Quality of life assessment scales in polio survivors: a scoping review

Sulaiman, Surajo Kamilu; Aldersey, Heather Michelle; Fayed, Nora; Kaka, Bashir; Okyere, Christiana

doi:10.1007/s11136-019-02185-x

Cited by 5 publications

(19 citation statements)

References 102 publications

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“…We conducted this integrative review using the findings of our previous studies: a scoping review of QoL assessment instruments among polio survivors [56] and a qualitative exploration of the perception and domains of QoL for polio survivors in northwest Nigeria [55]. We employed pre-existing recommendations to select the most appropriate QoL instrument(s) that reflects the perspectives of polio survivors in northwest Nigeria and at the same time possesses good psychometric properties.…”

Section: Methodsmentioning

confidence: 99%

“…We made this judgement based on the criteria for good measurement properties described by the COSMIN practical guideline for the selection of outcome measurement instruments [47]. The details of how we applied the criteria were reported in our previous scoping review [56]. Table 4 illustrates the criteria we followed in evaluating the measurement properties.…”

Section: Psychometric Analysismentioning

confidence: 99%

“…There are 14 versions of the QLI [26] and the generic and spinal cord injury versions are typically employed in polio literature [27,54]. Although the validity and reliability of the QLI have been established, these properties are not yet reported in polio survivors [56]. Conversely, the World Health Organization Quality of Life Questionnaire-Brief (WHOQOLBREF) is an abbreviated version of the WHOQOL-100, which was developed cross-culturally by the World Health Organization Quality of life Group [59].…”

Section: Selection Of the Instrumentmentioning

confidence: 99%

“…Within polio literature, QoL studies are typically reported from high-income countries that eradicated polio decades ago. Studies from low-income countries, especially where polio cases are common, such as Afghanistan, Nigeria, and Pakistan are scantily reported [56]. Hence, there is a need for more empirical evidence from low-income countries like Nigeria, to provide a holistic understanding of the wellbeing of polio survivors.…”

Section: Introductionmentioning

confidence: 99%

“…In our previous review, we identified 11 instruments that have been employed to measure the QoL of polio survivors globally [56]. Table 1 provides information about these instruments.…”

Section: Introductionmentioning

confidence: 99%

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Selection of a quality of life instrument for polio survivors in Northwest Nigeria

Sulaiman

Aldersey

DePaul

et al. 2020

Health Qual Life Outcomes

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Background To generate high-quality evidence, contextually relevant outcome measurement instruments are required. Quality of life evaluation among polio survivors typically involves the use of generic instruments, which are developed and validated among a different groups of people. There is no clear evidence whether these instruments are appropriate for the measurement of quality of life among polio survivors in northwest Nigeria. The purpose of this review is to identify and select a pre-existing instrument that is best suited for the measurement of quality of life among polio survivors in northwest Nigeria. Methods Using the findings of a previous scoping review of the literature and qualitative descriptive study, we screened 11 quality of life instruments that are used in polio literature. We identified and selected the most appropriate instrument, which reflected the perspectives of polio survivors in northwest Nigeria and at the same time exhibited good measurement properties. Results The Quality of Life Index, World Health Organization Quality of Life Brief, and Comprehensive Quality of Life Scale are consistent with the perspectives of polio survivors in northwest Nigeria and have satisfactory measurement properties. Among these instruments, the Quality of Life Index satisfied most of the screening criteria we employed and is suitable for cross-cultural adaptation in northwest Nigeria. Conclusion Most instruments that are employed to evaluate the quality of life of polio survivors were not primarily designed as a measure of quality of life. To select the appropriate instrument, there is a need to consider and reflect the perspectives of the individuals, to improve the validity of the measurement.

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Section: Methodsmentioning

confidence: 99%

Section: Psychometric Analysismentioning

confidence: 99%

Section: Selection Of the Instrumentmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“…In our previous review, we identified 11 instruments that have been employed to measure the QoL of polio survivors globally [56]. Table 1 provides information about these instruments.…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Selection of a quality of life instrument for polio survivors in Northwest Nigeria

Sulaiman

Aldersey

DePaul

et al. 2020

Health Qual Life Outcomes

Self Cite

View full text Add to dashboard Cite

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Quality of life assessment instruments in adult patients receiving home parenteral and enteral nutrition: A scoping review

et al. 2022

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Quality of life (QoL) assessment is important to evaluate the effect of the intervention for patients treated with home parenteral and enteral nutrition (HPEN). The purpose of this scoping review is to describe, evaluate, and recommend QoL instruments used in adult patients receiving HPEN. We used the Arksey and O'Malley framework and performed literature searches in five databases (PubMed, CINAHL, EMBASE, Web of Science, and Cochrane Library) to identify possibly relevant articles that focused on QoL of adult patients receiving HPEN. Of the studies that qualify for full-text screening, two independent researchers extracted data. Twenty-seven QoL instruments were identified, consisting of seven generic instruments, 12 disease-specific instruments, and eight therapy-specific instruments. The Short Form-36 was the most widely used generic instrument and the European Organization for Research and Treatment of Cancer QLQ-C30 was the most commonly employed disease-specific instrument. The recently developed therapy-specific tools, NutriQoL and HPN-QoL, were increasingly employed in studies either alone or in combination with other types of instruments. Important aspects of each instrument were summarized to aid clinicians and researchers in selecting an appropriate instrument when measuring the QoL of adult HPEN patients. Findings could also help to identify the necessity to develop new tools or to modify pre-existing ones to measure QoL of HPEN patients.

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Exploring the Perception of Quality of Life of Polio Survivors in Northwest Nigeria

Sulaiman

Aldersey

Fayed

et al. 2020

Applied Research Quality Life

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Quality of life assessment scales in polio survivors: a scoping review

Cited by 5 publications

References 102 publications

Selection of a quality of life instrument for polio survivors in Northwest Nigeria

Selection of a quality of life instrument for polio survivors in Northwest Nigeria

Quality of life assessment instruments in adult patients receiving home parenteral and enteral nutrition: A scoping review

Exploring the Perception of Quality of Life of Polio Survivors in Northwest Nigeria

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