Visual Function and Quality of Life in Patients Who Had Undergone Eye Removal Surgery: A Patient Survey

Morgan-Warren, Peter J; Mehta, Purnima; Ahluwalia, Harpreet

doi:10.3109/01676830.2013.814687

Cited by 10 publications

(7 citation statements)

References 20 publications

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“…These results are similar to those found in the present study. 53 comprised 36 patients treated by evisceration (64%) or enucleation (36%) for a variety of conditions other than malignancy (eg, trauma, glaucoma, and retinal detachment). Pathology in the fellow eye was present in 28% of patients, with visual loss in several of these.…”

Section: The Collaborative Ocular Melanoma Study Groupmentioning

confidence: 99%

Patient-reported Outcomes and Quality of Life After Treatment of Choroidal Melanoma: A Comparison of Enucleation Versus Radiotherapy in 1596 Patients

Damato

Hope‐Stone

Cooper

et al. 2018

American Journal of Ophthalmology

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Patient-reported outcomes and QoL were worse in patients who had undergone primary enucleation for choroidal melanoma. These outcomes may partly have been caused by factors predisposing to enucleation rather than enucleation itself, because enucleated patients tended to be older, with more advanced disease at presentation, and a worse prognosis for survival. NOTE: Publication of this article is sponsored by the American Ophthalmological Society.

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Section: The Collaborative Ocular Melanoma Study Groupmentioning

confidence: 99%

Patient-reported Outcomes and Quality of Life After Treatment of Choroidal Melanoma: A Comparison of Enucleation Versus Radiotherapy in 1596 Patients

Damato

Hope‐Stone

Cooper

et al. 2018

American Journal of Ophthalmology

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“…When asked if loss of the eye had affected various day‐to‐day activities, 80% reported ‘no effect’. A more recent survey found that loss of an eye did not significantly impede normal daily activities, including driving, despite impairment of peripheral vision and judgement of distance .…”

Section: Discussionmentioning

confidence: 98%

A multicentre study of long‐term follow‐up and owner satisfaction following enucleation in horses

Wright

Ireland

Rendle³

2017

Equine Veterinary Journal

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“…The tumor registry in 2012 reported 763 cases of Rb. 11 We enrolled patients who had undergone bilateral eye removal to review their HQL in 2020. This study was approved by the Institutional Research Board (IRB: 1471).…”

Section: Methodsmentioning

confidence: 99%

“…7,8 However few publications evaluate HQL in children and young adults who have undergone removal of both eyes. 6,10,11…”

Section: Introductionmentioning

confidence: 99%

Health related quality of life of patients treated with bilateral enucleation for retinoblastoma

Qahtani

AlMasfer

Khandekar

2021

European Journal of Ophthalmology

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Purpose: Bilateral enucleation is rarely used to manage retinoblastoma (Rb). We present the health-related quality of life (HQL) and the associated factors among individuals who underwent bilateral surgical enucleation for retinoblastoma. Methods: Patients were interviewed via telephone in January 2020. A retinoblastoma registry was used to select patients who underwent bilateral enucleation/exenteration during 33 years. Data included age, gender, literacy, occupation, marital status, and health issues. Patients were asked eight questions on HQL. The responses were graded as 0–10. The percentage proportion of the HQL score was correlated to the determinants. Results: Twenty-one out of 24 participants were interviewed (median age, 23 years). Fourteen participants answered the HQL question themselves, and for 7, their parents answered. Twenty patients (95%) had an ocular prosthesis. The median HQL score was 58 (out of a maximum score of 80) (interquartile range (IQR): 49; 70; minimum, 0 and maximum, 74). The HQL score was positively correlated to: self-reporting than parents reporting (Mann Whitney U (MW) p = 0.05); among students versus individuals in other occupations (MW p = 0.03); interval between eye removal and interview ( p = 0.02). Age at enucleation of the second eye ( p = 0.001), students ( p < 0.001), and self-responders ( p < 0.001) were independent predictors of a high HQL score. Conclusions: HQL of individuals having bilateral eye enucleation for retinoblastoma was reasonably good and positively correlated to self-reporting, learning as students to cope and age at 2nd eye removal. Anaplasty services to improve cosmetics seem to benefit such disabled persons.

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Visual Function and Quality of Life in Patients Who Had Undergone Eye Removal Surgery: A Patient Survey

Cited by 10 publications

References 20 publications

Patient-reported Outcomes and Quality of Life After Treatment of Choroidal Melanoma: A Comparison of Enucleation Versus Radiotherapy in 1596 Patients

Patient-reported Outcomes and Quality of Life After Treatment of Choroidal Melanoma: A Comparison of Enucleation Versus Radiotherapy in 1596 Patients

A multicentre study of long‐term follow‐up and owner satisfaction following enucleation in horses

Health related quality of life of patients treated with bilateral enucleation for retinoblastoma

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