Randomized controlled expressive writing pilot in individuals with Parkinson’s disease and their caregivers

Cash, Therese V.; Lageman, Sarah K.

doi:10.1186/s40359-015-0101-4

Cited by 11 publications

(4 citation statements)

References 52 publications

(57 reference statements)

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“…For the treatment of NMS, 37 new studies qualified for review; the updated conclusions, according to indication, are presented in Tables to (interventions with new studies published since January 2011 or prior to this date in the case of newly identified interventions not previously reviewed are indicated in bold and changes in conclusions are italicized). We excluded trials that did not fulfill the inclusion criteria for review and where NMS were not an inclusion criterion, that is, where NMS did not represent a PD‐specific indication . Unless otherwise specified, safety conclusions are “acceptable risk without specialized monitoring.”…”

Section: Results and Conclusionmentioning

confidence: 99%

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Update on treatments for nonmotor symptoms of Parkinson's disease—an evidence‐based medicine review

et al. 2019

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Objective To update evidence‐based medicine recommendations for treating nonmotor symptoms in Parkinson's disease (PD). Background The International Parkinson and Movement Disorder Society Evidence‐Based Medicine Committee's recommendations for treatments of PD were first published in 2002, updated in 2011, and now updated again through December 31, 2016. Methods Level I studies testing pharmacological, surgical, or nonpharmacological interventions for the treatment of nonmotor symptoms in PD were reviewed. Criteria for inclusion and quality scoring were as previously reported. The disorders covered were a range of neuropsychiatric symptoms, autonomic dysfunction, disorders of sleep and wakefulness, pain, fatigue, impaired olfaction, and ophthalmologic dysfunction. Clinical efficacy, implications for clinical practice, and safety conclusions are reported. Results A total of 37 new studies qualified for review. There were no randomized controlled trials that met inclusion criteria for the treatment of anxiety disorders, rapid eye movement sleep behavior disorder, excessive sweating, impaired olfaction, or ophthalmologic dysfunction. We identified clinically useful or possibly useful interventions for the treatment of depression, apathy, impulse control and related disorders, dementia, psychosis, insomnia, daytime sleepiness, drooling, orthostatic hypotension, gastrointestinal dysfunction, urinary dysfunction, erectile dysfunction, fatigue, and pain. There were no clinically useful interventions identified to treat non‐dementia‐level cognitive impairment. Conclusions The evidence base for treating a range of nonmotor symptoms in PD has grown substantially in recent years. However, treatment options overall remain limited given the high prevalence and adverse impact of these disorders, so the development and testing of new treatments for nonmotor symptoms in PD remains a top priority. © 2019 The Authors. Movement Disorders published by Wiley Periodicals, Inc. on behalf of International Parkinson and Movement Disorder Society.

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Section: Results and Conclusionmentioning

confidence: 99%

“…A total of 5 studies 7,33-36 were evaluated. We did not consider clinical trials where cognitive dysfunction was not an inclusion criterion, 59,[64][65][66][67][68][69][70][71][72] where cognition was not the primary endpoint, 46,48 or those that were post hoc analyses. 47 See Table 5 for recommendations.…”

Section: New Conclusionmentioning

confidence: 99%

Update on treatments for nonmotor symptoms of Parkinson's disease—an evidence‐based medicine review

et al. 2019

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“…Paradoxically, burden worsened after 8 months in a study providing multidisciplinary care 31 . Virtual house calls did not change care partner burden 25 and tele‐support did not significantly improve care partner outcomes, 28 just as expressive writing, 27 sleep therapy, 34 and adherence therapy did not improve care partner burden 29 . Occupational therapy did not result in improved care partner outcomes 30 …”

Section: Resultsmentioning

confidence: 99%

Current Knowledge on the Evolution of Care Partner Burden, Needs, and Coping in Parkinson's Disease

