Quality of life of eye amputated patients

Abstract

ABSTRACT.Purpose: To evaluate eye-amputated patients' health-related quality of life, perceived stress, self-rated health, job separation because of illness or disability and socioeconomic position. Methods: Patients were recruited from a tertiary referral centre situated in Copenhagen. Inclusion criteria were eye amputation, i.e. evisceration, enucleation, orbital exenteration or secondary implantation of an orbital implant during the period 1996-2003, and participation in a previous investigation (2005). In total, 159 eye-amputated patients were included, and completed a selfadministered questionnaire containing health-related quality of life (SF-36), the perceived stress scale and answered questions about self-rated health, job changes because of illness or disability and socioeconomic status. These results were compared with findings from the Danish Health Interview Survey 2005. Results: The eye-amputated patients had significantly (p < 0.05) lower scores (poorer health) on all SF-36 subscales and more perceived stress compared to the general population. In all, 43.3% of the patients rated their health as excellent or very good compared to 52.1% of the general population. In total, 25% of the study population has retired or changed to a part-time job because of eye disease. The percentage of eye amputated patients, who were divorced or separated, was twice as high as in the general population. Conclusion: The impact of an eye amputation is considerable. The quality of life, perceived stress and self-rated health of many eye-amputated patients are drastically changed. Eye amputation has a marked negative influence on job separation because of illness or disability and on socioeconomic position.

Quality of life in children with retinoblastoma after enucleation in China

“…14,15 However, currently there are no reports on the study of quality of life of children after enucleation.…”

Visual Function and Quality of Life in Patients Who Had Undergone Eye Removal Surgery: A Patient Survey

“…Higher levels of stress and depression, higher separation and divorce rates are reported in enucleated patients compared to the general population. 13,17,20 Although many of the patients in our series found post-operative pain and dissatisfaction with cosmetic appearance to be of concern in the early postoperative period, the vast majority reported overall improvement in these areas compared to their presurgical state. Intolerance of the conformer or prosthesis was reported by 33% of our patients following surgery.…”

“…The use of visual analogue scales (VAS) in health research is controversial, 11 but has been suggested as a reliable indicator of global quality of life, including in ophthalmic conditions. 12,13 In our patients, this measure is likely to represent the patients' 'global view' of vision, and take into account any perceived difficulty with reading, peripheral vision and other visuallydependent tasks.…”

Microvascular Free Flap Reconstruction of Orbitocraniofacial Defects

“…1,[3][4][5][6][7][8] In addition, the patient is at risk for psychological and social issues related to the initial diagnosis and postoperative cosmesis. 2,3,9,10 As surgical techniques have evolved, the ability to excise previously inoperable lesions from the face and skull base using a multidisciplinary approach have allowed for local disease control and relatively high survival rates in a limited number of studies. 3 However, such aggressive resections have also resulted in significant craniofacial defects that often extend into the paranasal sinuses and leave large areas of exposed dura and brain ( Figure 1).…”