Quality of life of family caregivers 5 years after a relative's cancer diagnosis: follow‐up of the national quality of life survey for caregivers

Kim, Youngmee; Spillers, Rachel L.; Hall, Daniel L.

doi:10.1002/pon.1888

Cited by 114 publications

(130 citation statements)

References 29 publications

(30 reference statements)

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“…For caregivers, their sense of burden, tendency of depression and anxiety, and sleeping disorders increase, and their quality of life decreases when the patient's burden/strain increases and their symptoms become uncontrollable (Nijboer et al, 1998, Weitzner et al, 1999a, Grunfeld et al 2004, Carter, 2005, Grov et al, 2005, Babaoglu and Öz, 2007. This study also identified a relationship between care burdens and the quality of life, just as stated in literature (Tang et al, 2008;Özer et al, 2009;Alptekin et al, 2010;O'Hara et al, 2010;Kim, 2010;Tamayo et al, 2010;Collins, 2011;Song et al, 2011).…”

Section: Discussionmentioning

confidence: 52%

“…Studies also state that caregivers experience physical, social, psychological, and economical issues during the time they provide care to the patient; ultimately, causing an increase in care burdens and a deterioration in their quality of life (Morımoto, 2003). Studies report that characteristics such as age, gender, education level, income status, care period, changes in social life, and lack of family support have an effect on the quality of life of caregivers providing cancer patients with care (Tang et al, 2008;Özer et al, 2009;O'Hara et al, 2010;Alptekin et al, 2010;Kim, 2010;Tamayo et al, 2010;Collins, 2011;Hacıalioğlu et al, 2011;Kim et al, 2011;Song et al, 2011).…”

Section: Effects Of Care Burdens Of Caregivers Of Cancer Patients On mentioning

confidence: 99%

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Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Türkoğlu¹,

Kılıç²

2012

Asian Pacific Journal of Cancer Prevention

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In this study, the aim was to examine the effects of caring burdens of family caregivers of cancer patients on their quality of life in the east of Turkey. Data were collected at the Chemotherapy unit of Yakutiye Research Hospital of Ataturk University. Participants were 18 years old and older. The sample included 190 family caregivers who were living in the same flats with the patients during caregiving. Data were collected using a questionnaire that included socio-demographic questions for family caregivers and the Burden Interview, and the Caregiver Quality of Life Index-Cancer (CQOLC) Scale. SPSS version 14.0 was used to analyse the data. Descriptive statistics were computed for demographic variables of family caregivers. Pearson correlation analysis was used to analyze the relationship between the care burden and quality of life, linear logistic regression analysis was applied to determine the effect care burdens have on the quality of life, and logistic regression analysis was employed to determine the effect descriptive characteristics and care-related properties have on the quality of life. The score mean of the burden interview of caregivers was 36.6±11.2; and their score mean of CQOLC was 81.4±17.3. This study concluded that there was a negative relationship between caring burdens and the quality of life (p<0.001); descriptive characteristics, caring-related properties, and caring burden variables were all significant predictors of the quality of life. It is recommended that caregivers are given support by being offered training about providing care.

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Section: Discussionmentioning

confidence: 52%

Section: Effects Of Care Burdens Of Caregivers Of Cancer Patients On mentioning

confidence: 99%

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Türkoğlu¹,

Kılıç²

2012

Asian Pacific Journal of Cancer Prevention

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“…El algoritmo recomienda la utilización de alguno de los siguientes instrumentos al evaluar sintomatología depresiva: Escala de Depresión del Centro de Estudios Epidemiológicos (CES-D) (>16) (26,27) Inventario de depresión de Beck (BDI) (mínima 0-9, leve 10-16, moderada 17-29 y severa 30-63) (28,29) . Ansiedad: Inventario de ansiedad: rasgo-estado (IDARE): estado (mínima 36-44, leve 45-52, moderada 53-61 y severa 62-79), rasgo (mínima 23-31, leve 32-37, moderada 38-43 y severa 44-68) (30,31) .…”

Section: Evaluaciónunclassified

Guía de práctica clínica para la atención psico-oncológica del cuidador primario informal de pacientes con cáncer

Vazquez

Castillo²,

Huertas

et al. 2015

Psicooncología

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ResumenIntroducción: Los cuidadores primarios representan un papel crucial en la atención de los pacientes con cáncer, lo que comúnmente representan tareas complejas de cuidado. Los cuidadores de los pacientes pueden experimentar diversas afectaciones físicas y psicológicas, así como un funcionamiento social deficiente.Objetivo: Proporcionar a los servicios de psicooncología un algoritmo con los elementos suficientes que faciliten el diagnóstico y tratamiento psicosocial de cuidadores primarios de pacientes con cáncer.Método: Se realizó una búsqueda de la literatura en PsycInfo, LatinIndex y Medline en el período de 2005-2014.Resultados: El presente algoritmo se divide en dos momentos clave: 1). Evaluación y 2). Tratamiento del cuidador primario. Los instrumentos más empleados para ansiedad y depresión son: CES-D, BDI, IDARE, HADS y POMS. Para carga el ECCZ y CRA; las intervenciones psico-educativa, capacitación y orientación terapéutica presentan efectos benéficos para esta población.Conclusiones: El algoritmo ofrece un proceso de toma de decisiones para el diagnós-tico y tratamiento psicooncológico del cuidador primario informal.Palabras clave: Cuidador primario informal, cáncer, guía de práctica clínica, psico-oncología. Conclusions: The algorithm provides a process of decision making for the diagnosis and psychooncologic treatment of the primary caregiver.

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“…31,32 In the non-HSCT cancer literature, there have been other caregiver characteristics associated with increased caregiver burden, particularly younger age. 14,33 Finally, caregivers have reported that the more personal the tasks they are required to perform (that is, bathing or feeding as opposed to grocery shopping or paying bills), the greater the degree of burden they experience. 34 …”

Section: Symptoms Of Caregiver Distress and Impact On Family Lifementioning

confidence: 99%

Long-term follow-up of informal caregivers after allo-SCT: a systematic review

Wulff‐Burchfield

Jagasia

Savani

2012

Bone Marrow Transplant

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Currently, more than 40 000 patients undergo allogeneic hematopoietic SCT (HSCT) annually throughout the world, and the numbers are increasing rapidly. Long-term survival after allogeneic-HSCT (allo-HSCT) has also improved significantly since its inception over 40 years ago due to improved supportive care and early recognition of long-term complications. In long-term followup after transplantation, the focus of care moves beyond cure of the original disease to late effects and quality of life. Nearly onefourth of the long-term survivors are likely to have chronic consequences of HSCT, which require frequent help by caregivers, particularly informal caregivers such as spouses, partners or children. The physical and psychosocial consequences for patients undergoing HSCT have been extensively reported. There has, however, been far less investigation into the long-term follow-up of caregivers of HSCT recipients. This article provides an overview on addressing caregiver issues after HSCT. The rapidly growing population of long-term HSCT survivors creates an obligation not only to educate patients and physicians about the late complications observed in patients but also to follow up caregivers for their psychosocial support needs.

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Quality of life of family caregivers 5 years after a relative's cancer diagnosis: follow‐up of the national quality of life survey for caregivers

Abstract: The findings help to increase evidence-based awareness of the long-term impact of cancer on the family caregivers' QOL. Findings also have implications for developing programs, whereby family caregivers in the various phases of caregivership will benefit by improving their QOL.

Cited by 114 publications

References 29 publications

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Guía de práctica clínica para la atención psico-oncológica del cuidador primario informal de pacientes con cáncer

Long-term follow-up of informal caregivers after allo-SCT: a systematic review

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