Quality-of-life for individuals with a vestibular impairment following an acquired brain injury (ABI); the clients’ perspective

Killington, Maggie; Speck, Kathryn; Kahlbaum, J.; Fabian, John Matthew; Edwards, Diane; Stobie, J.

doi:10.3109/02699052.2014.995226

Cited by 11 publications

(10 citation statements)

References 37 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…There appears to be a combination of symptoms that this population experiences including environmental sensitivity, cognitive and communication difficulties, impaired balance, pain, fatigue, and difficult emotional responses. These challenges are consistent with the literature (Hellerstein & Scheiman, 2011;Killington et al, 2015;Suter et al, 2011). All these challenges together and in isolation interfere with participation in everyday activities and social roles.…”

Section: Complex Situation: Not Just Visionsupporting

confidence: 92%

Participation and quality of life for persons with oculomotor impairments after acquired brain injury

Wagener¹,

Kreiger²

2019

British Journal of Occupational Therapy

View full text Add to dashboard Cite

The purpose of this project was to explore the prevalence and nature of participation and quality of life for persons with ABI-related oculomotor impairments. The specific aims were to (1) describe participation in everyday activities and social roles, and quality of life; and (2) provide preliminary recommendations for occupational therapists and health care providers on which specific participation areas to assess and identify possible tools to use. This study used a cross sectional descriptive approach with self-report tools to measure visual symptoms, quality of life, and participation in everyday activities and social roles. Openended follow-up questions were also done to understand the nature of those items described as difficult. Thirty participants were interviewed. Visual symptoms were significant for 96.7% of the participants. Quality of life scores for both physical and mental health were approximately one standard deviation below the US population norms. All categories except nutrition and personal cares were at least two standard deviations below the norms for community living adults. The everyday activities and social roles identified as very difficult for 80% or more of the participants were: recreation, education, work, house maintenance, and volunteering. Isolated tasks that were very difficult for 59% of more of participants included using a computer, communicating in a group, reading, and driving. It appears that the isolated tasks were perceived as less difficult than when put together. Narrative responses were grouped into three themes: challenges of the task and environment, selfidentified personal difficulties, and changes to habits/priorities/roles. The complexity of the situation as well its dynamic nature is discussed. Recommendations are made for which activities and visual symptoms health professionals should be aware, as well as possible assessment tools to use.

show abstract

Section: Complex Situation: Not Just Visionsupporting

confidence: 92%

Participation and quality of life for persons with oculomotor impairments after acquired brain injury

Wagener¹,

Kreiger²

2019

British Journal of Occupational Therapy

View full text Add to dashboard Cite

show abstract

“…Several large population-based studies have previously observed an association between vestibular loss and poorer health-related quality of life using standardized quality-of-life questionnaires [25, 26]. A few prior studies have taken a qualitative approach, specifically in patients with traumatic brain injury with resulting vestibular loss, a group of patients undergoing vestibular rehabilitation, and in individuals with Meniere's disease [27–29]. In addition, Yardley has well documented the lived experience of a wide range of individuals suffering from dizziness and vertigo [30].…”

Section: Discussionmentioning

confidence: 99%

Understanding the Experience of Age-Related Vestibular Loss in Older Individuals: A Qualitative Study

