Racial differences in parental satisfaction with neonatal intensive care unit nursing care

Martin, Ashley E.; D’Agostino, Jo Ann; Passarella, Molly; Lorch, Scott A.

doi:10.1038/jp.2016.142

Cited by 44 publications

(35 citation statements)

References 27 publications

(30 reference statements)

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“…The present study, along with other studies [23, 24, 42], demonstrate that parents need health care personnel to provide consideration, information, and continuity of care during the entire period in the NICU. These findings convey that health care professionals have an opportunity to increase parental satisfaction in the NICU and help to improve outcomes.…”

Section: Discussionsupporting

confidence: 66%

“…Other studies have pointed out the relationship between patient and practitioner as the most important health service area affecting patient satisfaction [12, 39–45]. This emerges as a key area in parents’ satisfaction with care in the NICU [5, 23, 24]. The FCC statements also highlight this relationship as important when caring for infants in hospitals [35].…”

Section: Discussionmentioning

confidence: 99%

“…The relationships between health personnel and patients are key factors in a parent’s satisfaction with care in NICU. Parents need information, continuity of care and health personnel listening to their needs [5, 23, 24]. Improving quality necessitates gathering data both from the parents’ experiences with different factors as well as the level of satisfaction with each factor [25].…”

Section: Introductionmentioning

confidence: 99%

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Parental satisfaction with neonatal intensive care units: a quantitative cross-sectional study

Hagen

Iversen

Nesset

et al. 2019

BMC Health Serv Res

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BackgroundPatients and users experiences are useful for monitoring the quality of the hospital provisions and to improve health care delivery. Research results on associations between parental satisfaction and their socio-demographic status are inconclusive. We have also found a scarcity of research on the associations between parental satisfaction and standards of neonatal intensive care (NICU) services. We used the Neonatal Satisfaction Survey (NSS-8) to collect data to explore associations between parental satisfaction and socio-demographic variables and, associations between parents’ satisfaction and NICU care-services.MethodsA total of 568 parents from six different NICUs geographically dispersed in Norway completed the (NSS-8). All responses were rated and analysed using nonparametric analyses and logistic regression.ResultsSupport from families and friends is the most important sociodemographic area which links to reported levels of parental satisfaction. The most important areas for parents’ satisfaction with NICU care services include the decision making processes regarding the infant, respect and empathy from staff, and the continuity of treatment and care. Parents were least satisfied with how NICUs facilitate ongoing care for siblings, parents and infants during later stages of their hospital stay. Parents reported being in need of more guidance and training in meeting their child’s needs.ConclusionTo increase and sustain parents’ satisfaction with NICU care considerations should be given to separate elements of the total provision made for affected families. This study suggests that health personnel could address the needs of all family members as these evolve through phases of their stays in hospitals; be more attentive to parents with very preterm infants and parents with long NICU admissions; provide support to siblings; and give more attention to parents’ needs for continuity of care, follow-up, and information.

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Section: Discussionsupporting

confidence: 66%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Parental satisfaction with neonatal intensive care units: a quantitative cross-sectional study

Hagen

Iversen

Nesset

et al. 2019

BMC Health Serv Res

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“…This article adds to the body of literature documenting how families of color experience discrimination, racism, and disrespect in health care encounters (Altman et al, 2019; Edwards et al, 2020; McLemore et al, 2018). It adds to our understanding of the mechanisms that underpin racial/ethnic disparities in the receipt of family-centered care and in family satisfaction of neonatal nursing care (Martin et al, 2016; Sigurdson et al, 2018). Furthermore, examples of Black fathers feeling unwelcome in the NICU in this article provide illustration of stressors from interpersonal and institutional racism experienced by Black men (Ornelas et al, 2009).…”

Section: Discussionmentioning

confidence: 99%

Former NICU Families Describe Gaps in Family-Centered Care

et al. 2020

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Care and outcomes of infants admitted to neonatal intensive care vary and differences in family-centered care may contribute. The objective of this study was to understand families’ experiences of neonatal care within a framework of family-centered care. We conducted focus groups and interviews with 18 family members whose infants were cared for in California neonatal intensive care units (NICUs) using a grounded theory approach and centering the accounts of families of color and/or of low socioeconomic status. Families identified the following challenges that indicated a gap in mutual trust and power sharing: conflict with or lack of knowledge about social work; staff judgment of, or unwillingness to address barriers to family presence at bedside; need for nurse continuity and meaningful relationship with nurses and inconsistent access to translation services. These unmet needs for partnership in care or support were particularly experienced by parents of color or of low socioeconomic status.

