publications

(22 citation statements)

References 21 publications

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“…Report Supplementary Material 2, Table 4, provides details about the study location, publication type, focus of the study, method of data collection, method of analysis and intervention type for the 57 included studies. Studies were conducted in seven different countries, with the USA being the most common (n = 25 114,119,[163][164][165][166][167][168][172][173][174]181,186,[189][190][191]196,197,[200][201][202]207,209,210,215 ), followed by Canada (n = 13 169,[176][177][178][179]185,192,208,213,214,[217][218][219] ), the UK (n = 9 171,182,183,187,188,195,198,211,…”

Section: Study Characteristicsmentioning

confidence: 99%

“…The majority of studies evaluated an intervention received by CYP with a LTC; 10 studies either asked participants about an intervention in development or did this as well as evaluating the intervention once received. 114,168,171,184,[191][192][193]211,218,219 Two studies relied on participants' recollections of interventions previously received, 171,198 the remainder collected data about current intervention experience.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…205 Four studies collected data from parents only; 185,201,202,206 the remaining 30 studies included a mix of participant types. 164,165,[170][171][172][173][174][175][176][177][178][179][181][182][183][188][189][190][191][192][193][198][199][200]203,209,212,214,217,218 The most commonly studied intervention types were:…”

Section: Study Characteristicsmentioning

confidence: 99%

“…l online support interventions (n = 12) 114,170,177,183,192,210,211,213,215,[217][218][219] l camps (n = 9) 163,[165][166][167]169,173,174,179,185 l music therapy (n = 6). 199,[201][202][203][204][205] Qualitative data analysis methods typically involved thematic analysis (22/57 studies).…”

Section: Study Characteristicsmentioning

confidence: 99%

“…114,189,190,193,194,200,210,213,218 Few details about populations studied were consistently provided. Over half of the 57 included studies did not report the ethnicity of participants providing qualitative data (n = 31), 162,163,165,166,171,173,[177][178][179]183,184,186,189,[192][193][194][195]199,201,[203][204][205]208,[211][212][213][214][215][217][218][219] and only 10 studies provided socioeconomic information about participants or their families. 169,178,180,190,191,197,198,209,…”