Hulshoff

Book

Dahodwala

et al. 2021

Movement Disord Clin Pract

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Background Care partners support people with Parkinson's disease through a long journey ranging from independence to dependence for many daily tasks. Longitudinal studies are important to understand the evolution of this process and predictors of future needs of care partners. Methods A scoping review was conducted, searching PubMed for longitudinal studies examining care partner burden, needs or coping in Parkinson's disease published through May 2020. Results Eight observational studies and 19 interventional studies met the eligibility criteria. Longitudinal observation ranged from 7 weeks to 10 years, involving between six and 8515 care partners. All studies addressed care partner burden, while two and three studies respectively addressed needs and coping. Only one study related burden to specific stages or duration of disease. Results from identified studies show that care partners in Parkinson's disease are at risk for increasing burden over time. Multiple predictors of future burden have been identified related to the person with Parkinson's disease, the care partner, or an intervention. No studies examined the evolution of needs and coping in caregiving in Parkinson's disease. Conclusion The scarcity of longer term, observational research on the temporal evolution of burden and particularly needs and coping in caregiving for someone with PD is a main identified gap. Even within these observational studies, the impact of caregiving is not often reported. Longitudinal studies on these topics are needed to help understand their change over time and relation to each other, which can inform support planning for care partners.

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“…For example, listening to a playlist of music [19] and viewing arts alone [20] were excluded, as these programmes do not involve making or transforming an art form. An expressive writing study prescribed a strictly defined writing process, where participants were asked to write down only thoughts and feelings about stressful or traumatic life events [21]. This study did not promote creativity: there was no room for divergent thinking nor transformation of feelings through writing.…”

Section: Eligibility Criteriamentioning

confidence: 99%

An integrative systematic review of creative arts interventions for older informal caregivers of people with neurological conditions

et al. 2020

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Objective We aimed to assess and synthesise the current state of quantitative and qualitative research concerning creative arts interventions for older informal caregivers of people with neurological conditions. Methods A systematic search was employed to identify studies that examined creative arts interventions for older informal caregivers, which were synthesised in this integrative review. We searched the following databases: MEDLINE, PubMed, EBSCO, CINAHL, EMBASE, PsycINFO, Cochrane Library, Scopus, Web of Science, and Google Scholar. We also backwards searched references of all relevant studies and inspected trials registers. Results Of the 516 studies identified, 17 were included: one was quantitative, nine were qualitative and seven used mixed methods. All included quantitative studies were pilot or feasibility studies employing pre- and post-test design with small sample sizes. Studies varied in relation to the type of creative intervention and evaluation methods, which precluded meta-analysis. Large effect sizes were detected in wellbeing measures following singing and art interventions. The qualitative synthesis highlighted that interventions created space for caregivers to make sense of, accept and adapt to their identity as a caregiver. Personal developments, such as learning new skills, were viewed positively by caregivers as well as welcoming the opportunity to gain cognitive and behavioural skills, and having opportunities to unload emotions in a safe space were important to caregivers. Group creative interventions were particularly helpful in creating social connections with their care-recipients and other caregivers. Conclusions The current review revealed all creative interventions focused on caregivers of people living with dementia; subsequently, this identified gaps in the evidence of creative interventions for informal caregivers of other neurological conditions. There are encouraging preliminary data on music and art interventions, however, little data exists on other art forms, e.g., drama, dance. Creative interventions may appeal to many caregivers, offering a range of psycho-social benefits. The findings of the current review open the way for future research to develop appropriate and creative arts programmes and to test their efficacy with robust tools.

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Randomized controlled expressive writing pilot in individuals with Parkinson’s disease and their caregivers

Cited by 11 publications

References 52 publications

Update on treatments for nonmotor symptoms of Parkinson's disease—an evidence‐based medicine review

Update on treatments for nonmotor symptoms of Parkinson's disease—an evidence‐based medicine review

Current Knowledge on the Evolution of Care Partner Burden, Needs, and Coping in Parkinson's Disease

An integrative systematic review of creative arts interventions for older informal caregivers of people with neurological conditions

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