Quality of life of individuals born preterm: a systematic review of assessment approaches

Abstract

Agreement between parents and children about QoL in preterm individuals was lower in younger age groups compared with older age groups. The differences in QoL throughout the different age groups may have arisen because of developmental changes or differences in the source of information used (i.e., parent report or self-report). We recommend that QoL assessments in children born preterm should consider both parent report and self-report.

Quality of life of extremely preterm school-age children without major handicap: a cross-sectional observational study

“…Our work does not confirm this at school age when the QoL levels are lower and concordant between the parents and their infant. Generally, even if the parents’ perceptions agree with their children’s regarding physical health, they diverge in the more subjective areas such as psychological and psychosocial domains 8. In children 8 to 12 years old, it is the psychosocial domain (self-esteem, relationship with friends, then school) 30.…”

“…A preterm QoL meta-analysis in 20087 and 20168 selected 37 studies, 5 of which were school-aged children who were born very preterm (<32 GA). Only three EPT children’s studies have been undertaken (395 total children).…”

“…However, these results contradict our findings although explanations can be found for these differences. As an example, CHIP measured health status and the health status of school-age children born EPT are generally good 8. Furthermore, there is an assumption that, depending on the country, cultural differences impact QoL 34.…”

Adults born preterm: a review of general health and system-specific outcomes

“…A systematic review focused on outcomes following neonatal cerebellar injury and found reduced cerebellar volumes were correlated with higher prevalence of behavioural abnormalities . Other findings included evidence of persistent corticospinal tract injury , and widespread reductions and disruptions in intrinsic and resting‐stage connectivity of networks . Reduced overall IQ scores and lower math abilities were also reported frequently.…”

Preterm Birth and Breastfeeding Are Related to Gastroesophageal Reflux Onset: An Observational Cross-Sectional Study

“…According to World Health Organization (WHO), a newborn with less than 37 weeks of gestation is to be considered premature, or preterm. 1 Scarce gestational age and low birth weight are the main factors closely related to neonatal complications and pathologies. Many anomalies involving the oral cavity are particularly frequent in such patients: among the most prevalent oral alterations, preterm children are suffering from dental caries, malocclusion, enamel hypoplasia and dental discolorations.…”