Section: Study Characteristicsmentioning

confidence: 99%

See 4 more Smart Citations

Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses

Moore

Nunns

Shaw

et al. 2019

Health Technol Assess

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Background Although mental health difficulties can severely complicate the lives of children and young people (CYP) with long-term physical conditions (LTCs), there is a lack of evidence about the effectiveness of interventions to treat them. Objectives To evaluate the clinical effectiveness and cost-effectiveness of interventions aiming to improve the mental health of CYP with LTCs (review 1) and explore the factors that may enhance or limit their delivery (review 2). Data sources For review 1, 13 electronic databases were searched, including MEDLINE, EMBASE, PsycINFO, Cochrane Central Register of Controlled Trials (CENTRAL), Cumulative Index to Nursing and Allied Health Literature (CINAHL) and Science Citation Index. For review 2, MEDLINE, PsycINFO and CINAHL were searched. Supplementary searches, author contact and grey literature searches were also conducted. Review methods The first systematic review sought randomised controlled trials (RCTs) and economic evaluations of interventions to improve elevated symptoms of mental ill health in CYP with LTCs. Effect sizes for each outcome were calculated post intervention (Cohen’s d). When appropriate, random-effects meta-analyses produced pooled effect sizes (d). Review 2 located primary qualitative studies exploring experiences of CYP with LTCs, their families and/or practitioners, regarding interventions aiming to improve the mental health and well-being of CYP with LTCs. Synthesis followed the principles of metaethnography. An overarching synthesis integrated the findings from review 1 and review 2 using a deductive approach. End-user involvement, including topic experts and CYP with LTCs and their parents, was a feature throughout the project. Results Review 1 synthesised 25 RCTs evaluating 11 types of intervention, sampling 12 different LTCs. Tentative evidence from seven studies suggests that cognitive–behavioural therapy interventions could improve the mental health of CYP with certain LTCs. Intervention–LTC dyads were diverse, with few opportunities to meta-analyse. No economic evaluations were located. Review 2 synthesised 57 studies evaluating 21 types of intervention. Most studies were of individuals with cancer, a human immunodeficiency virus (HIV) infection or mixed LTCs. Interventions often aimed to improve broader mental health and well-being, rather than symptoms of mental health disorder. The metaethnography identified five main constructs, described in an explanatory line of argument model of the experience of interventions. Nine overarching synthesis categories emerged from the integrated evidence, raising implications for future research. Limitations Review 1 conclusions were limited by the lack of evidence about intervention effectiveness. No relevant economic evaluations were located. There were no UK studies included in review 1, limiting the applicability of findings. The mental health status of participants in review 2 was usually unknown, limiting comparability with review 1. The different evidence identified by the two systematic reviews challenged the overarching synthesis. Conclusions There is a relatively small amount of comparable evidence for the effectiveness of interventions for the mental health of CYP with LTCs. Qualitative evidence provided insight into the experiences that intervention deliverers and recipients valued. Future research should evaluate potentially effective intervention components in high-quality RCTs integrating process evaluations. End-user involvement enriched the project. Study registration This study is registered as PROSPERO CRD42011001716. Funding The National Institute for Health Research (NIHR) Health Technology Assessment programme and the NIHR Collaboration for Leadership in Applied Health Research and Care South West Peninsula.

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Section: Study Characteristicsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

Section: Study Characteristicsmentioning

confidence: 99%

See 3 more Smart Citations

Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses

Moore

Nunns

Shaw

et al. 2019

Health Technol Assess

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Planning a digital intervention for adolescents with asthma (BREATHE4T): A theory‐, evidence‐ and Person‐Based Approach to identify key behavioural issues

Easton

Ainsworth

Thomas

et al. 2022

Pediatric Pulmonology

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Objectives: To describe a transparent approach to planning a digital intervention for adolescents to self-manage their asthma using breathing retraining (BRT), based on an existing, effective adult intervention (BREATHE).Methods: A theory-, evidence-, and Person-Based Approach was used to maximise the effectiveness and persuasiveness of the intervention. A scoping review and semistructured interviews with target intervention users (N = 18, adolescents aged 12−17 years with asthma and parents) were carried out to explore user perspectives, barriers, and facilitators towards the intended behaviours and potential intervention features. The combined evidence was used alongside and to inform theory-based activities and enabled iterative planning of the intervention. Results:The scoping review identified themes relating to user-specific selfmanagement issues, content, education, training needs, and features for a digital intervention. Interviews elicited potential barriers to intended behaviours such as the anticipated embarrassment of using BRT and concerns around remaining calm.Facilitators included BRT delivered by adolescents who share experiences of asthma and information for performing exercises discreetly. Relevant theoretical frameworks ensured that appropriate psychological constructs were targeted. A behavioural analysis identified six intervention functions and thirty behaviour change techniques. Logic modelling mapped the programme theory and mechanisms, which aims to improve adolescent asthma-related quality of life.Conclusions: This study gives a transparent insight into the approach followed to plan a self-guided BRT intervention for adolescents and has led to identification of key behavioural issues, enabling relevant intervention content to be chosen. Insight

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Peer Support for Adolescents with Chronic Illness

Kulandaivelu¹,

Kohut

2021

Peer Support in Medicine

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Reconciling Preferences and Constraints in Online Peer Support for Youth With Asthma and Allergies

Cited by 7 publications

References 21 publications

Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses

Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses

Planning a digital intervention for adolescents with asthma (BREATHE4T): A theory‐, evidence‐ and Person‐Based Approach to identify key behavioural issues

Peer Support for Adolescents with Chronic Illness

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