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“…A recently published systematic review including 41 articles outlined pervasive differences in access to high quality healthcare systems, healthcare delivery, and neonatal patient outcomes, based on race (25). Studies show high risk Black infants are less likely to be referred to neonatal follow up clinics, and Black mothers report experiencing indifferent and ineffective communication from medical staff, impacting effective familycentered care (26)(27)(28)(29). There is also adult literature to suggest that Black families are more likely to choose life-sustaining medical technology for their kin following cardiac arrest, trauma, and stroke, but suffer from more adverse events, worse patient experiences, and less improvement in functional outcomes when receiving home health care (30)(31)(32)(33)(34)(35).…”

Section: Discussionmentioning

confidence: 99%

Social Factors Predictive of Intensive Care Utilization in Technology-Dependent Children, a Retrospective Multicenter Cohort Study

et al. 2021

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Objective: Technology-dependent children with medical complexity (CMC) are frequently admitted to the pediatric intensive care unit (PICU). The social risk factors for high PICU utilization in these children are not well described. The objective of this study was to describe the relationship between race, ethnicity, insurance status, estimated household income, and PICU admission following the placement of a tracheostomy and/or gastrostomy (GT) in CMC.Study Design: This was a retrospective multicenter study of children <19 years requiring tracheostomy and/or GT placement discharged from a hospital contributing to the Pediatric Health Information System (PHIS) database between January 2016 and March 2019. Primary predictors included estimated household income, insurance status, and race/ethnicity. Additional predictor variables collected included patient age, sex, number of chronic complex conditions (CCC), history of prematurity, and discharge disposition following index hospitalization. The primary outcome was need for PICU readmission within 30 days of hospital discharge. Secondary outcomes included repeated PICU admissions and total hospital costs within 1 year of tracheostomy and/or GT placement.Results: Patients requiring a PICU readmission within 30 days of index hospitalization for tracheostomy or GT placement accounted for 6% of the 20,085 included subjects. In multivariate analyses, public insurance [OR 1.28 (95% C.I. 1.12–1.47), p < 0.001] was associated with PICU readmission within 30 days of hospital discharge while living below the federal poverty threshold (FPT) was associated with a lower odds of 30-day PICU readmission [OR 0.7 (95% C.I. 0.51–0.95), p = 0.0267]. Over 20% (n = 4,197) of children required multiple (>1) PICU admissions within one year from index hospitalization. In multivariate analysis, Black children [OR 1.20 (95% C.I. 1.10–1.32), p < 0.001] and those with public insurance [OR 1.34 (95% C.I. 1.24–1.46), p < 0.001] had higher odds of multiple PICU admissions. Social risk factors were not associated with total hospital costs accrued within 1 year of tracheostomy and/or GT placement.Conclusions: In a multicenter cohort study, Black children and those with public insurance had higher PICU utilization following tracheostomy and/or GT placement. Future research should target improving healthcare outcomes in these high-risk populations.

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Racial differences in parental satisfaction with neonatal intensive care unit nursing care

Cited by 44 publications

References 27 publications

Parental satisfaction with neonatal intensive care units: a quantitative cross-sectional study

Parental satisfaction with neonatal intensive care units: a quantitative cross-sectional study

Former NICU Families Describe Gaps in Family-Centered Care

Social Factors Predictive of Intensive Care Utilization in Technology-Dependent Children, a Retrospective Multicenter Cohort Study

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