Harun¹,

Li²,

Bridges

et al. 2016

Patient

View full text Add to dashboard Cite

Background Inner ear balance (or vestibular) function declines with age and is associated with decreased mobility and an increased risk of falls in older individuals. We sought to understand the lived experience of older adults with vestibular loss in order to improve care in this population. Methods Qualitative data were derived from semi-structured interviews of individuals aged 65 years or older presenting to the Balance and Falls Prevention Clinic from February 1, 2014 to March 30, 2015 for evaluation of age-related vestibular loss. Transcripts were analyzed using interpretive phenomenological analysis. We created a taxonomy of overarching superordinate themes based on the World Health Organization's International Classification of Functioning, Disability, and Health (ICF) Framework, and classified key dimensions within each of these themes. Results Sixteen interviews were conducted with individuals (mean age 76.0 years, 75 % female) with age-related vestibular loss. The three superordinate themes and associated key dimensions were (1) body impairment (including depression, fatigue, fear/anxiety, and problems with concentrating and memory); (2) activity limitation and participation restriction (isolation, needing to stop in the middle of activities, reduced participation relative to expectations, reduced ability to drive or travel, and problems with bending/looking up, standing, and walking); and (3) environmental influences (needing help with daily activities). All participants reported difficulty walking. Conclusions Older adults report that vestibular loss impacts their body functioning and restricts their participation in activities. The specific key dimensions uncovered by this qualitative study can be used to evaluate care from the patient's perspective.

show abstract

“…Les déficits visuels et le diagnostic de TCC-MG sont intimement liés à plusieurs autres dysfonctions que la vision. Ils ont des effets souvent durables et graves sur les tâches motrices, sociales, cognitives, communicationnelles, et émotionnelles (Ciuffreda et al, 2007; Greenwald et al, 2012; Killington et al, 2015; Lew et al, 2009; McDonnall et al, 2020; Wilson et al, 2017); et sur la plupart des autres aspects de la vie, à travers une cascade d’effets indirects. Ainsi, le diagnostic de TCC-MG représente une grande menace pour la Qualité de Vie (QdV; Cuthbert et al, 2015; Seibert et al, 2002; Takada et al, 2016).…”

Section: Traumatisme Craniocérébral Et Qualité De Vieunclassified

L’impact des symptômes de photosensibilité sur la qualité de vie des personnes atteintes d’un traumatisme craniocérébral modéré à grave : Une étude qualitative.

Grandbois¹,

Sirois²

2023

Canadian Journal of Behavioural Science / Revue canadienne des

View full text Add to dashboard Cite

Les traumatismes craniocérébraux modérés à graves (TCC-MG) sont les formes les plus sévères de TCC observées, avec des symptômes persistants et débilitants, tels que des atteintes significatives des fonctions visuelles. Les déficits visuels ont des effets durables et graves sur les tâches motrices, sociales, cognitives, et émotionnelles; et sur la plupart des autres aspects de la vie, à travers une cascade d’effets indirects. Bien que les déficits visuels, particulièrement la photosensibilité, sont des symptômes communs inhérents au TCC-MG, aucun test subjectif ou objectif standardisé n’a été développé pour son diagnostic, sa quantification et son traitement ultérieur. Cette étude vise à développer une compréhension de l’impact subjectif de la photosensibilité sur la qualité de vie des personnes ayant eu un TCC-MG. Une approche qualitative exploratoire a été utilisée pour explorer les récits de 8 adultes TCC-MG photosensibles par des entrevues semi-structurées. Les atteintes comprenaient des aspects physiques, cognitifs, et émotionnels, et étaient liées à la photosensibilité et à la prise de conscience du plein impact de leur blessure. L’amalgame du changement de l’état fonctionnel et de ses impacts, et du deuil de l’identité ancienne, se sont traduits par un changement des rôles valorisés. Ces résultats permettent de documenter la photosensibilité ressentie par les personnes ayant eu un TCC-MG et d’explorer leurs impacts sur leur qualité de vie.

show abstract

Quality-of-life for individuals with a vestibular impairment following an acquired brain injury (ABI); the clients’ perspective

Cited by 11 publications

References 37 publications

Participation and quality of life for persons with oculomotor impairments after acquired brain injury

Participation and quality of life for persons with oculomotor impairments after acquired brain injury

Understanding the Experience of Age-Related Vestibular Loss in Older Individuals: A Qualitative Study

L’impact des symptômes de photosensibilité sur la qualité de vie des personnes atteintes d’un traumatisme craniocérébral modéré à grave : Une étude qualitative.

Contact Info

Product

Resources

About